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Old 12-04-2011, 05:20 PM   #1
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kiwigirl's Avatar
Join Date: Jan 2010
Location: Matakana which is one hour north of Auckland, New Zealand.
Posts: 89
Talking Christmas is early for me....Update from Jacqui

Hi All

I thought i would update you all on my progress. In August I was taking my family on a holiday to Hawaii I had a scan to get a clearance to fly. The scan was not good. Two new brain mets and the others had started to grow, I also had a substantial amount of edema.

I started Tykerb and xeloda which is not funded here and cost $2300 every two weeks but i had to try as i was running out of options.

Anyway last week i had an MRI they phoned my onc straight away and said what have you been giving this women. A large number of mest GONE GONE GONE, no new ones and the three remain mets have shrunk by 50% they are now 17mm , 6mm,and 8mm. WOW!!!!!

My edema has almost gone to. I had been feeling much better and now i know why. I've had all the side effects from my meds but i don't care with such great results i just have to look after my self.

My Onc seems to think the WBR has weakened the blood brain barrier allowing med to get through.

So with my fantastic news i feel like its merry Xmas to me.There is always hope and I'm striving to become NED!

Thank you all for your support you have given me with great advice.

Lots of Love to All
And a very Merry Christmas
Oct 2009 Masectomy 6 cm Tumor . Sentinal node biopsy , Node Positive . Her2 + er/pr -.
Nov 2009 X3 Taxane and Herceptin, X3 FEC
March 2010 25 Rads
March 2010 continued on Herception untill 16 Dec 2010
May 2010 Ultra Sound .... ALL CLEAR... NED
August 2010 started vaccine trial University of Washington
7th Dec 2010 finished vaccine trial
20th Dec 2010 Port removed
3rd Feb no longer ned brain mets
23r Feb start VMAT radiation
August 2011 two new mets to brain and others starting to grow again !!!!
August start tykerb and xeloda
Dec 1 MRI all small brain mets gone. Largest shrunk by 50% only three small ones to go 17mm,8mm,6mm. Mets on there way out. Yeah
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