 |
08-10-2007, 06:39 AM
|
#1
|
|
Senior Member
Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
|
1 year since diagonsis/ what a journey
Today is exactly 1 year from the day that I was diagnosed. I remember that I was calling the doctors office about four times a day for days wanting the results. The nurse kept on making excuses for the doctor but finally did tell me that the results were sitting on his desk and did not know why he had not called me yet. (he apologized for not calling me earlier, but admitted that he had a hard time calling me because he was so upset) Then I finally got the phone call. I was at the post office when my cell phone rang. When he told me, I ran out to my car screaming. My husband was waiting for me in the car. I remember that I was shaking so bad. I did not know anything yet, just that I had breast cancer. I did no know that day what a journey I would be put on. Every day after that was a big suprise.
It was a couple of months after that when I found this great board and you all. What a journey this has been so far. I have grown, learned a lot about myself, cried so much and also learned to keep my chin up. I am still very scared about what is to come but will fight this journey all the way. THANKS AGAIN FOR ALL YOUR SUPPORT THIS PAST YEAR.
__________________
Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009
|
|
|
|
08-10-2007, 07:18 AM
|
#2
|
|
Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
|
Congratulations Laurie! What a wonderful anniversary. I remember wondering initially if I would be here a year later and all of that. I don't know what I would have done without this Board. I, too, gained so much knowledge and felt comforted by all of the support from this board. I also don't know what I would have done without the internet. I knew before I met with the oncologist that I would have Adrimyacin, etc. Knowledge gives me power not to be "overwhelmed." If I have an idea of something before a consult I feel so much better and better able to absorb whatever the discussion is because of not feeling overwhelmed! We are so fortunate.
|
|
|
|
|
08-10-2007, 08:26 AM
|
#3
|
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
Laurie
Congratulations on the first year...life does get better...that initial shock I remember well....after 7 benign breast biopsies, I never in the world expected to hear the words breast cancer.....it has been a journey, but the women and men on this board have made it so much easier....we get more love knowledge and understanding here than we could ever expect....we all have a bond, that time or miles or struggles will not bend...I am thankful for each and every person here, and the ones that have gone...each has enriched my life.
1 year down.....decades to go!!!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
|
|
08-10-2007, 08:28 AM
|
#4
|
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
Hi Laurie,
Thanks for sharing your story. You are right - it surely is "quite a journey." A journey we wouldn't have picked for ourselves (of that I am quite sure) but a journey that many of us will say has changed us for the better. We have met many, many wonderful people (in the cyber world and in person) we have learned to truly appreciate and enjoy life and we have been strengthened and have grown in ways none of us could have imagined.
Honestly, I feel blessed AND like you Laurie am afraid many days as well as our futures are "unsure" at best, but hey.............................aren't they all? I guess ALL of us our "terminal" as far as that goes. Right?
Congratulations Laurie on your one year "cancerversary" (I just learned that word in here  ) I am happy for you and pray the Lord's Peace and Love to hold you close forever.
Love from a "sister" on the journey,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
|
|
08-10-2007, 10:25 AM
|
#5
|
|
Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
|
Laurie, you little ray of sunshine, congratulations on hitting this milestone. As Sheila says, one year down, decades to go!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
|
|
|
|
|
08-10-2007, 12:15 PM
|
#6
|
|
Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
|
Laurie
Congratulations on one year. I just passed that anniversary myself. It is a
wonderful anniversary to have and I wish you a long lifetime of them.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
|
|
|
|
|
08-10-2007, 06:22 PM
|
#7
|
|
Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
|
Congratulations! I wish I'd found this site a lot sooner than I did. You are very lucky to have found it early.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
|
|
|
|
|
08-12-2007, 01:16 PM
|
#8
|
|
Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
|
Laurie,
Congratulations! What a difference from a year ago. We learn so much
the first year....sending you big hugs....enjoy...
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
|
|
|
|
|
08-12-2007, 07:19 PM
|
#9
|
|
Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
|
Laurie,
Congratulations on your one year milestone! I am so thankful to have found this site, too.
Hugs and Prayers,
Lexi
|
|
|
|
|
08-12-2007, 09:20 PM
|
#10
|
|
Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
|
Laurie,
Congratulations on your first year anniversary -- first of many.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
|
|
|
|
|
08-13-2007, 07:04 AM
|
#11
|
|
Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
|
Gave Me Chills Laurie
Congratulations on your first year Cancerversary!!! September 7, 2007 will be one year for hubby and by living one day at a time...here we are. I am so happy to hear that it is one year for you today. I will honor you in my mind all day. Keep the faith and do not forget to keep the chin up.
Keep Believing!!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 11:26 PM.
|
Linear Mode
