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Old 12-23-2008, 04:34 PM   #1
Soccermom
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Red face T score down a bit...
hip is stable from 2 years ago but spine is T score is -1.5 soooooo ...I will ask my new Onc (when I get to Tampa and get set up with one) what she/he thinks about Zometa. I guess BONIVA/ACTONEL didnt help all that much?
truthfully I dont fully understand what my lowering score REALLY means in the big picture~ guess I'll have to bone up on things (hahahaha)..
LOve to all,Marcia
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Old 12-23-2008, 05:33 PM   #2
Yorkiegirl
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What I wouldn't give to have a T-score of -1.5

My T-Score in my spine is -3.8
My T-Score in my hip's is -3.4

So I know for a fact that Actonel isn't helping me.

What it means is that when your score goes lower the med's are working.


The World Health Organization (WHO) has established the following definitions based on bone density measurement at any skeletal site in white women.

Normal: T-score above -1 (BMD is within 1 SD of a "young normal" adult)

Osteopenia: T-score between -1 and -2.5 (BMD is between 1 and 2.5 SD below that of a "young normal" adult)

Osteoporosis: T-score at or below -2.5 (BMD is 2.5 SD or more below that of a "young normal" adult. Women in this group with one or more fractures are deemed to have severe or "established" osteoporosis.)
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Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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Old 12-23-2008, 06:56 PM   #3
Soccermom
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Dear Yorkie,
I am not whining per se~ I've made some very significant lifestyle changes in the last few years and am just disappointed they arent reflected in my T score.
I lowered my overall cholesterol # from 206 to 185 in 1 year by eliminating certain foods,increasing weight bearing exercize and quiting smoking after 30+ years.
My weight is excellent and I have gone down a number of clothing sizes (some of it due to reconstruction ))
Just was SOOOO hoping on improvement on bone density too..
I hope Zometa does the trick for both of us!
Marcia
Last edited by Soccermom; 12-23-2008 at 06:58 PM.. Reason: typos
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Old 12-24-2008, 07:35 AM   #4
Becky
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Thanks for explaining the T score system Vicki. I always knew where I stood as far as the numbers and numbers to normal are but didn't know what it all really meant.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 12-24-2008, 08:02 AM   #5
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
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Smile
Hey Marcia & Yorkiegirl, one more time I need to post what wonders Zometa worked for the Mighty Oak's severe bone issues. I personally hope the opinion from the new doctor is a 'go'! If you do get on it, may work the same magic it did for Ed. Sending extra holiday love>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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