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01-11-2009, 03:55 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Good news and not-so-good from TriciaK
I said I would report on the results of my 6-months cancer checkup last week: I am delighted to say I am still dancing with NED! (I have a mantra I always repeat over and over in the PET or MRI along with the rhythm of the machine. It is: NO EVIDENCE OF DISEASE. Since I am close to my 5th cancerversary fighting her2 BC, it may be working! )
The not-so-good news is that I am having more heart problems. You may remember that I had a heart attack in June, 2004, that actually saved my life, because the CT showed that BC was back, this time her2 and in my lung. I spent over a year on herceptin, plus navelbine the first 6 months and femara forever. I had first had BC in 1985, had bilateral surgery and transplants. It showed up again in 1990 in my spine, but tamoxifen and some extra unconvential treatments like hypnosis and change of diet seemed to have stopped it, since I was clear for about 15 years. ( My last MRI 1995 showed "Healed Metastatic BC" so I just forgot about any more checkups---which is why the heart attack saved my life. I would not have known about the her2 BC until too late.)
I had a triple heart bypass in 2006, and did well afterwards until the last year. I have been weak and dizzy and just not doing well. I went to the ER on Dec. 15, and they found a blood clot in my right lung. I still have not been doing too well since 4 days of treatment then with heparin and then coumadin, so I saw a new cardiologist Friday who looked at my history, including the last angiogram last fall and the recent PET and CTs. She then said "I am really worried about you! I want to put you back in the hospital and have the cardiac surgeons do another angiogram, but this time thread the camera up through the groin on both sides, not just one, so they can look at the heart and both lungs."
As you know, I am 79 years old and have been fighting BC since 1985 and congestive heart failure and cardiomyopathy for about the last 4 years. We have an outstanding hospital here with the best cardiac unit in the state, and the doctors that will do the procedure are considered the best of the best.
At my age it is a little scary though, and I am asking for the thoughts and prayers of you wonderful warriors. The procedure will be tomorrow afternoon. I have a strong spirit and a lot of faith, so with your prayers and those of my large family, I am expecting good results ! Thank you for being there for me as we are for each other. I am in awe of all you have gone through and how strong you are! Love and hugs, Tricia K (in beautiful St George, Utah).
Last edited by TriciaK; 01-11-2009 at 03:58 PM..
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01-11-2009, 04:06 PM
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#2
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Tricia,
I am sending positive thoughts and healing prayers you way.
Hugs,
Karen
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01-11-2009, 05:02 PM
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#3
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Tricia,
My goodness your story is such an inspiration! I tip my hat to your strength and courage.
Procedures are scary not matter what our age. I image at 79 they are even more worrisome. I will pray your arteries are clear, your lungs are clear, and that you sail through the procedure tolerating it well. I penciled you into my Day Planner so I will keep you before the Lord tomorrow while you are having the procedure.
Please post an update on your condition when you are able. I will pray "no more blood clots" as well. I hope you will move through this and will have your bounce back in your step in no time!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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01-11-2009, 05:53 PM
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#4
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Dear Tricia,
Keep on the good spirit and keep repeating Ned Ned Ned. I will for sure be praying for you toninght and tomorrow, and everyday as I pray for the well being of all our sisters and their families. I am with you in spirit and I send you a big hug. God bless you,
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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01-11-2009, 06:01 PM
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#5
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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 to you dear Tricia!
I'll be thinking good heart, good heart, good heart throughout the day as they work on you and look inside one of the MOST amazing hearts there is! They might see all the physical things in their procedures tomorrow, but all the things they won't see are what matters most....who you are and who you love. Good heart and many prayers to you, ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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01-11-2009, 06:06 PM
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#6
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Senior Member
Join Date: Dec 2008
Posts: 43
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prayers
I have prayed for you and will continue to do so. You remind me so much of my mom who was a fighter also. Don't ever give up. the Lord can heal at anytime. Continue to have faith.
Take care,
snufi
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01-11-2009, 06:53 PM
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#7
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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sending hugs and prayers your way!!!!!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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01-11-2009, 07:12 PM
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#8
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Dear Sweet Tricia.....
Prayers forthcoming....now and again tomorrow. I pray you feel the prayers and love from each of us and the arms of God holding you close.
God's Love....our prayers and His peace surround you sweet "sister."
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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01-11-2009, 07:40 PM
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#9
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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Tricia, dear sister, we will all be praying for you tomorrow (starting tonight) and sending much positive, healing energy. I love your mantra NED and will use that on wed at my PET/CT. Thank you for sharing your battles, inspiration and courage with all of us. We're sisters and we will fight on together! Much love, Vickie
__________________
Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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01-11-2009, 08:06 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Thinking of you
HI Tricia,
Thoughts and prayers are coming from me. You have been such an inspiration to me since I joined the Her2 website. I wish you all the best and a speedy recovery. I am glad that the doctors are looking out for you.
Best wishes,
Barbara H.
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01-11-2009, 09:54 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Keeping you in my thoughts and prayers.
You are such a warrior!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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01-11-2009, 10:37 PM
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#12
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Tricia,
Hugs and prayers are coming your way. You are the warrior. Thanks for sharing the plan with us. We will be with you in thought and prayer tomorrow. I hope when you come home from the hospital that someone will come to the site and print all of our messages off for you to read. Just in case you can not type for a few days after coming home, just have your "secretary" do it for you.
All the best for the proceedure Monday, Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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01-12-2009, 06:22 AM
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#13
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Senior Member
Join Date: Sep 2005
Posts: 589
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Tricia,
I'm sending a cyber hug and positive thoughts your way.
Eric
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01-12-2009, 06:38 AM
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#14
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Tricia,
I am amazed at your history. I will be praying for you about yout heart concerns.
Amelia
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01-12-2009, 06:56 AM
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#15
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Senior Member
Join Date: Oct 2005
Posts: 823
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Tricia lot's of prayers going out for you.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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01-12-2009, 07:37 AM
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#16
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Dear Tricia,
You are certainly one of our heros!
Your kindness love and wise words are always present in your posts. Will be thinking of you and sending you healing energy and much love!
Kindest Regards,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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01-12-2009, 10:26 AM
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#17
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Tricia, I am sending wonderful healing thoughts and an abundance of prayers especially for you today. As soon as I get home I will be lighting your own candle as I continue to send prayers. Take care Sweet friend, you are always in my thoughts. Here's to a speedy recovery!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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01-12-2009, 10:44 AM
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#18
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Dear Tricia,
Wishing you well this afternoon...remember 79 is the new 39 so you're not really even middle aged...
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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01-12-2009, 11:00 AM
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#19
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Tricia,
You are such a brave warrior. Sending my prayers and healing thoughts your way.
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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01-12-2009, 11:04 AM
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#20
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Dear Tricia,
Sending positive thoughts and prayers from the Great White North -
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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