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Old 09-19-2013, 11:46 AM   #1
SusanN
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Hair regrowth beginning...patchy...anyone??

I'm wondering if anyone has had "patchy" hair regrowth after chemo?? My last TCH was July 22nd...I know I probably need to be patient!
I saw my dermatologist due to a follow up (non related to this), then I asked him about my eyebrow thininng, as they have decided to thin more than ever within the last couple of weeks! He recommended "Minoxidil" for them and that I also could use it on my hair...Rogaine!!
I know I can trust him, however, after reading all about Rogaine, I'm not quite sold on applying it to the few "patches" I'm thinking will fill in.
Has anyone had this with their hair coming in...and did you use anything...
I'm feeling rather vain as it's just hair as MOST importantly, it's the cancer I DO NOT WANT "growing" back!!!
Thanks...
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10/18/12 Found pea size lump right breast
11/7/12 Biopsy
12/14/12 Lumpectomy
1/4/13 Rexcision, NO CLEAR MARGINS!! :(
2/11/13 Mastectomy with Expander Placed
2/15/13 INFECTION at Mastectomy site...emergency Surgery!!! Expander removed :(
DX: DCIS, IDC, Stage 2a, 2.7cm, 1/5 nodes positive
ER/PR-, HER2+++
3/28/13 Port placed
4/1/13 Begin 6 Cycles TCH Therapy
4/1/14 Finished Herceptin!!
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Old 09-19-2013, 12:55 PM   #2
tricia keegan
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Re: Hair regrowth beginning...patchy...anyone??

Mine was patchy too and took ages to grow, a few people recommended Nioxin shampoo and conditioner and although they said it worked for them I didn't notice much of a difference to be honest but it does last ages but is a little pricey and you can order online.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 09-19-2013, 04:41 PM   #3
alicem
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Re: Hair regrowth beginning...patchy...anyone??

My hairdresser recommended Nioxin for me as well. I started using it before my hair started falling out, and I would use it once or twice a week just to clean my bald head during chemo. When my hair started growing in, it wasn't patchy at all. I don't know if it was becaouse of the Nioxin, but it might have been.
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9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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Old 09-19-2013, 04:55 PM   #4
Cat
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Re: Hair regrowth beginning...patchy...anyone??

Susan, I didn't have patchy spots but I had much slower hair growth while still on Herceptin. Once I was done with herceptin My hair grew faster. I have always had thin but abundant hair so I may not have noticed a little less. It did come in curly (mine is stick straight) and reverted to straight probably when the herceptin stopped too. I'm thinking patience is in order, they say your hair doesn't come in "normal" initially and I have a feeling those patches will catch up with time.
Cathy
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3/06 DX stage III er-pr-her2+++ breast, 1+node
age 49 and 364 days
3XAC 4X taxol and herceptin continue herceptin one year
bilat mastectomy w/TRAM
32 rads
9/08 recurrance 4 sternal nodes
mediastinoscopy, able to remove 3
taxotere, carboplatin, herceptin, x6
continue herceptin indefinately
5/10 recurrance in same node/area
mediastinoscopy, removed nodes
added tykerb
27 rads
10/18/10 PET shows inflammation no active disease
8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node.
D/C xeloda due to toxicity
12/5 PET scan clear
2/2012 colon blockage, breast cancer
(never thought it could go there! thought I was constipated)
start abraxane, herceptin, continue tykerb
10/2012 Kidney ablation (renal CA!)
3/2013 CT and biopsy R kidney (BC met to R kidney)
4/4/2013 Begin Kadcyla
7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm
Sept 4-6 post op cyberknife
Sept 23 ablation right kidney (blow up pesky breast ca met)
Oct headaches MRI Oct 10 (only surgical changes ! Yay!)
Short of breath. CT, pulmonary function, echo
New crap in right lung heart good. Pooh!
12/13 DC kadcyla. Begin halaven
2/14 MRI brain NED Yay!
4/3/14 CT mostly stable but breast mets r kidney growing
4/16/14 ablation right kidney again
Continue halaven, tykerb
dc halaven gemzar?
2nd opinion May 14
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Old 09-19-2013, 06:00 PM   #5
SusanN
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Re: Hair regrowth beginning...patchy...anyone??

I appreciate what you gals are sharing...I should've mentioned I've been taking Biotin for nearly a year or more, and just started using Nioxin about a month ago. The back of my head seems to be fine...as in my hair is slowly coming in...it is the sides where it needs to fill in. I had such thick hair...
My husband tells me to think of the way babies hair comes in...it's a "process"...that helped me a bit
__________________
10/18/12 Found pea size lump right breast
11/7/12 Biopsy
12/14/12 Lumpectomy
1/4/13 Rexcision, NO CLEAR MARGINS!! :(
2/11/13 Mastectomy with Expander Placed
2/15/13 INFECTION at Mastectomy site...emergency Surgery!!! Expander removed :(
DX: DCIS, IDC, Stage 2a, 2.7cm, 1/5 nodes positive
ER/PR-, HER2+++
3/28/13 Port placed
4/1/13 Begin 6 Cycles TCH Therapy
4/1/14 Finished Herceptin!!
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Old 09-19-2013, 06:36 PM   #6
caya
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Re: Hair regrowth beginning...patchy...anyone??

Susan, I had such thick hair before BC. I mean ridiculously thick curly frizzy. It would take hours for my shoulder length locks to dry naturally (and I would have to use tons of gel, moroccan oil etc. to tame it). If I would blow dry it myself - 45 minutes.

It grew back straight, fine, less gray and about 1/2 the thickness. I did not have to colour my hair for almost 2 years after it grew in, the roots finally started to get grey enough that I needed to colour it. Def. grew in quicker after I finished Herceptin. I did not use any special shampoos at the time. I still have to remind myself of my "new" hair and use less product in it - just a bit of moroccan oil to smooth it out before blow drying, which now takes 15 minutes max.

In fact, I noticed it started to grow back more quickly and just a bit fuller after I finished my 5 years of Tamoxifen and Femara, which are known to slow/thin hair growth. Eyelashes and eyebrows too. It is def. a process.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!

Last edited by caya; 09-19-2013 at 09:26 PM..
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Old 09-19-2013, 06:43 PM   #7
jaykay
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Re: Hair regrowth beginning...patchy...anyone??

Hi Susan ,

I definitely feel your angst! I finished chemo on March 14th and my hair is definitely coming in slower than I expected. My eyebrows had started thinning towards the end of chemo, they came back, then started thinning about 6 weeks ago. They did start to grow back again. From reading some older posts, many others have experienced the same thing.

I started taking biotin and am not really sure if that's helping or not. My hair was also very thick and wavy/curly. It's still curly (was kind of hoping it would come in straight - ha ha), is thick, but is very fine in texture - not like my hair at all. The back of my head also came in quicker than my sides. Your husband is right, it is like baby hair. I feel vain, too-.

I am hoping that herceptin is contributing to the slow growth. I only have 3 more to go! At least we're finished with chemo; the hard part is over.
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March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 09-19-2013, 06:49 PM   #8
Kkmom
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Re: Hair regrowth beginning...patchy...anyone??

Susan,
I finished chemo in May and my hair started growing back in mid July. After I finished chemo, I have been taking biotin. It seems to helped with my hair growing back, but also my fingernails.
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[FONT=Tahoma]Dx 12/14/2012, IDC, 2cm, Stage II, Grade 2, 4/5 nodes, ER+/PR+, HER2+[SIZE=2][COLOR=Blue]
Surgery 12/28/2012 Lumpectomy (Right); Lymph Node Removal: Axillary Lymph Node Dissection (Right)
Chemotherapy 02/06/2013
Herceptin, Carboplatin, Taxotere Started 6 rounds on 02/06/2013 Herceptin
Finished chemo - May 22, 2013
Radiation Therapy 06/12/2013 - 36X External
TM Marker - 13 October, 2013
TM Marker - 15 November, 2013
Annual Mammagram - 3D - Both Breast - CLEAR!!!
Colonscopy - 1st-Clear - November 18, 2013
CT Scan-Results-Clear - November 27, 2013
BC Diagnosis-1 Year - December 14, 2013
TM - holding steady at 15 - December 24, 2014
TM - 24.2 - January 12
Herceptin Treatment - Last One-February 4, 2014!!!
TM - 3.7 - February 4, 2014
MRI & CT - February 21, 2014 - All Clear
NED - and my doctor said - "well, it looks like you are NED - your MRI and CT are clear - Febuary 25, 2014
TM - 18.2 - February 21, 2014
Port Removed - Scheduled for Wed, March 19, 2014
Port Removed - Yeah!!! I feel lighter already!!!
TM - 15.3 - March 25, 2014
Diagnostic 3D Mammogram - Rt Breast - All Clear!!! - Tuesday, May 13, 2014
TM-15.5 - June 25, 2014
Diagnostic 3D Mammogram - Nov. 2014 All Clear!!!
Diagnostic 3D Mammogram-Rt Only-May,2015-All Clear!!!
Diagnostic 3D Mammo-Annual-Nov 2015-Right Clear!!! - Left Breast-found 5 mm CYST. Aspirated - all clear!!
TM - Nov 2015 - 18.2
NED-December, 2015 - 3 Years NED!!!
TM-Feb 2016 - 13.7
TM-June 2016 - 13.3
TM-Oct 2016-10.0
Annual 3D Mammo-Nov, 2016-All Clear!!!

Annual Mammogram - November 2017 - ALL CLEAR. i AM 5 (YES) YEARS OUT!!!

NED - 10 Years Out!! - December, 2022
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Old 09-20-2013, 07:37 AM   #9
jaykay
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Re: Hair regrowth beginning...patchy...anyone??

Forgot to mention that I got my hair colored about a month ago. If I was going to go wigless, it would be with brown hair! And I have gotten a couple of "clean up" cuts. Just to get rid of the wispy stuff and get my neck shaved.
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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