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TDM-1 news
I have received my first dose last week, Thursday. Yeah!! I have been feeling so much more at peace ever since.
Initially I did not have any side effects. But my platelets have crashed (grade 3 toxicity) so I was unable to do the angioplasty procedure planned yesterday that could potentially help with my puffed up face (planned for next Wednesday so ok about that) they want my platelet to naturally come back up. I have also felt tired but it is hard to tell after all the heparin tribulation/randomisation if I was simply mentally exhausted. I also have had headache. But he ho it will pass.
I am having more problem breathing now tho that I did last week and new pain spot in the lungs (on the back) . I know that my lungs is full of tumours more than 20 with some over 5cm.. but I am hoping that the pain is perhaps it is a good sign as oppose to just things progressing fast. They are perhaps squealing right??
I have started 2 weeks ago a super healthy delicious veg raw food diet (+fish) and I feel better for it, much better. I think the miso I use daily now helped with my oetrogen level too (I am ER- but on menopause). I even got myself a dehydrator: going serious again with it! and enjoying it. I have experienced with it in the past initially when diagnosed.
I will have my first scan in 6 weeks but until then I am feeing quite at peace and continue planning for the summer and getting into my gardening.
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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