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04-22-2012, 12:09 PM
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#41
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Senior Member
Join Date: Jun 2007
Posts: 216
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Re: Palliative Care
Emelie
I just wanted to send every good wish to you and your family. What a lovely lady you are. I respect and admire you.
Janie
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04-24-2012, 10:20 PM
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#42
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Senior Member
Join Date: Apr 2012
Location: Melbourne, Australia
Posts: 494
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Re: Palliative Care
Dear Emelie,
I also support your decision and admire your courage. All of us will come to the same point eventually, where quality of life is of most importance.
I wish you peace and joy....... Pam
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04-25-2012, 03:02 AM
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#43
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Senior Member
Join Date: May 2010
Posts: 432
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Re: Palliative Care
We also agree with Karen and Jackie.Hema and I wish you all the best
__________________
PBK
huband of Hema
Metstatic Breast Cancer Stage 4
Left breast cauliflower 25x20cm
ossousmetstatis in vertbrae secondaries L4=L5secondary
nodules in both liver lobes secondary
Diagnosed 10th March 2010
ER/PR-ve
Her 2 neu +++
Taxotrne Zylotec started 16th March
Herceptin added 5th April.9th Herceptin over on 20th Sep '10.Started on Tykerb and Xeloda on 22nd Oct2010TYKERB 4 TAB A DAY XELODA 4 TAB A DAY ONE WEEK ON ONE WEEK OFFZoletrust infusion every 4 months.Lesion in Brain 3D CRT Radiation started on 1st Feb'12 for 20 days ,5 days a week for 4 weeks.Devloped a small lump in breast.Xeloda stopped from 11th April '12.On Taxol.After 3 cycles of Taxol Taxol stopped.Back to Xeloda regime from 3rd July
Herceptin started again on 27th Dec 2012.Xeloda stopped Navelbin added on 7th February 2013.Now on Tykerb Herceptin and Navelbin
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04-25-2012, 03:48 PM
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#44
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Senior Member
Join Date: Jun 2011
Location: Iowa
Posts: 231
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Re: Palliative Care
Dearest Emelie,
I thank you for sharing your story and although treatments at the moment seam to have failed you- we know your not giving up hope. I respect your decision & God bless,
Kristin
__________________
[B]Kristin
Aug 2010: diagnosed stage 3b, 4 mo. after birth of son. 29 yrs old and breastfeeding, ER/PR-, Her-2+ started Neoadjuvant therapy: 4x FEC, 10x abraxane & Herceptin
Feb 2011: L mx with recon. Path. showed only DCIS but 4/10+ nodes.
March 2011: 6 wks rads.
Mother passed, lower back pain.
Late May 2011: Bone mets but organs clear; Tykerb, Xeloda, Xgeva. Stopped Herceptin. Implant infected: removed implant.
October 2011: Bone progression; Gemzar and Carboplatin & restarted Herceptin.
Jan 2012: Progression, re-classified as ER+; Tykerb, Herceptin, Zoladex & Femara. Anti-E is working!
May 2012: ovaries out, markers stable but elevated. Cont. Herceptin, Tykerb, Xgeva & Femara.
Dec 2012: aromasin
Jan 2013: faslodex, herceptin, tykerb
Jun: Kadcyla
Aug: Rads to hip, then Perjeta, Herceptin & Taxotere
Nov 2013: Perjeta, Herceptin, Halaven
Early 2014: Affinitor, Aromasin, Perjeta, Herceptin.
June 2014: Estradiol, Perjeta, Herceptin
Aug 14: Tamoxofin, H & P
http://kristin-notdying-blog.blogspot.com/
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05-02-2012, 08:13 PM
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#45
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Senior Member
Join Date: Apr 2012
Location: Ontario, Canada
Posts: 62
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Re: Palliative Care
It has been an emotional experience reading these comments. My husband and I have discussed this issue, and decided that there likely will come a time, when the cost of living becomes too high. I think I would also take this road, as I anticipate Mets, and had a very hard time tolerating chemo. I think there may come a point when I may say "I have had a good life, it's time". My thoughts are with you, Emelie.
__________________
Dx Nov 2010 at age 65 - 3.5 cm invasive ductal, 8 of 15 nodes. ER-,PR-, HER+++. Lumpectomy, chemo, 6 weeks rads, 52 weeks herceptin finished April 2012.
CAT,PET, bone scan, ultrasound and mammogram in Spring 2012 - NED.
Cherishing every day, but realistically "watching my back" (or should I say "front"?
Eating foods thought to fight cancer, exercising every other day,using my garden as my mecca of peace, and loving my supportive husband more than ever.
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05-03-2012, 08:48 AM
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#46
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Senior Member
Join Date: Jul 2006
Posts: 463
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Re: Palliative Care
Emelie and all,
This has been such a great discussion. I'm grateful to you, Emelie -- both for beginning it and then for supporting it with your calm and nonjudgmental responses. At first, I feared we'd ruffle your feathers but your calm assurances reinforced (at least in my mind) that there's a right way of living with breast cancer for each one of us -- and it's also DIFFERENT for each one of us. Kudos to you for doing the hard work to find what's right for you, and also for sharing that with us.
In case you have not seen it, I thought you and others might be interested in an article in the Washington Post, written by a nurse diagnosed with stage IV IBC who chooses less aggressive treatment options. There's another blog about the article that's interesting. I'll include both links.
http://www.washingtonpost.com/nation...BsT_story.html
http://healthaffairs.org/blog/2012/0...overcome-them/
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05-03-2012, 10:23 AM
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#47
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: Palliative Care
Debbie L
Well said. Thanks Emelie
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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05-03-2012, 07:25 PM
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#48
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Senior Member
Join Date: Dec 2006
Posts: 415
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Re: Palliative Care
Emilie~
I've read your post a number of times, but just couldn't come up with the words to respond. Probably because it touched something I'm so fearful about.
I believe, for myself, that to choose to stop treatment is one of the scariest things ever, and believe it would take me more courage to choose to stop treatment than it does to keep searching for the next treatment.
Know how much I honor your courage and wish you only the best~
Keep the faith
Jessica
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