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09-20-2008, 04:13 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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cousin at MD Anderson
I have a cousin who is at MD Anderson and has been there for serveral weeks with a bone cancer reoccurance. At this point, his arm as had to be amputated and he is suffering from double pheumonia and not doing well.
If any one has any contacts or tips I can pass on to the family to help with their stay/travel (they all live in Tennessee) please let me know.
Please also keep them in your thoughts and prayers.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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09-20-2008, 07:17 PM
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#2
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Sassy,
I'm sending prayers that your cousin gets the right treatment that he becomes stable.
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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09-21-2008, 11:34 AM
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#3
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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no info for you just thoughts and prayers!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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09-21-2008, 01:37 PM
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#5
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Senior Member
Join Date: Jul 2006
Posts: 59
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Name
Amschwand Sarcoma Cancer Foundation
Address
Amschwand Sarcoma Cancer Foundation
2260 W. Holcombe Blvd., Suite #174
Houston, TX 77030
Phone Number
(832)367-9474
 Program Details
Program Name
Housing - Patient
Description
Provides temporary housing and lodging assistance for cancer patients and their families during treatment. See comments for details.
Comments
The program provides free housing to out of town sarcoma and sometimes other cancer patients (and their families) receiving treatment in the Texas Medical Center. A network of families in the Houston area volunteer their time and homes for these patients and their families.
Program Dates Program Times Mon - Fri9:00 am - 5:00 pm
Program Fees
free
some more options...
Provider Information |
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09-21-2008, 01:38 PM
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#6
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Senior Member
Join Date: Jul 2006
Posts: 59
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Angel House
Address
Angel House
2401 Holcombe
Houston, TX 77021
Phone Number
(713)741-8700
Program Details
Program Name
Low Cost Patient Housing
Description
The American Cancer Society can arrange for free housing for cancer patients & their caregivers who have to travel to Lincoln for treatment. Cancer patient must reside 50 miles or more from treatment center. Two weeks notice required when requesting lodging assistance. We cannot guarantee assistance.
Comments
Rooms consist of 2 twin beds, microwave, small refrigerator, light housekeeping after 1 week, free cable and access to a cafeteria for meals.
Program Dates Program Times Mon - Fri8:00am - 5:00pm
Program Fees
$25 application fee; and $45 a night
Eligibility
must be traveling from outside the Houston Metro Area; must be receiving treatment at the Texas Medical Center.
Insurance Coverage
n/a
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09-22-2008, 07:55 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Thanks for all your help. I'll pass this info along and hope it will be helpful.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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