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Old 09-25-2011, 12:38 PM   #1
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
pain in shoulder blade when I breath deep

Is it a common lung mets symptoms..it started today

I am waiting to see if they can get tumours zap them still I am praying that it has not reached the lining..so it can still be done. appointment 5 oct

Can't access tdm1 since already had xeloda

waiting about vinorelbine to see what laser says first so we holding on (did not see my usual onco..not sure it is the right decision). the doc I saw is such a negative idiot he told me that I had many different chemo and that any new chemo (like vino) is unlikely to help..

I just want to keep things stable until they laser ( I hope and pray they can)

thinking of taking tykerb high dose until then, I remember reading about this has anyone had any success with it?

I have registered for the vaccine trial but do not think that without the laser I will be alive when it will be available.

Until then, I have been living and I am looking at the dog puppy I want to buy at the moment and the camper van tour I am planning after this I see my friends and even go dating. Because I decided to either live or die, but none of that middle shit (excuse my French) where you so afraid to die that you are not living..

I am not religious but still I would like you to pray for me please
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama

Last edited by fullofbeans; 09-25-2011 at 12:59 PM..
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