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Old 11-14-2011, 11:41 PM   #1
Trish
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Join Date: May 2010
Location: Melbourne, Australia
Posts: 434
Re: Honoring Our HER2 Lost

It must be so hard to lose a twin but I'm glad she is living on in your loving memories,
Trish
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5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004
6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006
oopherectomy, Arimedex
12/2006
liver mets largest 9cm
1/2007
Herceptin,
3/2007
Taxol + Herc
1/2008
Herc alone
4/2008
Multiple bone mets,Zometa
7/2008
Herc + Gemcitabine
8/2008
Herc+Navelbine/vinoralbine
10/2008
Herc+Carboplatin+Taxol
12/2008
Tykerb+Xeloda
2/2010
Herceptin + trial drug
5/2010
Herceptin+Tykerb
8/2010
Tykerb+Abraxane
9/2010
Abraxane
12/2010
Abraxane+Tyk+Herc
4/2011
Tyk+Herc+Femara
6/2011
Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011
Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011
Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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Old 11-17-2011, 06:42 PM   #2
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: Honoring Our HER2 Lost

Now we need to add Gina Popp.
Thanks CathyA for following up on one of our dear sisters.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 11-18-2011, 08:14 AM   #3
Debbie L.
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Posts: 463
Re: Honoring Our HER2 Lost

I agree that remembering and honoring listmembers who have died is right, and important. There is so much fear for anyone with a breast cancer diagnosis and I believe that in honoring both the living and the dying, we decrease that fear and increase acceptance. If we hide or make secret that which we fear, the fear doesn't go away -- it festers. In my opinion.

The way it is now, with just a list of names, and that list in an obscure place, seems odd to me. Kind of cold, and not properly honoring the lives these women and men led, and the connections they made with us.

So -- my preference would be a separate forum (on the main page, where we have all the different sub-forums) and each thread would be the name of the person who died. When they die, we could post our immediate tributes and thoughts there under their name, and over time, as they are in our thoughts -- we could add things if we wanted. No one would have to go there, or even notice the forum's existence, if it bothers them. But those of us who find comfort in the remembering would have a place to do that together, with each others' support.

Debbie Laxague

PS: Thinking about it a little more -- although each person's thread would be very personal in the remembrances and such, it might be better not to put there any medical details of their life with cancer. That would prevent newbies in morbid moods from that obsessive looking for others "just like them", to see how they fared.
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