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Old 10-09-2007, 11:17 AM   #81
PinkGirl
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Wink She's shy

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Size:  16.5 KBYes Andi, she is quiet and shy. I am very happy that she'll be with you and Believe next. It is perfect. You can coach her on believing in her own power, achieving her desired destiny and eliminating her fear-driven thoughts.

When she goes to Rhode Island, Believe can teach her about faith and always believing in miracles. She will be a very well adjusted, stable, grounded hamster who is one with the universe and filled with the peace and calm of her new faith. She's one lucky rodent!!

I'm not sure about her drinking preferences. I gave her wine in a little liqueur glass, but she drank the beer when I wasn't looking. Might have just gulped it down, eh?

I have almost posted all of her pictures from our visit. These are two from our day at the beach. She stood on driftwood but never put her toes in the water. The other one is Tip up a tree looking down at the lake. The third one is her and I on the couch reading Beyond magazine. I think she fell asleep. Hope you enjoy the pics...

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__________________
PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 10-09-2007, 02:03 PM   #82
Andrea Barnett Budin
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Cool T. Toe Is In Boca, Safe And Sound...



ANNOUNCING THE ARRIVAL OF
MS. T. TOE
THE package arrived today! What a relief. Tiptoe climbed out the moment I opened the box. SHE IS PRECIOUS. Much tinier than I'd imagined... She startled me at first. I squealed. Then, so did she!

I have given her some water and the nuts Pinkie sent in the teeniest round plastic container. She had trouble gnawing it open I think.

The Pink One is wise. She sent along sunscreen and dental floss!! You know, hamster incisors grow continually, so the latter will probably come in handy.

All is in tact, including Tippy's whiskers (one was flattened a bit, but I whisked it up). She came complete w/tiny blue stud earrings in her pierced ears. Perfect for her. She flashes her prehensile tail around and she has every right to be proud. I know how rare such a thing is to most hamsters. Her eyes are penetrating and her temperament very demure. The pink hair extensions Pinkie gave her protrude just a bit from behind her right ear. She says Pink Girl and Bob were really nice and asked me to send them hugs. Tiptoe is unique indeed. I find her very chatty.

Much more to follow. I promise.
Andi

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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 10-09-2007, 08:28 PM   #83
hutchibk
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Hope you girls are enjoying a nice bottle of merlot tonight. What's on tap for tomorrow?
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 10-09-2007, 08:34 PM   #84
lilyecuadorian
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send it to me too!! please I will take it to Ecuador and show the Galapagos ....
__________________
Lily
Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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Old 10-09-2007, 08:38 PM   #85
hutchibk
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Just be sure that she ends up with me sometime around Dec 5-10 timeframe so that I can take her to the San Antonio Breast Cancer Symposium and she can party with me and Sheila and Becky and Maryanne and Christine and Joe, etc.... I can then send her home from there with one of those lovely folks for her next adventure!
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 10-10-2007, 05:43 AM   #86
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Talking I am getting excited!!

I went to my husband's petscan on Saturday and after he was all situated I went to check up on Chester the Chipmunk. Maybe because I have been 'clicking' like a chipmunk for over one year now, maybe by coincidence....but my furry friend comes out every time we go to the Imaging or Infusion Unit of our hospital. OAK LEAVES and ACORNS(cause ya all know my boy is my MIGHTY OAK!!) were falling all over, some even hitting me in the head. As I laughed about the complete joy I was feeling I looked into the zen garden to see many butterflies and dragonflies all busy gathering food and sun. Chester came out and layed down on his belly just like a cat or dog. My eyes filled up with happy tears and my mind was going a mile a minute.

I thought how great it would be if Tiptoe and Chester could get a beautiful picture together. I have gather some acorns and cleaned up the area a bit in great anticipation for our visit. Mom is preoccupied with her potential breast problems but is eager to make this blanket in time!! I just spoke with Andi and I must have missed Tiptoes arrival. I am so ready for our visit with Tiptoe. Tonight I will be shopping for nuts and cheese. I have two large Yankee Candles (Autumn Leaves) that I thought Tiptoe may enjoy, after all she is going to have to learn about Miracles and we need to show her how WE pray for her mommy's well-being!!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 10-10-2007, 05:52 AM   #87
Sheila
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I think Tip should go to Arizona in January with Karen or someone going to the Spa....she may need rejuvinated by then...I can see her getting a massage right now...hope they have teeny towels! We definately need to take her to Durty Nellies in San Antonio...she is a little Irish isn't she?
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 10-10-2007, 06:25 AM   #88
fauxgypsy
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Posts: 600
When is Tiptoe going to get to come to Mississippi? The weather is finally starting to cool down and she won't be as thirsty for beer. I still have her portrait to paint. She could get her picture taken with Santa, ya'll do know I'm married to him, don't you?

Leslie
__________________
In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!

Last edited by fauxgypsy; 10-10-2007 at 06:26 AM.. Reason: My mind gets ahead of my fingers.
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Old 10-10-2007, 06:56 AM   #89
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Smile what a relief

I am so happy that Tiptoe arrived safely in Boca Raton. I was worried she would get stopped at the border (toys from China, or tiny terrorist hamster etc.)

Andi, I'm surprised that you find her "chatty". Maybe it was all the time in the box during her air mail flight. I know she'll have a great time in Florida and you will take very good care of her ... looking forward to some pictures.

Great, great idea for Tip to go on the spa vacation. So many of you would get to meet her and take some group photos.

Not that I am constantly worrying about Tiptoe, but.........Andi, I'm not sure if she can swim. Can you get some kind of tiny flotation device for her, just in case. I would hate for her adventure to end at the beginning. Maybe one of your grandkids has some kind of hollow plastic ring that would fit around her belly...

Have fun with her. Everyday I think of something I could have done with her. Should have taken her out in a boat and got her a little tiny fishing rod. Oh well, next time.

No comments from you yet about Chairman Mao???
__________________
PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
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Old 10-10-2007, 02:19 PM   #90
Andrea Barnett Budin
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Cool The Hamster Dance And Music Are Electrifying!

Tiptoe and I were shaking our booties, and giggling, to the Hamster Dance. I played it on the computer from the website Shiela gave us. www.webhamster.com, if you want to give a listen. Let me tell you, Tip has some moves... We watched the Presidential Debate last night and Dancing With The Stars. We read CURE magazine and listened to Paul snore...

Today, Tippy and I frolicked in the garden around my house. She liked the groundcover along the front walkway and burrowed among the dwarf chenille (they look like hot pink fuzzy inchworms with ivy-like leaves). She played in the palm fronds, noting their great variety. The sky is its' usual magnificent blue and it is bright and sunny here, very tropical. (Tipsy said it reminded her of the desert her ancestors came from in northern China.)

In the backyard, she nibbled on the Birds Of Paradise. I've noticed the squirrels chomp on something from them too. So I kept a sharp eye out to make sure no one messed w/Tipsy. She's so very small, I worry. But, she is very brave! A Warrior Woman, just like us...

Then I took her in my bedroom to see my prize bromeliad. It's flaming orange, and I call her Tangy. I love that plant! I get very attached to my plants. Four have traveled from NY to Fla (shhhh... don't tell, against interstate law I think). Tangy greets me every morning. I've taken pictures and am counting on Paul to make them materialize from the camera to the computer.

BTW, Pinkie has set a very high standard for all of us. I think she is a master artsy/craftsy person. She could go in to the scrapbooking business! The details of her passport from The People's Republic of China and the amazing journal the Pink One has amassed is a treat. Wait till it's your turn to view her work! Much love and time has gone in to this grand project we are all going to take part in. I can feel Pinkie's energy throughout my house. Tiptoe came nestled in shredded brown paper and hot pink tissue paper. It was a cozy retreat that she told me she really appreciated. Her whiskers need constant brushing, as they flatten, but she is a great companion and has made me sparkle and shine since I first laid eyes on her.

More to come...
Andi

__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 10-10-2007, 02:35 PM   #91
Andrea Barnett Budin
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Exclamation In Search Of A Mantra...


Tiptoe is an enlightened being, full of peace and compassion, strength and fortitude. She tells me that the Great Compassion Mantra contains great healing power! It is like a magic spell or password to invocate or communicate with The One.

AUM MANI PADME HOM is cleansing and transforming. It allows the one chanting those syllables to attain the exalted embodiment of Compassion, Love and Wisdom. It puts you in touch with the awareness that your body and mind are empty without your Spirit! All the answers to all your questions lie within you.

In silence and meditation, you become free to connect with your Essence, or Soul. In so doing, you tap in to the powers of the Universe. Hail the jewel in the lotus. Be motivated to seek Compassion, Love and Enlightenment -- and peace and balance will fill you up to overflowing.

(I'm just telling you what Tiptoe explained to me...)

Andi

__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 10-10-2007, 03:14 PM   #92
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Red face ...sorry

Name:  10-10-2007%2005%3B01%3B58PM.jpg
Views: 142
Size:  17.9 KBI feel so bad. When Tiptoe was at my place, she told me about her spiritual beliefs -- some stuff about metaphysics, meditation, harmony -- I told her I respect her beliefs but don't know too much about it. Told her to wait and talk to Andi about that stuff.

I had no idea it was that important to her. Now I feel awful, because the day she arrived from China, I helped her unpack and she had this photo with her; she said it's her most treasured possession. I forgot to send it with her
...Could you copy it Andi and put it in her journal for me....thanks


Attachment 123
__________________
PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Last edited by PinkGirl; 03-30-2008 at 10:57 AM..
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Old 10-10-2007, 03:45 PM   #93
Andrea Barnett Budin
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Cool Pink One...

Oh, Pinkie! Now I feel bad you feel bad!! Don't feel bad. I have been told by many people that I bring out their Inner Buddha... Tip and I are just so on the same wave length. She is all about Love, Compassion and Inner Peace. She also has healing powers which I am anxious to send on to all our Sisters.

Even if you did not sense this healing energy, Pink, it is with you. Bouncing off your walls. Open your heart, and let it in. You have had a most honored guest in your home. And Tip tells me she is humbled by your inner beauty. Your Spirit is radiant (which we can all see from your posts). Plus, you have cute dimples...

Andi

I have copied the pic and will add it to The Journal...
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 10-10-2007, 07:56 PM   #94
hutchibk
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By the way - I have told Kathy LaTour (Publisher/Managing Editor of CURE Magazine about TipToe and she loves the story... she told me she would be interested in a little website story about her.) Let's not tell Tipsy yet, it might go to her head...
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 10-10-2007, 08:02 PM   #95
hutchibk
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Now knowing more about Tipsy's spiritual center, I bet she knows this one, too...
ARDAS PAYE, AMAR DAS GURU, AMAR DAS GURU,
ARDAS PAYE, RAM DAS GURU, RAM DAS GURU, RAM DAS GURU,
SUCHE SAHE
Guarantees by the grace of Guru Amar Das, who is hope for the hopeless, and Guru Ram Das, who is King of the Yogis and Bestower of Blessings, past, present and future, that the prayer will be answered, and that all one's needs are provided for, signed, sealed and delivered!
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 10-10-2007, 08:22 PM   #96
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Smile just to set the record straight...

In case Tiptoe ends up in some magazine or maybe doing the Oprah show, or Letterman........... it was Joanne S who started the first post about Chinese Hamster ovaries....not me.....
__________________
PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
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Old 10-10-2007, 10:26 PM   #97
Andrea Barnett Budin
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Cool Sorry About That... It All Began W/joanne S.

Thanks for jogging my memory, Pinkie! You are absolutely correct. It all began with Joanne S.'s post -- HERCEPTIN DID YOU KNOW -- it is derived from Chinese Hamster Ovaries... Then, you leapt right in, followed by many of us, who wanted to join in the fun. We just kept coming up w/funny lines. It became a thread of truth with humor and even some music from Shiela thrown in, to amuse and entertain us all... A break from the tough realities of living w/bc.

We began thinking we would adopt and nurture this tiny creature and make her our mascot, passing her along from Sister to Sister. But, what we give is returned to us tenfold! So now each of us is blessed by taking part in this great venture in so many ways. We are all even more bonded. Pinkie and I have met this precious Wise One who is quick to exchange her powers of healing and granting inner peace for some hospitality and affection. And many more will know this gift, as their turn comes around. It's a win/win situation. Each of plays a role, and in the end joy and peace and extraordinary compassion will fill our Spirits and our homes. Dancing to the Hamster Song and dancing with NED...

With loving energy, Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 10-10-2007, 11:52 PM   #98
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Visions of Tiptoe

Thank goodness that Tippy arrived safely. I think it is wise that you packed her so carefully. Those whiskers can probably be set with hair gel if necessary. Not sure she will have time to go to the salon with all of her beach time, pool time and meditation time. I am going to bed now, with visions of Tip Toe dancing in my head.

Ummmmmmmmm, Catherine
__________________
Catherine


Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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Old 10-11-2007, 07:54 AM   #99
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Talking me again

Andi, I keep thinking about whether or not Tiptoe can swim.... more negative thoughts...... Have you had any luck with the flotation device? I was also thinking of a teeny tiny inflatable raft so she can float in your pool. I don't know if hamsters like to get wet.
__________________
PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
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Old 10-11-2007, 08:29 AM   #100
Andrea Barnett Budin
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Cool Tiptoe Takes On Boca

Yes, Chinese hamsters hail from the desert. Not much water there. Tip found a tiny bottle of scotch (from an airline or hotel, I'm guessing) in my liquor stash. I poured some in to a small bowl. She drank it and fell in! (I have a picture for y'all once I can pin Paul down to transposing it...) He's very busy w/his activities. Retirement is a more fully packed schedule than work was.

When Tip tipped into the bowl it was empty, and I was w/her all the time. I take my Mommy role very seriously, but we are pals too. We go to my Boca daughters on Sundays w/Chase and Scamp to visit Alison, husband Harvey, Josie, Brett and Georgia (3 of my fabulous grandkids) and their dogs, Dibs and Dash (another Maltese/same age). Tiptoe has of course also been invited. They have a pool too and since Georgia is age 2 I'm sure we'll find lots of little things for Tip to enjoy. Ali is very creative and I will bring my camera. Rest assured, Tippy is in good and loving hands. She's like family, after all.

Thought we'd go to Mizner Park today. Plaza Real is like a Mediterranean suburban town center, w/Gazebos and tall palms and many flowers. The flora and fauna are a big draw in the hamster world, I know. But there's also swanky shops, restaurants and outdoor cafes and walkways to stroll, all under a heavenly blue sky full of sunshine. (I'll bring a snack for Tip, though the vegetarian section of the menus probably will be to her liking.) There's an Ampitheater and the Boca Raton Museum of Art in the Park too. No shows in the day time, but ample space to roam, burrow and gnaw. (Note: Raton literally means little mouse in Spanish I think. Pronounced to rhyme w/phone...) There's a strong Spanish influence architecturally throughout Boca and we have streets named Camino Real, Verde Trail, Spanish River Boulevard.

I haven't told Tiptoe about the alligators (in the Everglades and the canals) yet...
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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