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Old 10-22-2014, 05:46 PM   #1
Gift
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Join Date: Jan 2011
Location: Bangkok, Thailand
Posts: 31
Re: Stage IV Survivors out there?

Dear StephN,

Wow, you have been through and win, such an inspiring story.
btw can anyone with stage IV off the treatment, when could that be?

Sending big regards from Thailand
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dx July 2010 with ER 80% PR - Her2 +++, 7 cm tumor
3 rounds AC (stop after round 3 since the tumor didn't shrink)
3 rounds Herceptin until tumor gets smaller to 4 cm
Lumpectomy on 12 Dec 2010
TCH x 4 (6 are planned but low WBC), 35 hits Radiation, and one year Herceptin
Jan 2014: met to bladder and then liver and lungs
Jan 2014: Operation to remove 3 cm. tumor from bladder
May 2014: started Taxotexe & Tratuzumap (either Herceptin or Herculis, being a part of Mylan research)
Oct 2014, 3: finished 8 cycles of Taxotere & Tratuzumap
Oct 2014, 24: only Tratuzumap every 3 weeks
Jul 2015: progress in bladder - operation and keep on Tratuzumap
Dec 2015: progress in bladder still & met to ovaries
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Old 10-22-2014, 07:42 PM   #2
annettchen
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Join Date: Mar 2014
Posts: 95
Re: Stage IV Survivors out there?

Hello Gift,

I hope one day to get to where Steph already is... ;-) I only just got started on this journey, but am so far doing well (re-staging on Friday, so we'll see what that will bring).

In the meantime, since you asked about treatments: Like you, I also got 6 x Taxotere and Herceptin, but in addition to that also got Pertuzumab (Perjeta). Since I have bone mets, I also got Xgeva every four weeks.

Currently (since July) I'm on only Herceptin and Perjeta, and my oncologist would like to reduce the frequency of Xgeva - will discuss next week.

And yes, there are many long term survivors in this forum - mamacze comes to mind, as do Adriana Magnus and Bunty. I recently heard from a woman my age that has been on Herceptin only for 4 years - no progression! I also think that some long term survivors that are NED for a considerable time may not come to the forum any more, or very rarely - they are out there living their life!

Hang in there, one day this will be a manageable, even curable disease!
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Annette
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03/2014: Diagnosed with ER/PR-, HER2+++ MBC (bone mets, oligometastatic)
04/2014: Started 6 cycles of "PHD" (Perjeta, Herceptin, Docetaxol)
07/2014: Finished 6 cycles of PHD; restaging; 2 bone mets are sclerotic - looks like Herceptin and Perjeta is working
10/2014: STABLE!
01/2015: STABLE!
04/2015: STABLE!
08/2015: STABLE!
12/2015: BRAIN METS. BODY STABLE.
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