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03-25-2006, 03:04 PM
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#1
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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We Get Around..
Gotta Love It, Here are the latest country stats for our website:
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03-25-2006, 07:40 PM
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#2
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Senior Member
Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
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That's awesome. I would love it if all could email you a picture and you could put more up on the members list
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03-25-2006, 08:16 PM
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#3
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Guest
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Wow, that is wonderful. I have noticed lots of new names lately. Word is getting around. I gave brochures to my oncology department have never seen any displayed so I started asking the patients that I saw getting Herceptin if they knew about this site. They all said, "no" so now I carry them with me and hand them out myself. The feedback I am getting is, "what a nice site and how did you find it?". Sandy
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03-25-2006, 08:18 PM
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#4
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Oops, had to login again. Its me that posted about the brochures. Sandy
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03-25-2006, 08:54 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Sandy,
Where did you get the brochures?
Sassy
________
KHELINDA CAM
Last edited by sassy; 08-22-2011 at 08:44 AM..
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03-26-2006, 06:23 AM
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#6
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Sandy,
I too would like to know where you got the brochures. I'd like to have some to take to my oncologists's office.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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03-26-2006, 06:55 AM
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#7
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Wow....look what you have done...you have helped people all over the world in creating this website!!!!! You and Christine deserve a standing ovation!!!!!!!!!!!!
THANK YOU BOTH!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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03-26-2006, 03:57 PM
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#8
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Sassy and Kate: I got them from Joe and Christine. I am sure they will be happy to send you some to give out. They are nicely done and gives information about this site. So easy to carry and give out. Glad I mentioned it here as I thought everyone knew about them. Hugs, Sandy
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03-26-2006, 05:42 PM
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#9
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Senior Member
Join Date: Dec 2005
Location: Montgomery Co, Pennsylvania
Posts: 110
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Website
I asked my Oncologist last week if they could post the website for other HER2 women in the office. He said all the doctors would have to agree to it. I was to send it to our breast cancer nurse and she would check it and pass info to them. I called her and gave her the website. I'll see them next week for my treatment and find out.
Maggie
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03-26-2006, 07:23 PM
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#10
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Senior Member
Join Date: Mar 2006
Location: New Hampshire
Posts: 33
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Wow
Joe and Christine,
This is amazing!! What a great thing you two have done.
Sue
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