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07-17-2006, 08:39 AM
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#1
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Good News
I have been having pain in left hip for several weeks. I reported it to my onc last Thursday who immediately sent me for an X-ray and a bone scan. Initial indications to me were good, but just got the official word--BONE SCAN is clear! X-ray shows a bone spur on "lateral roof of left acetabulum". Something else to deal with, but at least its not mets!
Sassy
________
How To Roll A Blunt
Last edited by sassy; 08-22-2011 at 08:50 AM..
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07-17-2006, 10:43 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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great! always good when it's not bad news!
good luck
sarah
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07-17-2006, 10:45 AM
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#3
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Senior Member
Join Date: Oct 2005
Posts: 115
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good news
great news -i am glad for you
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07-17-2006, 01:24 PM
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#4
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Super news!
Hey Sassy -
I am so glad you reported the pain and got it checked out.
AND that it had nothing to do with cancer! The odd thing is that mets are often NOT painful, at least not in early stage. I have a friend whose arm actually broke due to a met and she did not know she had anything wrong.
Another reason to have periodic scans.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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07-18-2006, 06:10 AM
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#5
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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Congratulations on the bone spurs - How WONDERFUL!!!! LOL - I am so glade it's not met's!!!!!
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07-18-2006, 02:50 PM
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#6
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Senior Member
Join Date: Nov 2005
Posts: 943
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There's nothing more that I like to hear than good news, yes!
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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07-18-2006, 06:57 PM
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#7
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Great news!! It surely must be a relief.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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07-18-2006, 11:01 PM
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#8
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Senior Member
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
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hi sassy - glad to hear you got it checked out. Dr. K is really fast to suggest testing. I found a lump on my chest and he ordered a Pet/CT scan without even seeing me first! thanks for reccomending him - again.... Kim
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07-18-2006, 11:42 PM
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#9
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Hi sassy, That is wonderful news you got. Congratulations. Bone spurs are no fun...but much better then other things I can think of. 
Your post gives me some encouragement...I have had my left hip LITE up on my PET/CT scan, it says there is increased uptake in my left acetabulum. I've had two recommedations to have a MRI done on it. But my onc doc won't do it. I keep bringing it up to her and she says "Ok...we can do that". But I see its still NOT be ordered...and it has me worried. Especially since its lite up twice now on my scans.
I hope my pain turns out to be a bone spur.  That would be a major relief. This is the first time I would be thrilled to have a bone spur...who would of thunk it. lol
I am truly thrilled for you. Its always so nice to get good news.
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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