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Old 05-23-2010, 09:24 AM   #41
AlaskaAngel
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Location: Alaska
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Re: Bad news, no longuer NED

FOB your intuition, your intelligence, and your determination have been your strengths in the past and I'm glad you continue to make the most of them. As you can see, we are listening. Keep moving forward.

As ever,

A.A.
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Old 05-23-2010, 03:39 PM   #42
fullofbeans
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Re: Bad news, no longuer NED

Thank you all and tha AAngel, Bonnie I agree with you but all was needed was to check an ultrasound!(and biop..) not a operation so that is not comparable. I would not have had it removed just to see what it was but an simple ultrasound..every oncologist in the world should have given one to someone in my case! or not be an oncologist you don't help people by wishful thinking and not check them (I am not telling having an operation..)
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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Old 05-23-2010, 04:11 PM   #43
BonnieR
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Re: Bad news, no longuer NED

FOB, I understand. Guess I was making a feeble attempt to make sense of their actions. When, in fact, all of us here know there often isn't any rhyme nor reason...and it just reinforces the need to constantly advocate for ourselves.
Keep the faith.
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 05-24-2010, 07:16 AM   #44
schoolteacher
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Re: Bad news, no longuer NED

FOB,

Thinking about you today. Hope to hear from you soon.

Amelia
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