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~Mighty Oak Needs Your Prayers Please~
Asking again for you to surround him with prayers because things look very rough for him. He just got up a while ago and hugged the kitchen counter as he has been doing for some time now. I did not know he was going to pass out as he started putting his hands down like he was going to sit on the floor. I tried to catch him the best I could but he slightly hit his head and banged up his knee pretty bad. I feel guilty about this, I am just sick about it. What the hell was I thinking?? I should be watching out for things like this. I held him as he was out and kept repeating that I love him and it's okay, I love you, I am right here. I felt so helpless sitting on the floor holding him. All the time he was unconscious (2-3 min.) I kept rehearsing in my mind that this is not happening to him.This did not appear to be a seizure but who knows, I will call doctor in the morning.
On another note, tumor markers dropping slightly with the Ixempra. I know it was suggested that this be stopped (DFCI) and a new course begin but we took our chances. We still do not know if this medication passes the BBB. What I do know is that sometimes when there is this much brain met activity, it sometimes deems the BBB dysfunctional and allows medicine to pass. Double edged sword, eh?? We will do brain MRI, bone scan, CATscan and petscan for monitoring, but it will wipe him out.
So he has had 3 Ixempra infusions so far. Next treatment should include Temodar and I want to cut in half the amount of Ixempra. He has lost a total of 100 pounds on this journey and is so frail. I am sorry I cannot provide you with more positive news. I am scared and so is he and I just pray that this is not happening, not now. As I sit here and write, he sits by my side and he is singing Frank Sinatra songs outloud to me. My heart is breaking and smiling at the same time. I love him so much and I am so sad about what is happening to him.>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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