HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 11-26-2013, 12:39 PM   #1
cienna
Senior Member
 
Join Date: Jan 2012
Posts: 30
Did I miss something on Fob (full of beans)

Hi ladies,

Does anyone have any news on Fob?

Tx
__________________
Mum Diagnosed: 11/11/2011 (Left breast CA)
Age: 59yrs

Lumpectomy done: 23/11/2011 (Tumour 1.2cm, Grade 2, 2 nodes removed. All negative)
Results: ER+, PR+, HER2 +++
Started treatment: RADS on 20/12/2011 (Finished on 02/02/12)
Will be going onto Femara for 5 years and receive once in 3 weeks Herceptin for 1 year.
cienna is offline   Reply With Quote
Old 11-26-2013, 01:19 PM   #2
'lizbeth
Senior Member
 
'lizbeth's Avatar
 
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
Re: Did I miss something on Fob (full of beans)

This is the last post I found back in June:

Quote:
Dear friends,

Well I did not go back home Tuesday and I took my 2nd vinorelbine... which ended up with me in pain after been leaving the hospital few hours after. I had to go to a&e (emergency) and was on morphine shot for 2 days ( stomach trachea I think lost there linnings and bad tumours'pain lung and neck).

After all this the tumours in my neck are actually quite bigger than before the chemo (4 days ago). All I can see on net is not positive about that.

I still cannot eat unless I have an anti sickness machine plugged into me 24hr a day, even drinking has only resumed yesterday. At least pain is under control.
Has anyone else been in touch with FOB?
'lizbeth is offline   Reply With Quote
Old 11-26-2013, 05:30 PM   #3
Bunty
Senior Member
 
Join Date: Jul 2011
Location: Sydney, Australia
Posts: 473
Re: Did I miss something on Fob (full of beans)

I was only thinking of FOB again last night too - I'm feeling uneasy I have to say, but still hopeful she'll pop in again soon with an update.
Marie
Bunty is offline   Reply With Quote
Old 11-26-2013, 06:49 PM   #4
Laurel
Senior Member
 
Laurel's Avatar
 
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
Re: Did I miss something on Fob (full of beans)

I have not heard a thing. Ellie F, any word from across the pond on Beans?
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

Laurel is offline   Reply With Quote
Old 11-27-2013, 04:37 AM   #5
suzan w
Senior Member
 
suzan w's Avatar
 
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
Re: Did I miss something on Fob (full of beans)

Did not hear anything back from my post a few months ago...fearing the worst...
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
suzan w is offline   Reply With Quote
Old 11-27-2013, 06:06 AM   #6
cienna
Senior Member
 
Join Date: Jan 2012
Posts: 30
Re: Did I miss something on Fob (full of beans)

I have posted messages to her and no reply :-(

Hope she is okay. Does anyone have a contact no that they can call and check?
__________________
Mum Diagnosed: 11/11/2011 (Left breast CA)
Age: 59yrs

Lumpectomy done: 23/11/2011 (Tumour 1.2cm, Grade 2, 2 nodes removed. All negative)
Results: ER+, PR+, HER2 +++
Started treatment: RADS on 20/12/2011 (Finished on 02/02/12)
Will be going onto Femara for 5 years and receive once in 3 weeks Herceptin for 1 year.
cienna is offline   Reply With Quote
Old 11-27-2013, 06:42 AM   #7
michka
Senior Member
 
michka's Avatar
 
Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: Did I miss something on Fob (full of beans)

We used to write and support each other a lot. She could write in French sometimes for me. We started TDM1 at the same time and were both in a poor state. It did not work for her and she started to suffer. Her last mail to me was in July. I wrote several times but she did not answer and I know what it means. Here I am crying again. She was too young. I miss her so much. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
michka is offline   Reply With Quote
Old 11-27-2013, 07:57 AM   #8
Ellie F
Senior Member
 
Join Date: Feb 2009
Posts: 1,526
Re: Did I miss something on Fob (full of beans)

Hi all,
I also had emails from FOB but these stopped in the summer. I knew she was weak and having a hard time admitted to hospital. I have had a huge sense of foreboding about her but hope we will hear from her again.
Ellie
Ellie F is offline   Reply With Quote
Old 11-27-2013, 12:28 PM   #9
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Re: Did I miss something on Fob (full of beans)

Thanks for answering everyone.

I also did not get any more response from her. She came to Seattle for the vaccine trial all the way from London. I met her 3 times. She was working hard on her diet to keep her body strong and as free of toxins as possible. Karina has a great mind and her posts showed the level of research she went to in studying how to go about defeating her disease.

She would be here posting if she could, of that I am sure.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 06:51 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter