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Re: Looking at Clinical Trials
Rolepaul - thanks so much for all this amazing info.
I have googled a bit but can't find the trial at the Pasteur Institute, but will spend more time on it tomorrow. And I will ask about the Ommaya reservoirs - sorry, I don't know how to PM you on this site for that info.
They are giving me WBRT in case there's anything else lurking up there (I'm sure there will be) , but i assume gamma Knife is an option further down the line. I did ask my onc about Tykerb with the Xeloda but I can't remember what he said - something about the trial not comparing like with like...? It is also becoming increasingly difficult to access these newer expensive drugs here, though I believe Tykerb is still funded.
Finally, great advice re the Patient Advocate Services too - will give that a shot. Appreciate this so much
Lesley
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