PROGRESSION: lung +++ ?brain mets -> Palliative Care

[madubois63]

Sweetie - I am living proof that miracles do happen, BUT you have to help things along. You have a lot of work to do. It is good that you are honest with yourself and preparing for the worst, but you have 2 of the most important reasons to fight this stupid horrible disease. I agree with RB that you need to change your diet and add complimentary supplements to your diet. Talk to your doctor about speaking to a nutritionist. Most cancer centers/hospitals have them on staff. I don't know if you've know what has been happening to me, so I'll give you a rundown. 8 1/2 years ago I was diagnosed with stage IV Inflammatory bc (not a very good prognosis), but I beat it and had 4 years of remission. It then came back to my lung, liver and far side nodes (even worse prognosis). I beat it again, but then I got acute myeloid leukemia (worse than worse prognosis). I had an unrelated bone marrow transplant and lots of transfusions. My liver rejected the transplant and I was given 3 months to live. I did treatment with horse serum and survived. Then new spots of bc were discovered on my lung again. I started Herceptin and a few other things again and now I have a PET on Thursday to see if the bc is gone. Then I went jaundice again. I had a HUGE iron overload in my liver from having over 70 blood transfusions. I now get phlebotomy weekly (they take blood). I was told it would take over a year to fix the iron/liver problem. Besides the traditional treatments, I use complimentary treatments and have reduced the iron in my liver by half in just 2 months - docs are amazed. I changed my diet and have added supplements that include herbs and lots of green tea, do physical therapy 3 times a week, meditate, do reiki (sometimes), get massages as often as possible and have as much fun as possible. I tell you all this because I want you to see that there is no reason why you can't live to see those little guys grow up!! My kids (not so young anymore - 17 and 19) are my happy place and my reason for taking whatever life dishes out. If you would like to talk, send me a private message and I'll give you my number or call you. You need to clear your head, BREATH and get to work. Please do not let this set back get the best of you!!! Those babies need you...