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MET devastation & desperate for advice
As the title indicates our recent status change has been devastating news. Our initial diagnosis of stage 3 breast cancer was in July 2013. The chemo regimen with Herceptin, Adriamycin, Cytoxin & Perjeta began subsequently to the diagnosis. Double mascectomy in December 2013. Last Herceptin in Sept 2014. First the ct scan. Negative. Relief. Then the brain scan was next. Four confirmed small lesions (under 13 mm) that loom very large in our life. A second scan 11 days later confirmed the original four lesions and suggested a possible fifth lesion (higher contrast used).
Two weeks later she had 2 consecutive days of LINIAC Rad surgery. Another brain scan will be done by mid January 2015. Fingers crossed.
So now we begin our desperate search for trial vaccines in the San Francisco area and throughout the western US.
Unfortunately too many of you have had the same or similar experience We are open to any and all suggestions the HER2 family may have for us.
Best wishes to all and thanks.
Forher (husband of )
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June 2013 DX Stage 3 Idc, rt breast, er/pr-, her2+++
PET/CT/Brain MRI clear
ACTHP until Dec 2013
BMX Dec 2013
28 Rads Feb 2014
Exchange surgery June 2014
Herceptin end Sept 2014
Headaches start Oct 2014
CT body clear Nov 2014
Brain MRI 4 lesions Nov 2014
SRS via LINAC in Dec 2014
Rt side infection, hospitalized, lost right implant on Jan 1, 2015
Jan 14 2015 MRI brain lesions shrinking
Jan 27 2015 Re-start herceptin every 3 weeks
Feb 2015 CT/PET Body clear
Re-start Lymphedema treatment April 2015
Breast MRI clear April 2015
Brain MRI April 2015 - shows everything stable, nothing new (whew)
CT scan June 2015 - clear
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