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Old 04-02-2007, 10:34 AM   #1
Angela
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Join Date: Apr 2006
Location: North Carolina
Posts: 45
Question decadron question

They are bringing me down off the decadron. I am down to 1/2 pill every other day. But I am still having what feels like swelling in my neck and the back of my arms and my stomach feels like I am 10 months pregnant. I ate a turkey sandwich and a few potatoe chips for breakfast/lunch today and within 15 minutes my stomach just blew up. If I stuck a needle in my stomach I think I would fly around the room like a deflating ballon. It makes it really hard because the decadron makes me want to eat. Does anyone else have these problems and if you do is there anything that you do to make them feel better? I just want to feel good.
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Hugs and Smiles,
Angela - NC

Dx May 2003 at age 39
Lt mastectomy, no nodes
DCIS, PR- ER- Her+++
4 rounds AC
Recurrence Dec 2006 Rt lung
2/07 - 3 Brain mets - Radiation
3/07 -
Carboplatin and Herceptin
8/07- mets stable. Finished Carboplatin-remain on Herceptin
12/07 - Herceptin only
5/08 - Lung mets grew - tykerb and Navilbene. Reaction to Tykerb -9/08 Herceptin again
12/08 - Lung mets growing - xeloda.
8/09 - Given Zometa for precaution
10/09 - Lung mets back plus new ones. - Put back on Xeloda.
1/10 – Began short-term disability

2/10 –Lung mets growing - Gemzar
9/2010 – Scan show tumors in lungs growing. Put on Ixempra (every 3 weeks). MRI of the brain showed a brain bleed but it had stopped bleeding.


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Old 04-02-2007, 10:44 AM   #2
MichelleMoon
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Join Date: Oct 2006
Location: Chicago
Posts: 36
It stinks!

Hi Angela,

Just 2 weeks ago, I weaned myself off the decadron...alleluhia! Only very bland foods tasted good to me and, yes, my stomach was extended. As long as you're not having symptoms (i.e. headaches, nausea), I would race off the decadron as quickly as you can. Even after 2 weeks, my sense of taste is messed up, but the abdominal pains are gone.

Best of luck! Hang in there!
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Michelle


Stage 2 '99, triple negative, 5 nodes involved
mastectomy, AC + T, rads, '01 TRAM flap
Stage 4 '06, lung mets, ER/PR-, HER2++
07/06 - 11/06: Taxol + Herceptin to 'strong partial remission'
11/06: Herceptin every 3 weeks indefinitely
01/07: brain mets, finished WBR, NED in head!
04/07: Xeloda and Tykerb for lung met progression
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Old 04-02-2007, 02:20 PM   #3
Barbara H.
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Join Date: Sep 2005
Location: Newton, MA
Posts: 951
Hi Angela,
Your weight will come down, but it takes time. Try to eat fruits and salads, and get out and walk if you can.
Best wishes,
Barbara H.
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Old 04-02-2007, 08:56 PM   #4
vickie h
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Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
I ate no meat while on Decadron and it made a huge difference, also no eggs or animal products, just more fruit and vegies and alot of water. Hope that makes a difference for you. Also bread seemed to really bloat me ! Love, Vickie
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Old 04-05-2007, 09:52 PM   #5
rhondat123
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Join Date: Oct 2006
Posts: 13
bloated

hey i am now 5 weeks out of steriods and i now discovered i have thyroid problem being slow and liver enzymes out of sight i still get herceptin but the bloating i have is unbelevable my belly is so tight like it might bust chemo and steroids did a number on me omg i hope thyroid meds will help but i can eat and i cant button pants its awful i feel your pain
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Old 04-05-2007, 10:11 PM   #6
Tricia
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Join Date: Feb 2007
Location: California
Posts: 27
Question

I only take decadron the day before chemo, the day of and the day after. My Dr. says thats all thats needed. But I have noticed I have a lot more bloating and heartburn than I have ever had. I thought it was the herceptin or other chemo doing that to me.....hmmmm maybe its the decadron.
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Tricia Velasquez
Bakersfield, Ca
dx Jan 4 2007
er+/pr- her2 +++ Stage 3b
several tumors
largest 7cm
port placed on Jan 18, 2007
Chemo started Jan 22, 2007
Herceptin/ Taxol every 3d week and then my Dr changed me to Taxotere/Carboplatin/Herceptin
every 3d week
Right Mastectomy w/ Lymph Node Dissection 4/19/07
27 removed 9 positive
Margins-clear but wall to wall
Radiation scheduled for 6/07
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