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Gamma Knife A Success but more brain mets
Things went fairly well with my fifth Gamma Knife treatment on Monday. One area that they thought was necrosis was in fact necrosis so that is good news. They identified another lesion behind some of the necrotic stuff so they ended up zapping three small lesions. They also found five tiny specs that looked suspicious and zapped them anyway since I was in the machine. This is what has me worried now. Why do I keep getting these brain mets and how can we stop them? I'm going to meet with an onc at UCSF soon to get a second opinion and see what clinical trials may be out there. If any of you have any ideas, I'd love to hear them. I absolutely DO NOT want to do WBR at this point. That is my absolute LAST resort. I'd rather try drugs, targeted therapies, immunotherapies, anything else really. So if you've got any ideas -bring em on. I'm stable in the head for now and have time to plan a new strategy. Thank you in advance for all of the support and love. I really gain so much strength from this group and don't know what I'd do without it.
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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