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Old 08-25-2014, 02:32 PM   #1
Cath
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Join Date: Nov 2012
Posts: 67
Arimidex vs Aromasin?

I saw my onc today. I've been having lots of low back, hip,buttock and leg pain. Bone scan 3 months ago showed no sign of bone mets. Did show lots of degenerative changes. Anyway onc decided today to change me from arimidex to aromasin. I am to go off of the arimidex for 2 weeks before starting aromasin to see if my pain lessens. I'm kind of concerned not being on anything for two weeks. Have any of you gone off your aromatase inhibitors for a period of time? Do any of you have lots of pain from these drugs and does switching from one to another help?
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Cathy

Routine mammogram 6-29-11
Ultrasound 7-5-11
Biopsy 7-11-11
Right modified radical mastectomy 7-18-11 with 7 out of 24 lymph nodes positive
Stage IIIC, Grade 3, Estrogen + 100%, HER2 +
Had 5 tumors in right breast, none of which showed up on the mammogram (What showed up on mamm was a lymph node)
Lymphatic vascular invasion
Lymphedema right arm (started shortly after surgery)
TCH started August 15, 2011
Finished Taxotore and Carboplatin 11-28-11
Radiation x 36 - finished Feb. 3, 2012
Herceptin weekly for 1 year - finished 8-13-12
Arimidex started Feb. 2012 for 5 years
Left prophylactic total mastectomy March of 2012

Arimidex stopped August 2014 due to side effects
Aromasin started Sept. 2014
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Old 08-26-2014, 07:18 AM   #2
Becky
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Location: Stockton, NJ
Posts: 4,179
Re: Arimidex vs Aromasin?

Switching certainly can help. Also, do not be concerned at all about not being on anything for 2 weeks. When I started this journey, about a year or so afterwards, I had to have surgery (for something else) and had to go off 3 weeks. And my supplements too which I have a lot of faith in.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 08-26-2014, 08:10 AM   #3
Kkmom
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Location: 'Burbs of Atlanta, GA
Posts: 172
Re: Arimidex vs Aromasin?

Cathy,
I am also taking arimidex and have been for almost a year. I did not experience the joint pain, or back pain you are describing. I noticed in your signature, you have been on it for 5 years. I would not think, it would be an issue if you are off of it for a couple of weeks. Especially, since you have been on it for so long.

Becky,
I noticed your response regarding going off of armidex and you mentioned going off of your supplements. What supplements do you take? I also take supplements and have found they make a big difference in my day to day. I take vitamin D, B12, iron, baby aspirin and idoral (iodine).
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[FONT=Tahoma]Dx 12/14/2012, IDC, 2cm, Stage II, Grade 2, 4/5 nodes, ER+/PR+, HER2+[SIZE=2][COLOR=Blue]
Surgery 12/28/2012 Lumpectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right)
Chemotherapy 02/06/2013
Herceptin, Carboplatin, Taxotere Started 6 rounds on 02/06/2013 Herceptin
Finished chemo - May 22, 2013
Radiation Therapy 06/12/2013 - 36X External
TM Marker - 13 October, 2013
TM Marker - 15 November, 2013
Annual Mammagram - 3D - Both Breast - CLEAR!!!
Colonscopy - 1st-Clear - November 18, 2013
CT Scan-Results-Clear - November 27, 2013
BC Diagnosis-1 Year - December 14, 2013
TM - holding steady at 15 - December 24, 2014
TM - 24.2 - January 12
Herceptin Treatment - Last One-February 4, 2014!!!
TM - 3.7 - February 4, 2014
MRI & CT - February 21, 2014 - All Clear
NED - and my doctor said - "well, it looks like you are NED - your MRI and CT are clear - Febuary 25, 2014
TM - 18.2 - February 21, 2014
Port Removed - Scheduled for Wed, March 19, 2014
Port Removed - Yeah!!! I feel lighter already!!!
TM - 15.3 - March 25, 2014
Diagnostic 3D Mammogram - Rt Breast - All Clear!!! - Tuesday, May 13, 2014
TM-15.5 - June 25, 2014
Diagnostic 3D Mammogram - Nov. 2014 All Clear!!!
Diagnostic 3D Mammogram-Rt Only-May,2015-All Clear!!!
Diagnostic 3D Mammo-Annual-Nov 2015-Right Clear!!! - Left Breast-found 5 mm CYST. Aspirated - all clear!!
TM - Nov 2015 - 18.2
NED-December, 2015 - 3 Years NED!!!
TM-Feb 2016 - 13.7
TM-June 2016 - 13.3
TM-Oct 2016-10.0
Annual 3D Mammo-Nov, 2016-All Clear!!!

Annual Mammogram - November 2017 - ALL CLEAR. i AM 5 (YES) YEARS OUT!!!

NED - 10 Years Out!! - December, 2022
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Old 08-26-2014, 08:11 AM   #4
LizzElliot
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Join Date: Apr 2014
Posts: 188
Re: Arimidex vs Aromasin?

Becky, can you comment on your supplements. I've been reading a lot about nutrition and supplements and I'd be interested to know which you find helpful!!

Cath, I hope you find the right med and get relief. I'm not at that place in the journey yet, so cannot comment!

Lizz
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