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Rupali,
my onc. basically lets me do what i want!! He knows i research alot and I'm a nurse. I told him long ago that I will do anything and everything!! He did tell me NO to 2 years of Herceptin though. I'm glad he did. I think since Tykerb is oral and there are some trials starting now on early tykerb, he knows that someday Tykerb will be like Tamoxifen. My insurance company first denied it. Then he wrote a letter of necissity and then they paid it. What really helped me was the Tykerbcares program. You can find it on the internet. They helped and did most of the work. They are the ones that got me in touch with the Patient Acess Network Foundation that paid for my copay of 900 dollars a month
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Michele Ulmer
dx: August 2003 stage 3b 35 pos nodes ER/PR neg Her+
4 AC 12 weekly taxol
one year Herceptin in trial
35 rad tx
vaccine trial Seattle
NED
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