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Old 08-16-2007, 08:37 PM   #21
Jean
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Dear Chelee,
I am so very sorry to read your post. I understand your loss, my mother
passed 7 yrs ago and my heart still aches. I miss her so very much. She
is with me in spirit and forever remains in my heart.

Please know I am here for you and I send you prayers and hugs.

Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 08-16-2007, 08:40 PM   #22
Leslie's sister
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I'm Sorry

These wonderful ladies have sad it all. Just know that I am sorry as well Chelee. May our wonderful God, lift you up into His comforting arms and carry you in this time of grief.
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Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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Old 08-17-2007, 05:10 AM   #23
tousled1
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Chelee,

My deepest sympathy to you in your mother's passing. I know how difficult it is to lose a parent but remember she is no longer in pain and suffering. She is now at peace and is looking over you. You will always have her memory and be thankful that you got to say goodbye. Remember all the good times you shared together. Sending you a big cyber hug!
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 08-17-2007, 06:28 AM   #24
charlotte
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you are not alone

chelee: you are not alone or lost we are here for you.... I feel your grief through your posting... I pray you will find peace and comfort...hugs and prayers being sent to you... charlotte
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Old 08-17-2007, 06:32 AM   #25
charlotte
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chelee: you are not alone... we are here for you....sending you a cyber hug....charlotte
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Old 08-17-2007, 07:50 AM   #26
mke
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I am so sorry. Especially as this comes on top of all else you have endured.
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Old 08-17-2007, 07:51 AM   #27
Vi Schorpp
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So Sorry

for the loss of your mother. I have not lost my mother yet, but I did lose my husband last year. My daughter's birthday was Wednesday (she turned 28) and she was just out of sorts. I knew she was missing her dad as we were talking about previous birthdays. That night, she had a dream about him. I won't go into all the details, but to sum it up, she ran to the hospital to visit him and he was lying on the floor in the room's bathroom. She rubbed his arm and his eyes opened and he said, "Erika, I'm so happy to see you." He then bounded into bed and she crawled up next to him to snuggle. She was upset that once she woke up he was gone, but I think it was birthday message just for her.
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Old 08-17-2007, 08:01 AM   #28
Gerri
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Dear Chelee,

I am so sorry to hear about the loss of your mother. The fact that you went to see her the night before her passing must give you such comfort. You have such wonderful memories to sustain you in your grief. Losing a parent is so hard, I have lost both of mine - my mom to bc when I was 12 yrs old - so I can relate to your grief.

You are in my prayers.
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Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
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Old 08-17-2007, 08:27 AM   #29
Sheila
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Chelee
I am so sorry to hear about your Mom....my Mom is a year older than yours, and she is also my spirit for this fight...you are in my thoughts and prayers that you will gain strength from your Mother's fighting spirit, to continue your own fight...she is now but a prayer away, watching over you. Sending you much healing love and a hug at this difficult time.
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 08-17-2007, 09:48 AM   #30
Believe51
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Angry My Dear Sweet Chelee

I as so sorry to hear about your Mother's passing, I am all choked up with tears and sorrow for you and the family. I know getting alone without someone we love, especially our parents must be the hardest thing one can go through. My parents are still married and here but my father has ailing health. I push away thoughts from time to time about what will I do without my husband?? I cannot phathom it!! I have lost people I love and grieved before but I feel so helpless hearing your voice.

We will always be here for you Chelee, I know we are not Mom but I am sure we can help you through this. I really wish I could give you a hug, for you as well as for me!! Do not be afraid to ask for help with this one Darling, ask your doctor for help, ask your family, ask us; if you need help just ask for whatever you need to help you cope with this matter. Looks like your plate is full from here.

We love you and I shall continue sending prayers for your family and yourself. Keeping you close to heart to see you through.>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 08-17-2007, 12:20 PM   #31
lu ann
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I'm so sorry about the loss of your mother. My own mother lost her 13 year battle with cancer 25 years ago. It's never easy. Love, Lu Ann.
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Old 08-17-2007, 01:02 PM   #32
Marlys
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Dear Chelee,
I am so sorry to hear about your loss. I want you to cherish your memories of her and know that she will always be with you in spirit. My mother died nearly 60 years ago when I was 9. Sometime I feel sorry for myself because I can't remember her very well and that I did not get to know her as a person and not just as "mother". I would give anything for that experience which you were so lucky to have.
Love and hugs,
Marlys
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Old 08-17-2007, 01:07 PM   #33
Brenda_D
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Chelee, I lost my Mom last Sept., after a 9 month ordeal. Not from cancer, but from several difficult things going on all at once, that culminated in her passing.
Two months after her passing, I found a lump in my breast, and found out I had StageIV IDC.

Sometimes, it seems that life gives you more than you can stand, but with family, friends, and prayer, we pull through.

I had to look at it this way. My Mom could never have stood to see one of her kids pass before she did. Sometimes I think that it's better that she passed on before I found out I had BC, and before my nephew (her grandson) was found dead at the age of 37. She could not have taken those 2 blows.
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Old 08-17-2007, 01:58 PM   #34
VaMoonRise
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Crying with You.

Dear Chelee,

My heart breaks along with yours with hearing this very sad news of your Mother's passing. I know how much pain you are in right in. I am sure that your insides are screaming and you think no one can hear you but yourself. Well, Sweetie I hear you.

I lost my Big Brother in 1986 to a drowning accident. He was my hero, my mentor, my protector, my best friend. I was only 17 years old at the time. I lost my boyfriend in 1989 to a drunk driver, he was on his way to see me when the accident occurred. I lost my Mother to BC in 1995. Lost my step father in 2005 to emphysema. My Mother too was my very best friend. There was nothing that we didn't share or do together. She was so beautiful, loving, nurturing, compassionate,quick witted and feisty as all get out. She loved her children more than life and we all knew it, she spoiled us rotten, always putting us before her self. I was her caregiver along with my step father while she fought this horrible ugly disease and she fought it so bravely, with such dignity and strength. Seeing what she went through back then when treatments were almost worse than the disease it's self is where I gain my strength from to fight this disease. She never complained, never asked why me or allowed herself to get depressed. She truly was a Beautiful Warrior Queen. Whenever I am terrified of something having to do with this disease I only need to think of her and I tell myself if she could go through what she did when fighting this fight and never complain than I can face whatever it is I am facing at that moment and this feeling of inner calm comes over me and I manage to get through another bump in the road. I lost my Father in 2001 to lung cancer. Although we had a turbulent relationship my whole life I was finally able to forgive him for all the pain that he caused my family and me and even asked him to walk me down the aisle on my wedding day as a true sign of my forgiveness because I had told him in the past that he would never walk me down the aisle, that I would have my step father walk me down the aisle. I got to know him as a man an individual the year before he died and I am so grateful for that time we had together. I worry about my Big Sister who I love so dearly, we have lost so much over the years already and I don't want her to lose yet another and the last member of her immediate biological family. It rips my heart out to even think about it. I know that isn't going to happen for a very long time though because I truly believe that the Greatest Physician in the world, Jesus Christ is healing me.

I know that there isn't much anyone can say to you right now that is truly comforting or that will lessen your pain but please know that we are all here for you and that if we could take away any part of the pain and loss you are feeling that we would do it in a heart beat. We are all cyber hugging you right now and praying for you. As you are thinking about your Mom and all of the wonderful memories you have of her, try to picture her as the beautiful Guardian Angel that she is now. Completely free of pain, filled only with peace, overwhelming joy and love, basking in the warmth of our Lord's omniessence and loving embrace. Reunited with loved ones who have gone before her and looking down upon you with loving eyes and a smile on her face because she knows what a beautiful child she raised and that her child is strong enough to get through this and will one day soon be able to think of all the memories you shared and once again will be able to smile because you are so strong and grateful that she was your Mother and for the time you had together and because you know that her suffering is over and that she has nothing but happiness now in her new life with our Lord and Saviour.

May time heal your heart, memories soothe and comfort your soul and the Lord bless you and yours.

Love, Warm Hugs & God Bless, Sweetie,
Nicola
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March 18, 2004, Age 36
Diagnosed: High Grade DCIS, Microcalcifications, Solid and Comedo type, Nuclear grade 3 with 1mm margins, ER+, PR+, Stage "0"
3-8-04 Left breast lumpectomy.
4-1-04 thru 6-24-04 Adjuvant XRT.
11-29-05 Gallbladder attack.
12-01-05 Surgery to have gallbladder removed, discovered cancer spread throughout liver in both lobes, HER2+ amplified by FISH and interestingly enough negative for ER and PR.
12-9-05 Clinical trial consisting of Tykerb, Taxol and Herceptin along with Zometa once a month. On clinical trial for 15 months before liver mets started progressing. Started on Navelbine 3-9-07. Navelbine failed, switched to Gemzar July 07. MRI of the brain on July 7, 07. Results revealed multiple brain tumors. Taken off of Gemzar immediately and began 15 rounds of WBR which I completed on July 26, 07. CT scan on 7-26-07 significant progression in the liver mets. I am now getting ready to start on Xeloda along with Herceptin and Zometa once a month.

Last edited by VaMoonRise; 08-17-2007 at 02:10 PM.. Reason: spell check
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Old 08-17-2007, 02:15 PM   #35
VaMoonRise
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Brenda,

Sending you lots of hugs too Sweetie. Your Mom raised a beautiful loving and oh so strong daughter. I know she is smiling down upon you and looking after you everyday.

Love,
Nicola
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March 18, 2004, Age 36
Diagnosed: High Grade DCIS, Microcalcifications, Solid and Comedo type, Nuclear grade 3 with 1mm margins, ER+, PR+, Stage "0"
3-8-04 Left breast lumpectomy.
4-1-04 thru 6-24-04 Adjuvant XRT.
11-29-05 Gallbladder attack.
12-01-05 Surgery to have gallbladder removed, discovered cancer spread throughout liver in both lobes, HER2+ amplified by FISH and interestingly enough negative for ER and PR.
12-9-05 Clinical trial consisting of Tykerb, Taxol and Herceptin along with Zometa once a month. On clinical trial for 15 months before liver mets started progressing. Started on Navelbine 3-9-07. Navelbine failed, switched to Gemzar July 07. MRI of the brain on July 7, 07. Results revealed multiple brain tumors. Taken off of Gemzar immediately and began 15 rounds of WBR which I completed on July 26, 07. CT scan on 7-26-07 significant progression in the liver mets. I am now getting ready to start on Xeloda along with Herceptin and Zometa once a month.
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Old 08-17-2007, 04:24 PM   #36
StillHere
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Chelee, I too understand the loss of a mother. It has to be one of the most painfull things we have to endure. I know for about the first 2 years I always thought about how my mother would of enjoyed this or that outing or holiday, but trust me it does get easier with time. Still to this day, eight years after her death, I always try to wear her ring, or a piece of her clothing at family events. It may sound silly, but wearing something of hers helps me feel she is there joining the celebration. My hope is that she had excellent palative care. If anyone else needs help getting end of life help for their loved ones. Please contact: www.compassionandchoices.org, or call 800-247-7421 for free confidential client support. Just ask to speak to a Client Support Counselor. I am a strong supporter of hospice and end of life choices. My heart goes out to you, because it does not matter how old your are when you lose a parent, the pain is still hard to bare. Peace be with you and your family. Karen
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04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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Old 08-17-2007, 04:28 PM   #37
tricia keegan
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Unhappy

Chelee I'm really sorry and saddened to hear your about your Mother and will be keeping you in my thoughts and prayers.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 08-17-2007, 04:29 PM   #38
Lolly
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Dear Chelee,
I really feel for you. I lost my mother last year, and yes, it hurts deeply. When I feel sad about my mom, I try to remember all the good times we had, and how much she loved us kids, and that helps. Try planting something in her memory, that also helps.
Many hugs, Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 08-17-2007, 04:49 PM   #39
dhealey
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Cherlee, My heart goes out to you. I lost my mother after an eight year battle with breast cancer in l997. She was my best friend. Not a day goes by that I don't think of her now as I am fighting my own battle. Keep your happy memories of her close to your heart and may god wrap his loving arms around you to comfort you.
Debbie in North Carolina
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 08-17-2007, 05:12 PM   #40
Kim in CA
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Dear Chelee,

I am so sorry to hear of your loss. It is so hard to say goodbye. Just know she will always be with you. My dad died 28 years ago, and sometimes I can still feel his presence. It has always been a comfort to me.

Much Love, Kim
__________________
Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.


5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.

9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .

11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!

7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!

June -Dec 2004 UW Vaccine Trial.

7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.

Brain MRI @3 months NED!

2006-2011 brain/body still NED

8/04/11 Taking Herceptin break, will monitor with tumor markers.

6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.

7/23/12 CA15-3 now 49.3
Her2 Serum 26.8

8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49

11/7/12 Add weekly Taxotere for 4 cycles

2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.

November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!

Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara

Jan 2016 Begin Kadcyla

March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla

November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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