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05-19-2009, 11:49 AM
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#1
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Guest
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Joy is in the hospital
Hi everyone, thank you so much for all of the advice and support for Joy and me. She has taken a turn for the worse. Some of her constipation issues have been resolved but she was still in so much pain and her tummy is so swollen the doctor admitted her to the hospital. They did an xray and it did not show anything. So they are doing at CT later today. The doctor feels it is swelling due to her liver not functioning. Her bilirubin is only 1.3 and everything has stayed just about the same since her last blood draw two weeks ago. She's very worried that this is a sign of the end. I just can't believe that. I have to believe that this chemo could still work and others too. But I am worried about her liver just not being able to handle much more. Any advice again and words of encouragement would be greatly appreciated. I will update you as soon as we know more. Thank you so much! Jennifer
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05-19-2009, 11:54 AM
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#2
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Senior Member
Join Date: May 2006
Posts: 144
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Hi Jennifer,
I am so sorry to hear that Joy is in the hospital. I don't have any advice; I can only offer my prayers and support. That's good news that her levels are about the same. I hope the doctors can figure out what's going on and ease her pain.
take care,
__________________
- Anna
Stage I - DX 9/2005 ER/PR-, HER2+, grade 3, DCIS, IDC multi-focal (1.05cm)
DD 4 A/C finished Jan 31, 2006
Herceptin weekly finished Jan 31, 2007
recurrence to chest wall on last month of Herceptin
Stage 3B - 3/15/07 - 2 carcinomas in dermal lymphatic
Rads finished 6/5/07
12x TH finished 9/10/07
12/07 - Clear scan!
3/08 - 4 month Melatonin trial
1/09 - osteoperosis - start Alendronate
2/09 - 4-month Simivastin trial
3/13 - take drug holiday after 5 years of Alendronate
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05-19-2009, 12:32 PM
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#3
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Thanks for the update. Will continue to pray for Joy. Please take good care of yourself also.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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05-19-2009, 12:42 PM
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#4
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Jennifer I am sorry to hear that Joy is still not well and in the hospital. I have no great advice, except to tell her that we are all praying for her and that she should try to keep some positive energy going. We will send some her way. Hang in there!
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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05-19-2009, 01:08 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
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I am sick to read this latest news on Joy. I feel it is just a bump. She is a fighter and is no where near the end of this road. Good things are ahead for Joy. She deserves nothing but the best.
My prayers are continuing for you Joy!! As well as all of us sisters!!
__________________
dx 5-05 @42 years old
IDC stage IIA
ER+ (100%) ER+ (75%) HER2+
double mastectomy
4DD AC - 16 weekly Taxol
6 months Herceptin - stopped due to MUGA
35 chest wall rads
Tamoxifen
Lat flap with silicone implant reconstruction on left side due to radiation. "Normal" silicone on right. Finished all reconstruction 6-07!!!
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05-19-2009, 01:09 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Sending prayers to...
Joy and you. Take care and God bless.
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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05-19-2009, 01:12 PM
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#7
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Sending my love and prayers to Joy. Know you are loved by all of us .
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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05-19-2009, 01:21 PM
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#8
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Senior Member
Join Date: Feb 2007
Location: Paris, France
Posts: 858
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I am so sorry to read that Joy is in the hospital. I hope the CT scan will reveal what is giving her pain. Sending my love to you both. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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05-19-2009, 01:42 PM
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#9
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Jennifer, my heart sobs hearing she is not feeling well and needed to be hospitalized. Please tell her to be patient with herself as they try to figure out exactly what is happening with her. They will rush to get these answers for her as quickly as possible and it is okay for you to make sure that they are. Your job is to 'not' feel like an overbearing caregiver and mediate the entire process of investigating. Of course this is easy to say and very trying to accomplish.
Joy has every right to feel all of these emotions but we need her to stay strong. The best place to be to expedite these happenings is to be in the hospital, which is an awful place to be when one is this ill. If you asked my opinion I would say too that this is not the beginning of the end for her. I say this from the heart and with all its heartfelt emotions. We have seen miracles here and I believe that we all could be the next one to receive that gift. She is having complications, Jennifer and I say this without belittling the situation for these are the same shoes for which I stand.
I believe with the information they gather for her will allow her to focus on just what fight to fight. I cry as I write but I still believe that this information is vital to the next choices she makes. I take it that this is belly and liver pain? I ask this because my husband (bone/brain mets) is in the worst pain ever in this journey and only sleeps because he passes out from pain. I am worried about him too.
Let Joy know not to lose faith and hope right now and again this is no easy feat. Let the doctors explore and supply her with the facts. Even when the facts look dim, there is always a shimmer of hope. Tell her Believe51 (Marie) loves her and is keeping her in prayer. I pray for you too, Jennifer, your job as a sister and loving caregiver does not go unnoticed. I am so happy to know that this woman I love is surrounded by all things good. Let her know that I believe and have witnessed miracles and I beg for her to have one of her very own. And Jennifer, let her know I still believe. Please breathe Dearheart, we walk besides you all as you find out exactly where she stands.......and remember that 'shimmer', a shimmer is all we need. She is a fighter and I think now she just needs to know what to fight.
We are here for you too. Let her know we only want her to do her best and this family will do the rest! Lots of love.>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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05-19-2009, 01:45 PM
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#10
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Prayers and best wishes while Joy gets her pain resolved. Please let her know how much we care and that we're praying and sending love. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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05-19-2009, 02:09 PM
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#11
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Oh no. Please let JOy know that we are here praying for her. I do pray that the dr's will have wisdom to treat her.
Dear Jesus, please touch Joy. Heal her body Father and be with her loved ones and give them the comfort that only you can provide. In Jesus name, amen.
Hugs and Prayers,
Lexi
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05-19-2009, 02:38 PM
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#12
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Senior Member
Join Date: Sep 2006
Location: Chicago, IL
Posts: 105
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Please know you are in our thoughts and prayers. God, please bless Joy.
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05-19-2009, 02:44 PM
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#13
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Senior Member
Join Date: Aug 2006
Posts: 3,380
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Jennifer, you are both in my thoughts. All good wishes to Joy from me.
Hopeful
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05-19-2009, 03:12 PM
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#14
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Senior Member
Join Date: Sep 2005
Posts: 556
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Please let Joy know I am worried about her and that she is in my thoughts and prayers.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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05-19-2009, 03:19 PM
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#15
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Please let Joy know that I will be praying for her.
Amelia
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05-19-2009, 03:44 PM
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#16
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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sending prayers and positive thoughts!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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05-19-2009, 03:46 PM
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#17
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Jennifer, I'm sorry I have no advice to give but will be keeping Joy in my thoughts and prayers.
Please tell her we're thinking of her and wishing her the quickest recovery.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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05-19-2009, 04:25 PM
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#18
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Senior Member
Join Date: Oct 2005
Posts: 823
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Jennifer BID MEGA PRAYERS going out Joy during this difficult time. Prayers for you as well and teh family.
I hope they can find out what is causing her pain.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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05-19-2009, 05:25 PM
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#19
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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I'm praying for you both and for the drs that treat her. Please let her know we love her.
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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05-19-2009, 05:30 PM
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#20
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Jennifer,
I am praying for our dear Joy and feel positve that this is something other than cancer. I pray that the doctor's will quickly get to the bottom of this problem and she will be on the path to recovery!
hugs,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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