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03-12-2013, 06:13 AM
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#1
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Senior Member
Join Date: Apr 2011
Location: Port Hedland, Australia
Posts: 382
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Lump in neck and ultrasound
Hi Ladies,
Just wanted to share that I am off for an ultrasound and maybe biopsy tomorrow on a lump that has been present for about 8 months in neck. It will be the second u/s on lump the first was done in a 'small town' hospital 8 months ago and the onc in the 'big smoke' just wants to double check so am not really expecting anything huge - but - you know its a lump and all that!!
I am due to fly home to the UK in 2 weeks time, I have been trying to get home for 2 years now since diagnosis and Eddie was born - fingers crossed that nothing tomorrow will interfere with my much rehatched plans to see my Mum... Am nervous but trying to be brave.
Cheers
Jenny x
__________________
Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy
Praying the Herceptin is as good as its hype!!
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03-12-2013, 09:05 AM
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#2
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: Lump in neck and ultrasound
Hello Jenny. Hope you appointment today brings only good news. It's probably good to be careful and have it checked out. Then, you can make your trip to the UK with some reassurance. Fingers crossed.
Barb A.
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03-12-2013, 10:42 AM
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#3
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Lump in neck and ultrasound
Hi Jenny
I also hope your appt only brings reassurance and that its just a knotty lymph node. Hope you have a good trip to England. It's a bit cold here at the moment but spring is on its way.
Hugs
Ellie
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03-12-2013, 04:02 PM
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#4
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Re: Lump in neck and ultrasound
Good Luck Jenny B. I hope you get awesome news that it is benign. Keep us posted.
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes
Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"
Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla
Reconstruction: TRAM flap, partial loss, Revision
The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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03-12-2013, 06:13 PM
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#5
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Senior Member
Join Date: Oct 2011
Location: Geelong, Australia
Posts: 250
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Re: Lump in neck and ultrasound
Good luck Jenny, hope it is all good, and you get to go and your family
Dawn xx
__________________
Dx May 27 2011, age 43
Stage 1V 3.6cm breast lump, spot on lungs, nodes chest + neck
HER2+ ER/PR-
Abraxane weekly - 16 weeks
Herceptin every third week
September 26 2011 N.E.D!
Herceptin ongoing
8th Dec 2011 Brain MRI - clear
20th Dec 2011 bone/cat scan clear still NED
April 2012 scans show axillary node lump - ? what to do...
June 2012 Axillary node dissection 1/11 nodes affected, a wide local excision shows DCIS. Now what to do again? Watch and scan 3 monthly
April 2013, two spots in nodes to chest wall, start TDM1 (Kadcycla) as part of clinical trial
July 2013 stable
Oct 2013 progression off TDM-1 (Kadcycla)
Nov 2013 radiation to lymph nodes in sternum
Dec 2013. Mastectomy right side, pathology shows tumour was HER-2 negative, no wonder TDM-1 (Kadcycla) didn’t work!
April 2014 NED. On Herceptin only
August 2014 NED. On Herceptin only
March 2015. NED. On Herceptin only
September 2015 NED on Herceptin only
March 2016. Pulmonary embolism, Clexane injections daily forever. Still NED On Herceptin only
Nov 2016. Bone Mets in ribs - Radiation. Don’t know if bone Mets are er-/pr-/HER2+ or triple negative.
Can’t give self injections on to tablets (Xarelto) for blood clots.
2017 NED - On Herceptin only
2018 NED - On Herceptin only
2019 NED - On Herceptin only
2020 NED - On Herceptin only
2021 NED - On Herceptin only
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03-12-2013, 07:35 PM
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#6
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Senior Member
Join Date: Jul 2011
Location: Melbourne, Australia
Posts: 432
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Re: Lump in neck and ultrasound
Good luck Jenny - I hope they get you an answer to take away the worry. Xx
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03-13-2013, 03:02 AM
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#7
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Senior Member
Join Date: Apr 2011
Location: Port Hedland, Australia
Posts: 382
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Re: Lump in neck and ultrasound
So I didn't get away quite as easily as I had hoped they did a fine needle aspiration (biopsy) I was so sure that they would lok at the ultra sound and say no further action required!
I am now a little sad but trying to 'not borrow trouble!' - its hard!
I am now back up in Port Hedland with my husband and kids and trying hard to be upbeat and positive - hoefully I will get the results tomorrow arvo or Friday.
I hate how fragile life seems and how easy it is to have the carpet pulled out......
Fingers crossed
Jen x
__________________
Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy
Praying the Herceptin is as good as its hype!!
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03-13-2013, 05:45 AM
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#8
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Lump in neck and ultrasound
Hang on in there Jenny. I hate this disease and how one minute you can feel optimistic then in a brief moment it's all up in the air again.
Please let us know, we are with you in spirit!
Ellie
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03-13-2013, 05:52 AM
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#9
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Lump in neck and ultrasound
Jenny!
I feel like I stand on that same carpet...waiting for it to be ripped out from under me...several times every month! So unfair! So frustrating! But almost always...the carpet stays put.
So... like you so wisely pointed out...let's not borrow trouble. Much better to check things out and be sure you're fine before heading off to the UK...so you can truly enjoy your visit with your beautiful Mum! And, let's be clear...even if the news from your biopsy is not stellar...it's not the end of the world...just a new turn in this messy journey. What's one lumpy lymph node in the grand scheme of things!? I had 14 of them two years ago...and I'm still going strong.
A trip to visit your Mum seems like a dream come true to me. I just know it's going to go off without a hitch. You deserve it! You need it. And...my gut tells me you'll be collecting Mum-hugs in not time at all!
Hug your beautiful family...take a deep breath...and feel the prayers and love of your HER2 friends glowing all around you. Looking forward to your next update!
Denise
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03-14-2013, 12:45 PM
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#10
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Lump in neck and ultrasound
Hi Jenny
Just wondered if there was any news?
Been thinking of you
Ellie
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03-14-2013, 01:26 PM
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#11
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: Lump in neck and ultrasound
Yes Jenny, any news? Sending good vibes from Canada.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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03-14-2013, 03:51 PM
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#12
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Senior Member
Join Date: Apr 2011
Location: Port Hedland, Australia
Posts: 382
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Re: Lump in neck and ultrasound
No news yet - I got the impression that the Oncologists were very busy.......he said initialy that he would get me back in a month to talk about the results!! I said that wouldn't really do and could he maybe phone me - I will call today and try to get some answers the waiting as you al know is horrendous!
Thank you for checking in on me xx
__________________
Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy
Praying the Herceptin is as good as its hype!!
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03-14-2013, 05:43 PM
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#13
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Senior Member
Join Date: Jul 2011
Location: Melbourne, Australia
Posts: 432
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Re: Lump in neck and ultrasound
Jenny - you drive that bus honey - get on the phone an ask for the results. If you call now it gives them a chance to call back before the weekend. Sending you love and I'm sure it will be ok. A xxx
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03-15-2013, 03:26 AM
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#14
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Senior Member
Join Date: Apr 2011
Location: Port Hedland, Australia
Posts: 382
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Re: Lump in neck and ultrasound
Amanda I phoned and the onc called back this arvo after wards - all clear just normal lymph node cells found by pathology - I am very releived but........I am very angry with this stupid disease. I was seriously only just starting to get my mind around things life etc and am reminded how tenous it can all be. It seems whenever I am bold enough to make a plan - like go home to UK something happens....
Anyway enough rant - I do feel very blessed tonight and have been showering my littlies with affection all afternoon - thank you to all who read this and care you guys rock my world every day with your love and c ompassion for all who come here xx
__________________
Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy
Praying the Herceptin is as good as its hype!!
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03-15-2013, 03:37 AM
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#15
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Senior Member
Join Date: Jul 2011
Posts: 954
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Re: Lump in neck and ultrasound
Happy, happy news...I'm so glad for you.
Jenny, you are going to have sooooooooo much fun on your UK trip home!
Paula
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03-15-2013, 04:36 AM
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#16
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Lump in neck and ultrasound
YAY!!!
So happy for you!!
When's the trip?
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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03-15-2013, 05:13 AM
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#17
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Lump in neck and ultrasound
Such brilliant news. I am so happy for you and now you can have your trip to England!
Ellie
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03-15-2013, 07:01 AM
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#18
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: Lump in neck and ultrasound
Jenny, that is absolutely wonderful news! Enjoy the relief, shower those beautiful babies with love and have a wonderful trip to the UK!
Barb A.
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03-15-2013, 07:57 AM
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#19
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Re: Lump in neck and ultrasound
Wonderful news. Have an amazing time in England. WooHoo!
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes
Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"
Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla
Reconstruction: TRAM flap, partial loss, Revision
The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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03-15-2013, 09:10 AM
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#20
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Senior Member
Join Date: Sep 2011
Location: Mt. Prospect, IL
Posts: 177
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Re: Lump in neck and ultrasound
Double yay!!
__________________
10/01/10 - Dx at age 44. Found lump after miscarrying & was told it was "probably a clogged milk duct" not so much:
stage II - invasive ductal carcinoma ER/PR+ HER2+
10/01/10 - BRCA test - Negative
11/3/10 -2.5cm tumor removed via lumpectomy, clear margins. sentinal node biopsy - nodes clear!
12/2/10 - port placement
12/2/10 to 3/17/11 - 6 rounds of taxotere, carboplatin & herceptin every 3rd week.
04/20/11 - 6/6/11 - 33 rounds of radiation
4/6/11 to 11/2/11 - 11 additional rounds of herceptin every 3rd week
7/15/11 - port removal
7/5/11 started my 5 year journey on Tamoxifen
9/4/11 -1 yr Chest MRI - CLEAN!!!!
9/5/12 -2 yr Chest MRI - CLEAN!!!!
8/29/12 - Started spotting after being in chemopause 1.5 years. Ultra sound detected 6cm ovary mass & very thick lining. YIKES! Taken off Tamoxifen
9/6/12 - Full abdominal hysterectomy. Pathology report came back clean... thank you baby Jesus!!
9/28/12 - Started Anastrozole
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