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10-02-2009, 11:01 AM
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#21
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
I am so sorry to read about Ed's suffering and frustration. He wanted to stay at home. He is not happy in the hospital and may not understand why he is there or why you made the decision you made. It may be very hard for him to to accept that he may not beat the cancer. Nobody wants to accept that outcome.
Can the hospital reduce some of the drugs that may or may not be absolutely neccessary and just make him as comfortable as possible? Can you or someone else take some of his favorite things to him in the hospital? If he has some of his favorite things with him he may be more comfortable being in the hospital.
Does the hospital have a pain mangement department?
Maybe they can provide a little massage or a little healing touch for Ed. That might help make him a little more comfortable and relaxed.
Hug to Ed. Hugs to you. I will pray for God to comfort Ed.
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10-02-2009, 11:58 AM
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#22
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Senior Member
Join Date: Oct 2005
Posts: 823
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
Marie please that you and Ed continue to reamin in my prayers.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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10-02-2009, 02:25 PM
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#23
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
Marie,
I'm sitting here trying to think of what to type... This is such a difficult time and I can only offer my prayers for love, support, and release. Take care and (((hugs)).
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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10-02-2009, 02:45 PM
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#24
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
Dear Sweet Marie,
This is the hardest time. When you see him slip away, and yet his body is still here. When you feel he is leaving and you have no choice but to let go. It's not your Mighty Oak talking, it's the drugs and the mets. They have taken over. But somewhere in there, he's still there. Even if he doesn't seem to trust you any longer. He knows your love is endless.
Hugging you and him, and hoping for a peaceful passage.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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10-02-2009, 02:58 PM
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#25
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
Marie,
When you hurt, we hurt. We miss your infectious laugh. But we also know that you have things to do. Please remember that we all love you and care about you very, very much.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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10-02-2009, 03:28 PM
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#26
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Senior Member
Join Date: Jun 2009
Location: Los Angeles, CA
Posts: 309
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
So sorry Marie, may God Bless you and Ed
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED
12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line
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10-02-2009, 04:05 PM
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#27
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
I re-read your post and although this may be superfluous, wanted to say this. Please don't forget to live in the here-and-now. You can work later, and fight this beast called cancer, but right now, you need to be where you are. Not all the time, perhaps, but you will find later that this is part of letting go, of adjusting to a new normal.
I missed out on that when my brother died, because I wasn't there, and it haunted me for years. Even though Ed isn't his old self, he's still here in a way. Give yourself time, hard and heartbreaking as it is. It will help you to live on the way he wants, or wanted, you to.
Warm snuggly hugs for you, sweet girl.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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10-02-2009, 04:31 PM
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#28
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Senior Member
Join Date: Jan 2009
Location: Colorado Springs, CO
Posts: 430
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
<<<HUG>>>
.... as always, you are both in my prayers.
__________________
9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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10-02-2009, 05:08 PM
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#29
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
Sending our love and prayers your way.
__________________
For Nicola
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10-02-2009, 05:46 PM
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#30
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
Marie,
May God continue to hold you and Ed in the palm of his hand, buoyed by the love of all who care for you.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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10-02-2009, 05:51 PM
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#31
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
This, the longest of good-byes, will draw to a close soon. My prayer is for a few, sweet moments of lucidity from Ed for you. Know this, Marie, you have served Ed and all of us valiantly, and we are grateful and proud of you.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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10-02-2009, 06:41 PM
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#32
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Senior Member
Join Date: Sep 2005
Posts: 232
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
I hope you can feel the hugs and love I am sending you right now.
Karen W.
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10-02-2009, 06:43 PM
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#33
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Senior Member
Join Date: Aug 2008
Posts: 327
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
My heart goes out to you and your Mighty Oak.
(((Gentle hugs)))
Dianne
__________________
Three years and 5 months NED
Dx: Aug 2008 right breast IDC with 50% of tumor DCIS, Stage II or IIA, tumor size: 2.1 cm
Grade 3
8/9 Richardson/Bloom test
ER+ weakly positive
Alred Score: 4 (suggesting I would strongly benefit from hormone therapy)
PR-,
HER2 positive +++
No vascular invasion
No lymph nodes involved
Surgery: Sept. 9, 2008 -Modified radical mastectomy, right breast. I chose to have a simple mastectomy on the left. Began Taxotere/Carboplatin/Herceptin November, 2008. Finished T/C March 2009. Finished #16 Herceptin Sept. 09. AI's and Tamoxifen made me sick. Began natural Tamoxifen which is Quercetin, I3C and a combo of other supplements. I am also a DES Daughter. There is now a link between DES exposure in utero and breast cancer!
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10-03-2009, 07:51 AM
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#34
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Senior Member
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
Marie,
Mighty Oak is so fortunate to have you loving him, supporting him every step of the way. Enabling him to be properly cared for in a loving setting is absolutely the right thing. How amazingly strong you are to recognize this and take the proper steps to ensure his safety.
Mighty Oak is preparing to leave us on a wonderous journey, the difficult part for us that remain is that we won't be catching the train together. But, remember, we will ultimately reunite.
I am so pleased that you found such a perfect mission in life with your new position. Marie, it really is a calling. You are so passionate, brilliant and articulate. This cancer had better watch out because there is not another person that can tell the story of this journey better than yourself.
We are honored to have you represent the cancer warriors, as you are a true leader of the troops.
All my love, prayers, gentle hugs, a few tears and of course, that occasional curse word.
Love....Lori
__________________
2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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10-03-2009, 08:22 AM
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#35
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
My love and hugs to you Dear Marie.
Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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10-03-2009, 01:29 PM
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#36
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
Dear Marie,
Thinking of Ed and You - please know I keep both of you in my prayers.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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10-03-2009, 03:38 PM
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#37
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
Dear Marie and Ed..there is nothing to say that hasn't already been said. My prayers are with you both XO Suzan
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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10-03-2009, 05:04 PM
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#38
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
Marie, sweet Marie, unbeatable warrior,
Sending you all my love to both you and Ed, a big hug and my prayers for you through this difficult time.
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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10-04-2009, 03:37 AM
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#39
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Senior Member
Join Date: May 2006
Posts: 157
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Re: ~In-Patient Hospice For Mighty Oak~Letting Go....
Dear Marie and Ed,
I am so sad that Ed's journey is getting closer to an end. I am so sad for what you are going through right now. I am so mad at this disease.
Sending you both my love, and praying for Ed's comfort and peace, and for you to be strong at this difficult time.
A big hug to both of you. God bless you.
Love,
KarlaV.
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