| Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
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03-05-2008, 08:22 PM
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#1
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Senior Member
Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
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Lauries tiptoe/tex pics
I am having a hard time resizing my pics. Here are two to start
__________________
Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009
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03-05-2008, 08:28 PM
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#2
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Thanks Laurie - cute pictures.
It looks like the cat's tail is attached to Tiptoe.
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PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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03-05-2008, 08:43 PM
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#3
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Senior Member
Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
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more pics. My husband; me with my new brown lymphedema glove; the kids by the fountain at the "mountaineer"
__________________
Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009
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03-05-2008, 09:49 PM
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#4
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Those are awesome pictures! Tip-toe looks so cute in that little sweater.
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03-05-2008, 09:50 PM
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#5
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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I will be attending the AARC meeting in San Diego on April 11th the 16th 9I AM VERY EXCITED), and I was thinking, if Tex and Tiptoe weren't too busy, I'd LOVE to have them join me on my flight from NY to Cali...?? I can take pics and post them with updates at night. Since I will be at the HER2support table for most of the vendor exhibits (I hope I get bathroom breaks Joe), maybe the little guys (as our mascots) can help out?? Please let me know if any pre-existing plans/appointments/vacations or obligations can be rearranged to make this happen??? Thanks...
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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03-05-2008, 09:55 PM
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#6
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Great idea Maryann - taking them to San Diego for the conference. I think it would be fun to take them to the Cure Day of Caring weekend in Denver (May 2-5...). If they aren't spoken for at that time, maybe I could have them visit me again for a couple of days and let other survivors meet them in person at our table there!
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Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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03-05-2008, 10:04 PM
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#7
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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I just read the 2008 schedule update and see that Steph is scheuduled to have them visit her early April. Since she will possibly be my roomie for the conference maybe she can fly them to Cali and I pass them on to me (plus she gets to see them for the extra few days). I'll take pics and do updates each night...they can fly home to Long Island with me and then make I'll send them off to hutchibk who can send them off to Maryanne in Tx (next on the list). I sent a private message to Steph. If this is a problem, I will understand but this will make my first visit to California more special than it already will be!! Plus, the little guys will get to see Joe and Christine and anyone else that might stop by...
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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03-05-2008, 10:36 PM
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#8
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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My Love To Laurie And Maryann...
I am beside myself with glee! Laurie you are awesome. Thanks so much for the updates, the great pics, and sharing your hamster experience w/all of us -- who are out of touch but soooo wanting to be in the loop! I have missed my former house guest, my babe, Tippy. Sorry. I was 2nd on the list, and somehow I feel like a co-parent. I know Pinkie is The Mom, but she has generously allowed me to think Tipsy is also mine. I'm guessing many of us feel that way. Tiptoe just has that charismatic way about her. Makes you feel like you are the most important person in the world!
Maryann what a fabulous idea to let Tip and Tex escort you to the conference. PLUS -- THANK YOU THANK YOU for promising to give us daily updates, pics and all. THAT'S WHAT I'M TALKING ABOUT! Just what I've been dreaming up. Following our mascots travels across the country, and beyond. You're a real sweetheart. But we all knew that. Madame Dubois you rock!
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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03-06-2008, 09:47 AM
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#9
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Madame Dubois,
This sounds great to me. We decided a while back that
the schedule will be changed if necessary.
I just feel bad about you guys having to fly them back
and forth and pay for their flights. I hope you only
have to purchase one seat for them.
You might have to sneak up behind Joe and place Tippy
on his shoulder....I'm not sure if he is a big fan of Tip and
Tex. But I'm sure you will be able to convince him to participate
in at least one photo shoot. I think Joe and Christine need to meet
the kids - they need to see what the rest of us are doing while
they are working so hard for us !!!
 Attachment 367
Hope you guys can work it all out.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
Last edited by PinkGirl; 03-29-2008 at 07:31 AM..
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03-06-2008, 10:03 AM
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#10
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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I just feel bad about you guys having to fly them back
and forth and pay for their flights. I hope you only
have to purchase one seat for them. Joe is paying,,,,so I don't mind!! LOL! You might have to sneak up behind Joe and place Tippy
on his shoulder....I'm not sure if he is a big fan of Tip and
Tex. But I'm sure you will be able to convince him to participate
in at least one photo shoot. I think I can do that...
I think Joe and Christine need to meet the kids - they need to see what the rest of us are doing while they are working so hard for us !!! And they do...
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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