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Old 02-15-2009, 04:47 PM   #1
jones7676
Senior Member
 
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
Hello and Update

Here I am in Chicago...at this point enjoying spending some hours with the kids and trying to still "cover" everything. I was going to try and sign in and communicate, but as it turns out they are working on installing lighting and fixtures etc and the electricity has been off and on. Sorry, there are many members that I just wanted to post a "good luck" etc.

I am working on some other options still and will send the more detailed history to the person who requested it too for help.

I did see at Northwestern 2 possible clinical trials for me , but you never know. I also have two doctors at Marqette General who have friends at other more cutting prorams who will check immediately into what is open.

Tomorrow morning, I am calling them from here and requesting they start on it immediately, just in case. Neither was at work last Friday when I called and I'm a bit leary of leaving messages at thier office to call here as I've experienced communication problems recently.

Anyway, thanks for reading and keeping up with me and my updates as things happen, I know you are all busy and there are many of us. I just can't find the words to tell you how much it means.
__________________
Barb

10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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