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08-11-2009, 11:30 AM
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#1
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Senior Member
Join Date: May 2006
Posts: 3,142
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Do We Need a Nutrition Forum?
Hi Joe and Christine,
I sometimes find myself discussing nutrition with the other members of this board. I think nutrition is extremely important in cancer care. I wonder if the majority of our members would like to see a nutrition forum where we could share and discuss what we are doing to help our bodies stay strong during treatments and beyond. If the majority of the members would like to see a nutrition forum would it be possible to add one?
Thank you for considering my request.
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08-11-2009, 12:44 PM
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#2
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Do We Need a Nutrition Forum?
Elaine, I think that's a great idea! I know I've changed how I eat since my dx...and I'm always looking for other ways to make improvements. It would be nice to have a forum just for nutrition...wonderful idea. I'm all for it.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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08-11-2009, 03:50 PM
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#3
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: Do We Need a Nutrition Forum?
Elaine, that's a great idea! Often nutritional tips and discussions are here and there throughout all of the other threads/forums. I bet you thought of this while laying in your hammock eating peaches and yogurt.
__________________
For Nicola
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08-11-2009, 06:32 PM
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#4
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Do We Need a Nutrition Forum?
Totally love the idea! I vote "yes, YES!"
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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08-11-2009, 06:51 PM
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#5
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: Do We Need a Nutrition Forum?
I second that....or would that be third it, or fourth it....oh well.....I vote YES too.
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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08-11-2009, 07:14 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: Do We Need a Nutrition Forum?
THis sounds great!!! nutrition, supplements, yay
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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08-12-2009, 02:37 AM
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#7
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Do We Need a Nutrition Forum?
Hi
I love the idea as well.It would be great to be able to share research and other ideas that may work!
Ellie
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08-12-2009, 05:23 AM
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#8
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Re: Do We Need a Nutrition Forum?
I think that is a WONDERFUL idea...which reminds me...
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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08-12-2009, 07:04 AM
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#9
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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Re: Do We Need a Nutrition Forum?
Absolutely, we need a nutrition forum. Nutrition can either make or break us during our diagnosis, treatment and other neoadjuvent care. There is so much info out there to share, discuss, and study together. Great idea. Vote me in!
Vickie
__________________
Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
Last edited by vickie h; 08-13-2009 at 09:54 AM..
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08-12-2009, 12:15 PM
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#10
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Senior Member
Join Date: Jul 2008
Location: Durham NC
Posts: 73
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Re: Do We Need a Nutrition Forum?
You have my vote!
__________________
4/06 Found small lump, biopsy + at 34 yrs.
5/06 Diagnosed IIIC, lumpectomy, 11/11 nodes HER2+
6/06 port placed. 4 Ad/Cyt and 4 Tax.
11/06 bilateral mastectomy
12/06 begin Rads
1/07 Finished Rad-started H, weekly for one year.
1/08. Finished H, scan showed activity in nodes, Doc says 'not to worry about it' and sends me on my way.
7/08 Scan shows numerous involvement in armpit, also large active nodes in supr. clav.
Doctor refused to give me HER2 meds.
8/08 fired doctor, found another. Started Tykerb/Xeloda. After one round, nodes are shrunk and normal sized!
12/08 NED continue Ty/X
3/09, 6/09, 9/09, 11/09, all scans show NED
Dropping X, continue Tykerb
As of 6/10, 3/11 still negative, continuing Tykerb...
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08-12-2009, 04:02 PM
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#11
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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Re: Do We Need a Nutrition Forum?
I am obviously all in favour.
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08-12-2009, 09:09 PM
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#12
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Re: Do We Need a Nutrition Forum?
Elaine,
Exactly! I've been wondering the same thing for a while. I think it'd be a nice place to share recipes...(nutritious or otherwise)!
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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08-13-2009, 03:01 AM
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#13
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Re: Do We Need a Nutrition Forum?
I'm for it - diet and particularly supplements. But how do Joe and Christine feel about it?
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08-13-2009, 04:17 AM
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#14
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Re: Do We Need a Nutrition Forum?
Terrific idea!
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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08-13-2009, 06:00 AM
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#15
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Senior Member
Join Date: Sep 2005
Posts: 208
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Re: Do We Need a Nutrition Forum?
Wonderful idea!
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08-13-2009, 06:09 AM
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#16
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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Re: Do We Need a Nutrition Forum?
I think it's a great idea, as long as it is written in simple language and you don't need a degree to understand what you're reading. Recently, my brain doesn't seem to be functioning as it should and I start to read a post or article and end up giving up. Maybe it's old age....who knows? But, anyway, I love the idea, I need all the help that I can get.
Hugs
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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08-13-2009, 06:45 AM
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#17
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Senior Member
Join Date: Jun 2008
Posts: 67
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Re: Do We Need a Nutrition Forum?
Great Idea!!!!
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08-13-2009, 09:24 AM
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#18
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Senior Member
Join Date: Aug 2007
Location: Stayton, Oregon
Posts: 69
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Re: Do We Need a Nutrition Forum?
Yes! Yes! Yes!
__________________
Dx 7-21-05
1.7 cm invasive ductal carcinoma
Her2 +3 strongly positive
micromet in sentinel node
Sept.05 Lt.lumpectomy/bilat.reduction
Oct.05 4 rounds of AC/12 rounds of Taxol with Herceptin
Radiation 5 weeks
Herceptin only until Jan.07
Started Femara-stopped
Started Aromisin-stopped
Currently on Arimidex with a great deal of pain
Stopped Arimidex
Taking Tamoxifen
Karen
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08-13-2009, 02:03 PM
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#19
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Senior Member
Join Date: Aug 2008
Posts: 73
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Re: Do We Need a Nutrition Forum?
I think it's a very good idea indeed! I'm very much interested in food for health and want to trade ideas!
__________________
Maouno
Called after a reindeer.
July 2008 after 12 years second time BC.
Other side, new case, lumpectomy 8 aug 2008: 1 cm, no nodes. Postmeno. Er+Pr-Her2+++
Oncotest high risk, Muga 51, port placed Dec. 2008, chemo CMF started 18 nov during 6 months , 6 rounds of two treatments. Finished rads April 2009, started Herceptin late: 10 Sept 2009. Muga 63.
Finished herceptin 5 sept 2010.Port taken out 19 oct 2010!!
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08-13-2009, 02:12 PM
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#20
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Senior Member
Join Date: Aug 2008
Posts: 73
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Re: Do We Need a Nutrition Forum?
I meant exchange ideas.
__________________
Maouno
Called after a reindeer.
July 2008 after 12 years second time BC.
Other side, new case, lumpectomy 8 aug 2008: 1 cm, no nodes. Postmeno. Er+Pr-Her2+++
Oncotest high risk, Muga 51, port placed Dec. 2008, chemo CMF started 18 nov during 6 months , 6 rounds of two treatments. Finished rads April 2009, started Herceptin late: 10 Sept 2009. Muga 63.
Finished herceptin 5 sept 2010.Port taken out 19 oct 2010!!
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