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09-27-2008, 01:25 PM
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#1
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Guest
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Living Proof ~ Movie about Dr. who helped develop Herceptin!
On October 18, 2008 Lifetime will air docudrama Living Proof. Script is based on the nonfiction best seller Her-2, which chronicles Dr. Dennis Slamon's fight for new breast cancer drug Hercepitn. Also, Her-2 and Herceptin was mentioned in an article in TIME mag. Sept.15. 2008. When I mention Her-2 or Herceptin most people look at me and say you have what, or what is herceptin? This even happens when you go to the doc. with something unrelated to cancer. Maybe word will get out and we won't have to explain ourselves as much!
Age 44, Married, 3 Children
Found mass in right breast June 2007. (Wasn't there the day before!)
Dia. August. 2007, Node Pos.
4 rounds TAC
Weekly Herceptin
Bilaterial Mastomy Dec. 11,2007, nodes clean, micro spot cancer found in breast tissue.
Weekly Herceptin one year Jan. 2009
Taxol and 35 Radiation treatments
Tried monthly Herceptin to many side effects back to weekly
Took off 6 weeks Herceptin
Back on Herceptin longer infustion time hoping side effects won't get as bad!
Praying to God I will get better every day!
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09-27-2008, 02:00 PM
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#2
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Welcome and thanks for the info. We are all excited about the TV program on breast cancer Oct. 1 at 10 pm on PBS. The one you mentioned here sounds great. I'll be sure to watch it.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
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Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
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1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
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7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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09-27-2008, 08:06 PM
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#3
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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I am very excited to see the movie, more so since Stephanie and I got to meet the great Dr. Slamon this past spring (thanks to Joe and Christine). I love Harry Connick Jr., but meeting him could not have been any better than meeting the real doctor. I was totally floored (as I know Stephanie was too). To me, this was just short of meeting God. I thanked and hugged him and he thanked us. I just couldn't fathom that he was thanking us. I was in tears. It was definitely one of the most important moments of my life. Thanks for the reminder...and welcome!!!
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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09-27-2008, 09:17 PM
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#4
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Shoot, YES!
Yes, Maryann -
that was a pretty special moment - hearing Dr. Slamon give his talk and then lining up with all the other researchers and folks to get a personal handshake or hug (he was only hugging US as I recall).
Having met him before, I never cease to be amazed at the new material he presents or the dedication he has to our cause.
I will never forget Joe and his crack about referring to us as The Slamon Girls (a takeoff on Obama Girls)! We all laughed and it took the edge off the moment in anticipation of a personal moment with the good doctor.
He even bypassed a couple of other people when he saw Christine as he had to hurry away. WE were given his time instead of others. Guess he like to remind himself that there IS "living proof!"
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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09-28-2008, 07:19 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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that's great news!
thanks for the post
sarah
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09-28-2008, 11:33 AM
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#6
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Me Too! Me Too!!
ME TOO! I am so excited about the upcoming movie(s) -- PBS and Lifetime. Thanks for the heads up. I wasn't sure of the dates or channels.
I ALSO HAD THE ELATION OF MEETING DENNY SLAMON. In the doc's office. We hugged (with me standing on kitten heels on the step leading to the examination table). As I stood (all 5'2" of me to his 6' 4"??? I swear we were kind of nose to nose!
And yes, he was as ecstatic to meet one of his SUCCESSES as I was to meet MY HERO. I thanked him for saving my life. I rattled off that I had lived to see my 2nd dghtr married and to greet 5 grandchildren (having none when dx). We giggled and chatted. You are what all my research and work are all about, he said. Then he turned and give credit to Dr. Mark Pegram who was standing in the room with me and DH Paul.
I was like ELVIS WAS IN THE BUILDING! Paul and I were on such a high for our encounter for at least the rest of the day. I felt electrified.
All of us who benefited from Slamon's remarkable accomplishments can never have adequate words to thank him!
Andi 
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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