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Interesting Article on IBC from Tuft's Medical Center
To All:
I just received an IBC journel article from Sue Asci with Worcester IBC support, done by Tufts New England Medical Center on IBC. Several doctors
have been working on this the past couple of years. I attended the support
back then and have been waiting to share this with everyone. Dr. Kim asked us many questions on how we were diagnosed, symtoms, and what treatments were used on us and also how far out as a survivor we were. I didn't realize at the time how instense this journel would be. I hope it helps some of you and don't be overwhelmed if you don't understand it all as I didn't but felt I should share it with you all. Thanks to Joe for doing this attachment as it was too large for me to do. Sandy
http://www.her2support.org/ibctufts.pdf
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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