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Old 01-13-2009, 05:00 PM   #1
Snufi
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chemo 1st time tomorrow

Hi to all, am going to chemo first time tomorrow. Needless to say I am very scared. Say a prayer for me and I will let you know how it goes. I still cant believe this is all happening. does it ever become a reality?


Snufi
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Old 01-13-2009, 05:09 PM   #2
ElaineM
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Wink Chemo 1st time tomorrow

Chemo has a bad rap, but every patient will not get every single side effect listed on print outs of information doctors pass out or on the drug company's website.
Everyone's body is different. Some folks will loose their hair. Some folks will not loose their hair. The same goes for every side effect listed. Your doctor can suggest things to help you for whichever side effect you do get.
If you share the name of the chemo I bet someone on this website has tried it and may be able to share her or his experience with you.
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12 years and counting
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Lucky 13 !! I hope so !!!!!!
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Old 01-13-2009, 05:46 PM   #3
Snufi
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chemo ist time

The chemo I will try is TCH every three weeks
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Old 01-13-2009, 06:09 PM   #4
RhondaH
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Smile Snufi...

you'll do fine. Prayers are with you. Take care and God bless.
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Rhonda

Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 01-13-2009, 06:17 PM   #5
Jean
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The unknown portion is the hardest part of treament.
No matter how much we share our own experience you still will feel concerned, it is only normal.

I think I would be more afraid of not having treatment, than having treatment. We are all different in how we
consider this disease. Some are upset over hair loss,
others about weight gain, the list is long....but at the end of the day I feel this way....my hair will grow back, I could have gained weight by pigging out and eating too much even without having chemo, I will lose the ten pds or so since I make up my mind to do so. I would rather have no hair, be a bit heavier and survive.

If you pick apart each and every item that can happen
you will get yourself so upset with it. Rather view treatment as a "I will deal with it on a one to one issue as they come"....some side effects will hit and some will not, and maybe you will go through the treatments smoothly....but know that your dr.and his team are there to take care of you...don't hesitate to ask questions.

Drink fluids on treatment day and be sure to flush your system. Wishig you the best.

Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 01-13-2009, 06:31 PM   #6
Melissa
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Hi,
Yes drink plenty of water and if possible get lots of rest. Allow others to help , they wouldn't ask if they didn't want to help. I will have you in my thoughts tomorrow, let us know how it goes. I had AC then TH followed by H and it went by quick. We actually had a chemo party every time someone was finishing up with final treatment.
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Melissa

04/06, (42), 2cm tumor, 7/13 nodes, one positive node under clavicle
mastectomy/reconstruction
grade 3, stage lllb, er-65+, pr-90+, her2+++(80%)
4/AC, 12wks TH then 6wks rads
40 wks herceptin, and tamoxifen.
onc test tamoxifen resistance = poor metabilizer
04/07 ooph & on arimidex
08/07 completed herceptin

04/2022 - 16 year survivor!
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Old 01-13-2009, 07:02 PM   #7
kcherub
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You are going to do great! I did the same treatments, and the steriods were worse for me than the actual chemo! Take water, something to suck on (my oncologist had these great little candies), and if possible, a family member or friend to help you pass the time. They also come in handy in case you get hungry--I was ravenous at each treatment (steroids) and the other patients laughed at how much I ate. I am kind of on the small side.

As for it seeming "real"...I am 16 months out of chemo and I still cannot believe that I did it. It seems sooo long ago. To be such a life-altering experience (I mean, who wants to do chemo???). I made it through, and you will, too.

Let us know how it goes.

Take (good) care,
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Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA

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Old 01-13-2009, 10:14 PM   #8
Paty
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Dear Snufi,

I am sure everything will be alright, I do not blame you that you feel scare, it is soo normal. I remember my doctor will always say "let yourself flow, everything will be fine" and that is the same that I say now to you. It really helped. Drink a lot of juices when you feel like, if you can keep a dairy, do it, that way you will keep track of your reactions. I will pray for you my dear, nothing will happen, try to rest and keep in touch with your doctor for any question or doubt. Do not hesitate to come to us we will be here for you. All our love,

Paty
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Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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Old 01-13-2009, 10:34 PM   #9
BonnieR
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Snufi, it will be good to get tomorrow behind you. The first day is always the hardest. Trust the process. Remember to be prepared for a long day. Bring diversions. Books etc... The journal idea someone suggested is good. I have been keeping one since this all began...
I recall even sleeping alot the first day of chemo because the premeds in the infusion make you sleepy. It will be cold. Dress warm and comfortable. Bring snacks. My cancer center served sandwiches. Stay hydrated.
Let us know how it goes. Keep the faith.
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 01-13-2009, 11:49 PM   #10
harrie
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Hi Snufi!
We will be thinking of you.
I had the same regimen that you will on. After my first treatment I hardly felt a thing, much to my surprise!!
The above recommendations are good..to dress warm and drink a lot to flush out your body. I drank a whole lot during my treatment and was dragging that IV pole to the bathroom at least once per hour! I think I drank like 6 bottles of water!!
The first tx was long because they give it to you much slower to make sure you are tolerating it ok.
Take care and know you are making a good decision to just go for it...
Maryanne
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 01-14-2009, 07:01 AM   #11
Mary Jo
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Hi Snufi......

I know....it's like it's all surreal, right? I remember that day well and it was way back in 2005. I, too, was scared out of my mind. This is the girl who takes no drugs.....nada....and to think they would be infusing my body with chemo.....well, that just went over the top to me. Honestly, I fought it every step of the way....always hoping chemo would not be a reality (now looking back........and knowing what I know.....thank God it was a part of my past) but Snufi....the good news is......it all went well. It wasn't nearly as bad as I had anticipated and I pray the same for you.

Asking God to surround you with His peace today.

Love to you....

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 01-14-2009, 07:23 AM   #12
Paris
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The first round is the hardest just because you don't know what to expect or how you are going to feel. Yes, it does seem surreal at times. I'm two years out and there are days where I can't believe I had cancer and went through chemo, surgery etc. because fortunately that chapter of my life is getting further away. You will feel this way too one day. Every treatment will bring you that much closer to the finish line. Use this as a time to be good to yourself. Rest when you need it and accept any and all offers of help. The ladies have given you great advice. Please let us know how you are doing. It's tough but you will get through this!

Hugs,

Jamie
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Diagnosed 11/06 IDC left breast Stage 1, High Grade w/extensive High Grade DCIS. Right breast extensive hyperplasia w/calcifications.
ER-/PR- HER2+++
Bi-lateral masectomy 12/15/06 w/expanders
SNB Node Negative
Chemo Taxotere, Cytoxan 2/07-4/07
Herceptin Started 5/07
Exchange surgery 6/15/07
Herceptin stopped after 12 rounds due to herceptin induced cardiomyopathy
On heart meds 'til?
Age 40 at diagnosis
Cancer may have been a defining moment but it does not define me!
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Old 01-14-2009, 08:08 AM   #13
nitewind
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Hi Snufi,
Just wanted to send my best wishes and prayers to you. You will do fine. I think we all remember that first treatment, fear of the unknown is the worst. But in the end, it wasn't as bad as you think. God bless you and post with an update.
Love
Susan
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Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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Old 01-14-2009, 09:24 AM   #14
flynny
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Snufi,

I know you will do great. You will be amazed at yourself and like everyone above has said, drink, drink, and drink more water to flush your system. If you get sick of plain water, try some with lemon or a cucumber.

I'm thinking of you today and wish you the best in the beginning of your treatment.
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-Sarah-

Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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Old 01-14-2009, 09:39 AM   #15
Shobha
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Hi Snufi,

Sending a lot of prayers and positive vibes your way!

Like everyone here is saying, you really will do fine.

The oncologiest have learnt how to manage the side effects very well. I had my first chemo in july 2007 and it was easier compared to what I had imagined. The only issue I had is the benedryl since it made me sleepy and sort of groggy. I would drive myself to chemo and back, so benedryl was a pain. I stopped taking it after a couple of treatments and after that chemo was much easier.

love,
shobha
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DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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Old 01-14-2009, 11:39 AM   #16
rebecca0623
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Snufi - I just finished the "TC" part of my treatment December 17th. I had few side effects until last 2 - then just very tired. One thing I treasured about the chemo was the women who joined me in the chemo room every Wednesday - we truly went through this together and they are now close friends. Do not be afraid to reach out - the support you will find is invaluable. Prayers for you on your journey,

Rebecca
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Dx June 2008, Age 44
Mother Dx age 54, deceased
1.2 cm tumor right breast, grade 3, ER 4+; PR 3+
HER2 +, invasive ductal carcinoma
Quadrantectomy right on 7/30/08
Path report, all 3 nodes taken were clear!!!!!!
Lymphatic/vascular invasion and sent out BRCA testing
Port in on 9/2/08. Chemo began 9/3/08. TCH (MUGA wrong - echocardiogram says 65% cardiac MRI 59% 9/10/98 elevated liver enzymes, PET scan 9/16/08 all clear.
TC ended 12/17/08
Port blood clot and hosp. 1/2/09
radiation begins 1/8/09


BRCA testing done - results NEGATIVE!

cardiologist said go back to coreg as it helps counteract heart effects of herceptin and slowly increase dosage - now 40mg daily.
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Old 01-14-2009, 06:43 PM   #17
suzan w
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I don't know if any of this ever becomes a 'reality'! Chemo will go quickly, you will see! And take all the anti-nausea drugs they recommend!!
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 01-14-2009, 11:38 PM   #18
harrie
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Hey Snufi....we are waiting to hear how you did!!
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 01-15-2009, 05:32 AM   #19
schoolteacher
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Snufi,

Hope you are doing well.

Amelia
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Old 01-15-2009, 09:00 AM   #20
MJo
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Snufi - you aren't a chemo virgin any more. God bless and I hope you are handling chemo ok. MJO
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MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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