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01-21-2008, 12:03 PM
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#41
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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I have a very close friend who is 3 yrs past diagnosis and she was around 31 yrs old at the time. Triple negative. She is also very active with a young women and cancer coalition. She is also BRCA1 positive. If anyone is interested, I can give you more information and you can contact her. She's a wonderful person.
Harrie
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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01-21-2008, 01:26 PM
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#42
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Senior Member
Join Date: Nov 2007
Location: Brentwood, CA
Posts: 76
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ER/PR percentages
Becky,
I'm actually not sure off hand and I am traveling now so I can't look at my path report. I initally thought I was highly Er/Pr positive but when I consulted with Slamon he told me I was moderate to low Er positive and low Pr positive. I'll try to give you a better answer when I return from traveling next week.
Janelle
__________________
Janelle
Diagnosed October 2006 at age 37 wtih grade 3 IDC and high grade DCIS
Stage 1c triple positive, no node involvement but
vascular invasion
multifocal disease
Lumpectomy November, 2006
A/C every 3 weeks (started Jan., 2007 and finished March 2007); followed weekly Taxol (finished June 2007) concurrent with Herceptin (finished March 2008);
Bilateral Mast with immediate recon in Sept 2007; finished recon Dec. 2007
Started 5 years of tamoxifen Nov. 2007; started peptide vaccine clinical trial at MD Anderson October 2008 and finished active part of trial in April 2009 (monthly injections of AE37 peptitde (HLA type specific) with GM-CSF or GM-CSF alone depending on if I was in experimental or control group); started Zometa infusions June 25, 2009- 4mg every 6 months for 3 years (taking it "off-label" to try to prevent mets)
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02-23-2008, 06:11 PM
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#43
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Member
Join Date: Jul 2007
Location: New Hampshire
Posts: 11
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Thanks for this thread!
37 at time of dx (37 seems a bit too popular here  ) On birth control pills from age 17 to 30 then went off them for my 1st pregnancy at age 30. 2nd child at age 34.
__________________
DX at age 37 on 5/24/05 Left breast IDC and DCIS, high-grade
modified radical skin-sparing mastectomy 7/11/05 with re-con TRAM flap.
tumor size 3.5 cm
HER2 To CEP-17 Ratio = 6.76 positive ER positive
A & C infusions Aug. - Oct. 2005
Taxol & Herceptin infusions Oct. - Dec. 2005
6 weeks radiation completed March 2006
Continued on Herceptin every 3 weeks until 10/24/06
re-occurence left side supraclavicular nodes Jan. 2007
HKI-272 phase 2 Trial Jan. - July 2007 (supra nodes shrunk for awhile)
Enlarged node in chest wall near windpipe.
started Tykerb/Xeloda 8/22/07 (on for 2 months - not working - 3 new liver mets).
11/07 Neupogen(G-CSF)/Herceptin/Navelbine Trial 11/07
2/8/08 Catscan shows 1 of 3 liver mets went from 9 to 24mm.
2/29/08 Phase II trial of Ertumaxomab.
4/10/08 Catscan shows progression on liver mets and 2 new liver mets.
4/11/08 Started Taxotere/Herceptin.
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08-05-2010, 05:06 AM
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#44
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Senior Member
Join Date: Jul 2010
Posts: 120
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Re: under 40 when dx?
Two children in my mid 20s. Yes, birth control for many years. Stats in signature.
__________________
6/14/2010 - Self discovered Lump; Age 39
6/24/2010 - Biopsy results confirm breast cancer
Right breast, invasive ductal adenocarcinoma
HER2neu positive, BRAC I & II negative
7/8/2010 - Lumpectomy right breast, sentinel lymph node biopsy, & port-a-cath installed on left
Stage II, Size 3.2cm, Clear Nodes, Clear Margins
8/19/2010 - Chemo begins - Taxotere, Carboplatin, Herceptin & Tykerb all simulanteously; ALTTO trial arm 4
9/9/2010 - Chemo dose #2
9/30/2010 - Chemo dose#3
10/21/2010 - Chemo dose#4
11/11/2010 - Chemo dose#5
12/02/1010 - Chemo dose #6 - WooHoo, it is complete!
12/14/2010 - Simulation & Planning session for radiation
02/18/2011 - Completed radiation treatment (33 rounds)
08/04/2011 - Completed Herceptin & Tykerb
09/30/2013 - ultrasound guided biopsy (following annual MRI)
10/1/2013 - new cancer in left breast. 6mm discovered via MRI
10/28/2013 - bilateral mastectomy - no reconstruction
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08-05-2010, 05:50 AM
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#45
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Senior Member
Join Date: Mar 2010
Location: Mechanicsburg, OH
Posts: 109
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Re: under 40 when dx?
Turned 40 month before dx. Birth control pill on and off for 15 years, child at 23.
__________________
~Anna
DX April 2009 age 40
IDC Triple Positive
7 of 14 nodes positive
Lumpectomy May 2009
Port May 2009
AC done in Sept 2009
T done Dec. 2009
Herceptin (should finish Oct. 2010)
Mastectomy January 2010
Radiaition x 33 done April 2010
Tamoxafin for five years
Herceptin done!
Still clear May 2011
3 years out May 2012, all good!
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08-07-2010, 08:55 PM
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#46
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Senior Member
Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
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Re: under 40 when dx?
I was 34. I had my first child at 27 and my second at 29. Nursed my first for 7 months and my second for 11 months. Family history mother was dx at 54 (breast surgeon and others said that had no bearing on my dx and that I would have had my first mammo at 40... if I hadn't found the lump myself). I was dx 4 yrs (should have been 3) after she was.
__________________
-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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08-08-2010, 10:10 PM
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#47
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Senior Member
Join Date: Apr 2007
Posts: 292
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Re: under 40 when dx?
34--three years out.
Edited because some of our sweet friends on this thread are no longer with us. 
__________________
Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA
Last edited by kcherub; 08-08-2010 at 10:14 PM..
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08-09-2010, 01:30 PM
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#48
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Member
Join Date: Jul 2010
Location: Bradenton, Fl
Posts: 8
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Re: under 40 when dx?
I was 36 when dx. see signature for other details
__________________
Age 36
Diagnosised- Dec 23, 2009 IDC
tumor size 2.1 ER+, PR+, HER2+++. Grade 3 Stage 2, Node negative.
Jan 14th, 2010- Bilaterial Mast.,
Feb 2010 began Chemo( Taxoter, Charboplatin/Herceptin)
June 1st, 2010 Finished Chemo
June 12th 2010 began Herceptin every 3 weeks for a year and tamoxifin daily
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08-17-2010, 08:18 PM
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#49
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Senior Member
Join Date: Dec 2009
Posts: 56
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Re: under 40 when dx?
Age 38 and breastfeeding my 3rd child at the time (she was 6 months old.) I was taking fenugreek at time of diagnosis to increase milk supply because baby was a poor sucker. I still wonder if the fenugreek had anything to do with it.
__________________
Diagnosed 7/09 with 7mm IDC ER weakly +, PR -, Her2+
TCH chemo 8/09-12/09
Ooph/hysterectomy 4/10
Started Femara 6/10
Completed year of herceptin 10/11
Zometa 1/11 (2X/yr for 2yrs)
Hopefully nothing else!!!!
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08-22-2010, 01:07 PM
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#50
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Senior Member
Join Date: Aug 2009
Location: Owasso, OK
Posts: 185
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Re: under 40 when dx?
I was diagnosed at 39, three months before I turned 40. I had my first child at 31 and my second at 33. No family history, but was on birth control for about 15 years. Rest of the stats below.
__________________
Hayley
Oklahoma
3/35/2009 - Diagnosed, age 39
5/7/09 - Mastectomy and reconstruction started. Two tumors found. Tumors were side by side. DCIS tumor was 2.8 cm, ER-, PR-, grade 2. Invasive tumor was 1.1 cm, poorly differentiated, grade 3, ER+90%, PR+95%, HER2+3. Thankfully, no node involvement.
5/29/09 - Second surgery resulting from difficulty healing from mastectomy.
6/2/09 - Began Herceptin treatments
6/23/09 - Began Taxotere and Carboplatin treatments along with Herception every 3 weeks.
10/06/09 - Completed Taxotere and Carboplatin - Yeah!!!
10/27/2009 - Herceptin maintenance and began Femara
12/10/2009 - 2nd stage reconstruction surgery
2/2010 - Body rejected saline implant
3/18/2010 - Second stage reconstruction using silicone implant
5/4/10 - Completed Herceptin - YEE-HAA!
May '10 - Body rejects silicone implant...taking a break.
11/29/10 - Hysterectomy
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08-22-2010, 07:47 PM
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#51
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Senior Member
Join Date: Mar 2010
Location: Missouri
Posts: 28
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Re: under 40 when dx?
Just turned 39 one month prior to having symptoms. No family history + BRAC 1 and 2 negative.
__________________
Yvonne
Nov 09 - Grade 3 IDC + Grade 3 DCIS, ER/PR-, HER2+++, KI-67 91%; BRAC 1 and 2 negative
Dec 09 - Mastectomy LB, 2.4 cm, 1/27 nodes, Stage IIB
Jan 10 - Taxotere/Carboplatin/Herceptin (TCH) for 18 weeks (1X every 3 weeks); Herceptin every week for 18 weeks then every 3 weeks 'til week 51
Apr 10 - Blood transfusion to increase red blood cells
Apr 10 - Change regimen to Taxotere/Cisplatin/Herceptin
May 10 - Chemo done!
Jul 10 - Brain MRI normal
Dec 10 - PET scan NED
Dec 30 10 - Last Herceptin
Feb 11 - Port removed
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08-23-2010, 12:58 AM
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#52
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Member
Join Date: Sep 2009
Posts: 8
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Re: under 40 when dx?
39 at dx, super fit and healthy, discovered lump in shower. multifocal IDC, 2cm & 1.5cm, Triple Pos, 2 pos nodes.
I had kids in my 20's, breastfed for 12 months each. Never smoked, occational drink with special dinner, no risk factors except I'm femeale - mother 72 has never had a mammogram as she didn't think she was at risk of BC!
__________________
Dx Feb 09 Multifocal 2.1cm 1.5cm IDC
2/10 Nodes,Triple positve ER 40%, PR 20% ACx4 Taxol x 12, Herceptin, Arimidex
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09-02-2010, 11:24 AM
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#53
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Member
Join Date: Jun 2009
Location: Hixson, TN
Posts: 12
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Re: under 40 when dx?
I was diagnosed at age 39.
__________________
Diagnosed 3/13/2009 from FNA, 39 years old.
4/09 lumpectomy with SNB, did not obtain clear margins.
5/09 - BMX with full axillary dissection on right side.
Final pathology report: 4cm+ high grade DCIS tumor with micro-invasive idc, 2/32 lymph nodes, ER/PR-, Her2+++, Stage IIa
7/09 - started TCH, finished 10/09
11/09 - 9 more months of Herceptin, finished 7/10
Reconstruction scheduled for Jan 2011
Expander placement completed - January 2011
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09-02-2010, 01:24 PM
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#54
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: under 40 when dx?
So you just turned 40 this year! Good to see you. Love your picture!
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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09-02-2010, 01:34 PM
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#55
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Member
Join Date: Jun 2009
Location: Hixson, TN
Posts: 12
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Re: under 40 when dx?
I was diagnosed March 2009, so I am now 41. I guess I should update that picture. I have a full head of hair now.
__________________
Diagnosed 3/13/2009 from FNA, 39 years old.
4/09 lumpectomy with SNB, did not obtain clear margins.
5/09 - BMX with full axillary dissection on right side.
Final pathology report: 4cm+ high grade DCIS tumor with micro-invasive idc, 2/32 lymph nodes, ER/PR-, Her2+++, Stage IIa
7/09 - started TCH, finished 10/09
11/09 - 9 more months of Herceptin, finished 7/10
Reconstruction scheduled for Jan 2011
Expander placement completed - January 2011
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09-03-2010, 07:13 PM
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#56
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Senior Member
Join Date: Apr 2006
Location: North Carolina
Posts: 45
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Re: under 40 when dx?
Dx at age 39. Info in signature.
__________________
Hugs and Smiles,
Angela - NC
Dx May 2003 at age 39
Lt mastectomy, no nodes
DCIS, PR- ER- Her+++
4 rounds AC
Recurrence Dec 2006 Rt lung
2/07 - 3 Brain mets - Radiation
3/07 - Carboplatin and Herceptin
8/07- mets stable. Finished Carboplatin-remain on Herceptin
12/07 - Herceptin only
5/08 - Lung mets grew - tykerb and Navilbene. Reaction to Tykerb -9/08 Herceptin again
12/08 - Lung mets growing - xeloda.
8/09 - Given Zometa for precaution
10/09 - Lung mets back plus new ones. - Put back on Xeloda.
1/10 – Began short-term disability
2/10 –Lung mets growing - Gemzar
9/2010 – Scan show tumors in lungs growing. Put on Ixempra (every 3 weeks). MRI of the brain showed a brain bleed but it had stopped bleeding.
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