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Old 07-07-2009, 07:17 PM   #1
Patty F
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Location: Portage, IN
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Port Question

I have been thinking about having my port removed. For any of you ladies out there who have had your port removed....was it removed in the hospital or at the Dr's office? If at the Dr's office was it painful?
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10/15/07: Diagnosed at age 46 lymph node removal (2)
ER/PR - Her2 +++
11/07: Port Installed
11/07 - 1/08: AC
1/30/08: Right Mast Stage lllC
2/28/08: Start Taxol and Herceptin weekly.
5/15/08: Finished Taxol
8/12/08: Finished 33 Rads
1/29/09: Finished Herceptin
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Old 07-07-2009, 08:20 PM   #2
Henny
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Patty'
I had my port removed a couple weeks after finishing herceptin. It was taken out under general anesthesia. I was out of the hospital about an hour or so later (so fast I think the door hit my butt)
Didn't need any pain meds and it felt so much better without it even tho it was a security blanket of sorts.
Congrats for getting to this time

Henny
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Dx 3/07 IDC and DCIS Her2+ ER- PR-
Stage IIb 1/15 nodes
A/C, Taxol, Herceptin
Bilateral mastectomies with recon
Zometa 2/yr for 3 yrs- finished 8/2011
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Old 07-07-2009, 09:33 PM   #3
CindyE
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I had my arm port taken out at my surgeon's doctors office. I was given a few shots of a type of local numbing like novocaine. I had a lot of scar tissue formed and it didn't want to come out. The doctor finally got it out it but he had to dig quite a bit to get it out. It didn't hurt then but later it was very sore, bruised, and swollen. It hurt for about a week and I took Tylenol to help with the discomfort. I was glad to have the port out and feel as though I'm done now with all the big guns of treatment. As I was just stage 1, my doctors all recommended to have the port taken out but it's a personal choice depending on all your circumstances.
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L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008

Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!



I am calling this my pink journey
Follow my journey into the pink at my blog here

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Old 07-07-2009, 09:46 PM   #4
pffida
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Port Removal

I just had mine removed two weeks ago, one year after completing Herceptin. The original surgeon who put it in said he would remove it in his office. I moved, so the original surgeon was not convenient. The new surgeon does not remove them in his office but at a surgery center. No complications, no stitches, just steri strips, no pain medication, just Ibuprofen or aspirin. Its still a little swollen.

Hardest part was sleeping because the port was removed from my right side and I have a fractured left wrist with a cast. Since you probably don't have that complication, I say go for it!
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Diagnosed 11/06; IDC
Stage 1, Grade 2
MRM 12/06; 19 nodes removed, all negative
ER/PR-, HER2+++
  • 4 rounds AC - every 3 weeks
  • 3 rounds Taxol + Herceptin - every 3 weeks (developed allergy to Taxol so stopped treatment)
  • Weekly Herceptin after Herceptin-induced cardiomyopathy from treatments every 3 weeks
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Old 07-07-2009, 10:58 PM   #5
Bonnie R
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It was removed in the doctor's office. Not painful. Some sense of her tugging at it, but really, it was okay. I do think I took an Ativan first!
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Old 07-07-2009, 11:00 PM   #6
Bonnie R
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It was removed in the doctor's office. Not painful. Area was numbed first. Some sense of her tugging at it, but really, it was okay. I do think I took an Ativan first!
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Old 07-07-2009, 11:22 PM   #7
Chelee
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Hi Patty, My port was in my upper arm & it was removed in the hospital. They just numbed the area around it & removed it. I could feel him pulling & tugging on it a bit due to some scar tissue that built up...but other then that it wasn't bad at all. Of course a few stitches to close it up & that was it. It was a little sore but it was so minor its hardly worth mentioning. All went well and I was SO glad I had it removed.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 07-08-2009, 11:56 AM   #8
rl2
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had mine out right after finishing herceptin, was put under briefly; it was not painful afterwards, but was left with an indentation at the site which plastic surgeon fixed.
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Old 07-08-2009, 01:34 PM   #9
DanaRT
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Dear Patty, My experience is much like Henny's. An IV sedation of Versed means a quick recovery (for me). The port I had served me well. I asked the surgeon of I could to see the port after it had been removed, but have no memory of it (Versed). Maybe I thought I'd want to put it under my pillow.
Is there a "port fairy"?

Congrats and good-bye to your port.

Love,
Dana
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-Dana-

]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
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Old 07-08-2009, 04:02 PM   #10
Audrey
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I kept my port in for five years (!) after my diagnosis, just didn't want to part with it for some strange reason. When it finally came out in outpatient surgical center, they just used some numbing agent and pulled it out. It was so easy, I wish I had done it sooner. It did leave a scar, though, and the scar always seems to rub against the seatbelt of my car, but all in all, I can't complain. You'll be so relieved to have the port out and done with!
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diagnosed July 2001, at age 36
large tumor, 11+ nodes
Stage IIIb, er/pr-, Her2+
treated with A/C, weekly Taxol
radiation, + year of Herceptin
on clinical trial. double mastectomy
followed by reconstruction
NED!!
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