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12-18-2006, 05:01 AM
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#41
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Hi Mel,
I just wanted to let you know that you and Lisa are continually in my thoughts. Her words of wisdom and willingness to share on this board brought me so much hope at times when I didn't have it. I'm so sorry that you are now at this stage and I still hope for a miracle.
Best wishes,
Barbara H.
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12-18-2006, 06:19 AM
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#42
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Senior Member
Join Date: Oct 2005
Location: Minneapolis, MN
Posts: 189
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Mel,
My prayers are with you and your family. Lisa has been such a light to us all. She is always positive, always caring and so very wise. May the God of peace bring you comfort during this difficult trial.
__________________
Cheryl
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12-18-2006, 07:58 AM
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#43
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Dear Mel,
My heart is broken to hear your news. I will continue to pray for a miracle
please know that I will light a special candle for Lisa.
I am so very sorry,
Jean
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12-18-2006, 09:26 AM
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#44
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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I am so sorry. Bless you for your loving care, and thank God for Hospice. I will light a candle. MJO
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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12-18-2006, 10:05 AM
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#45
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Mel-
I am so sorry - please know Lisa and you and your family are in my prayers.
regards,
Shell
__________________
Shell
init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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12-18-2006, 10:07 AM
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#46
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Senior Member
Join Date: May 2006
Location: California
Posts: 668
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Prayers for Lisa
I'm so sorry to hear about Lisa. My prayers are with you Mel and your family. God Bless.
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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12-18-2006, 12:44 PM
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#47
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Oh Mel, this really tears my heart apart to hear what you both are going through this season which is suppose to be a joyous one! I have never met Lisa in person but she was such a inspiration on this board! She has been in my prayers and will continue to be as well as you. Remember we are all here for you. Thanks for taking time to update us as I know you must be spinning in every direction keeping everyone informed and all the other things that go along at a time like this. May God keep you both close to him and wrap his arms around you both. Sending you both a big cyber hug to help get you through this difficult time. Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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12-18-2006, 01:45 PM
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#48
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Mel and Lisa
May you both feel the love and light Lisa has given to so many of us....it is her turn to receive it from all of us....it saddened me so much to read your post....she has been here forever for me, I will keep you both in my prayers, Lisa for healing and comfort, and you for the strength to endure this time.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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12-18-2006, 04:49 PM
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#49
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Senior Member
Join Date: Dec 2005
Location: Montgomery Co, Pennsylvania
Posts: 110
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Mel, I am so saddened to read this news of Lisa. You have both been a big part of this group and always there to help.
I'm keeping you both in prayer!
Maggie
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12-19-2006, 04:46 PM
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#50
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
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Another angel earns her wings...
Dear Mel,
Lisa, a warrior and a fighter; the light of our lives; rest in peace angel girl
Love and remembering Lisa's wit with great fondness...
Kim from CT
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12-19-2006, 06:26 PM
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#51
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Senior Member
Join Date: Jul 2006
Posts: 146
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Reply to message
Dear Maggie,
I've only been on this site for a few months so don't think I ever saw any of Lisa's messages but still feel so bad for anyone going through what she and her family are experiencing now. Any amount of time to deal with the terrible ordeal of breast cancer is too long. Keep in touch and let me know of your progress. Am still doing chemo every 3 weeks, don't know how much longer it will continue (herceptin/aridia). Best of you during this holiday season.
hugs,
ginkott1@aol.com |
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12-19-2006, 07:35 PM
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#52
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Senior Member
Join Date: Sep 2005
Location: Spokane/Warden, WA
Posts: 67
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To Lisa - with ever so much shared love and light
Once upon a time, you mentioned we should consider a memorial on this web site for the angels that we love and then come to lose. The idea did not gain much traction. Now, we are about to lose you - shouldn't we reconsider a memorial section on the site to honor and remember those we deeply love as a result of their postings on our site? I nominate you to head the line up of appropriate candidates. Remember us: we shall remember YOU!
Dee
Mel - candles are being lit even as I press send.
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12-20-2006, 05:41 AM
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#53
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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I've just read this sad news.
I send love and prayers and the hope that Lisa is not in pain.
hugs and love
sarah
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12-21-2006, 12:48 PM
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#54
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Senior Member
Join Date: Jul 2006
Posts: 146
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Memorials on web site
Dear Dee,
I think it's a great idea but I wouldn't know where to begin to undertake something like this. I know that I've had a lot of problems getting the web site to be 'user friendly' to me and have even gotten locked out of it for several weeks, couldn't get password to work. After the new yr investigate this more and if you need any suggestions maybe I can think of some. Have a good holiday season and I hope this finds you doing well.
hugs,
ginkott1@aol.com |
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