sleep

juanita · 09-03-2007, 10:01 PM

How many of you have trouble falling asleep regularly? How often is that? How soon after diagnosis did you start having problems? Do you take anything for it? How often do you take it? How long have you been taking it?

hutchibk · 09-03-2007, 11:57 PM

I have had the benefit of Lunesta for the last year. Herceptin and Taxol seemed to create regular sleeplessness for me and the sleep deficiency was becoming unbearable. I only take it every once in a while, and never more than 2 nights in a row, but it was a god send and a sanity saver. I get the best sleep ever when I take one, and I awake 8-9 hours later TOTALLY refreshed with no hangover. I take the lowest dosage possible. It helps me fall asleep (usually 15-20 min after taking) and helps me stay asleep.

Sheila · 09-04-2007, 04:49 AM

Juanita
Like Brenda, The Taxol Herceptin Avastin regime has really played havoc with my sleep...if I do fall asleep, I wake up 1 -2 hours later and can't go back to sleep...it is awful. I have been using Advil PM with Benedryl in it, but its not working too well anymore....
Sleepless in Illinois

fauxgypsy · 09-04-2007, 06:17 AM

I have had trouble for years with sleep. I have fibromyalgia in addition to everything else. Prior to my cancer diagnosis I was taking Restoril. It works for me most of the time without any draggy side effects. Still, I am sleeping much better now that I am just getting Herceptin and Femara.

Leslie

PinkGirl · 09-04-2007, 07:57 AM

Hi Juanita
I had lots of problems sleeping (anxiety) when first diagnosed. I used Ativan then, and had a good sleep, but had the Ativan hangover the next day. During chemo I didn't use anything because each day was different for me - I wouldn't sleep well for a few days and then I would be so tired I would sleep for 2 days. Now I am okay because I have a "general" fatigue all the time and I fall asleep easily. At one time I also used Amitriptline (25 mg.) and it worked great after I adjusted to taking it. The first week or so I was a zombie during the day. Now, if I need something the odd time, I use Ativan.

Brenda_D · 09-04-2007, 08:24 AM

I went thru a period of sleeping in fits and starts after dx. My GP put me on Prozac and it helped for awhile.
Now I'm having trouble going to sleep. Laying awake until after midnight or more. Once I'm asleep, I sleep good.
I'm going to have try something to get to sleep faster.

I'm currently on Herceptin only. I wasn't aware it affected sleep.

Emelie · 09-04-2007, 08:27 AM

I have used Ambien CR and regular Ambien with great results. They both have helped me get some sleep. Herceptin alone has caused me to lose a lot of sleep. I usually only need it one or two nights a week. Ask you doctor for something that you can use when you really need a good nights sleep.
Good luck with the Z's,
Emelie

LAURIE · 09-04-2007, 08:28 AM

Lunesta did help me a lot during Taxol. I don't take it too often now, but do occasionally to help me fall asleep. The only reason I cannot fall asleep these days is because I am thinking about work or if I know I have to get up early. I take the higher dose 3mg. Usually about once a wee or less. I have not had any bad side effects at all.

MJo · 09-04-2007, 09:05 AM

My sleep patterns didn't return to normal until I stopped Herceptin. I used Xanax to cope. Sleep deprivation is a very real side effect of all the treatment.

KRISS · 09-04-2007, 09:09 AM

I have no problem falling asleep it is staying asleep that kills me. I started taking Ambien CR a couple nights a week and it seems to give me the best results.

dorinda · 09-04-2007, 10:38 AM

i work nites so my sleep patterns are all messed up. after my chemo i am wired for about 2 days and cannot sleep due to decadron and then after that i am kinda fatigued. when i have trouble sleeping i take a tylenol pm. i have wanted to ask for something but never have.

weezie1053 · 09-04-2007, 08:37 PM

Never took a sleeping pill in my life...until chemo. I was wired while on AC/Cytoxin and Taxol. Onc prescribed Ambien, and it made a world of difference in the quality of my life. I worked through most of my chemo, and I needed whatever rest I could muster. Now, I occasionally break one in half. This website keeps me awake at night.

I feel like I need to check in every couple of days so I don't miss something. Went to my second support group meeting tonight, and I told my husband, I just feel like I have learned so much from the website vs. what those gals at the support group are sharing.

BonnieR · 09-04-2007, 09:05 PM

I suddenly had problems sleeping when I went off my HRT last year. Hot flashes, night sweats etc.. So I was taking one half of an Ambien. Then, when I got my diagnosis it got worse. My brain goes into overdrive as soon as I hit the pillow. So I listen to relaxation CDs at bedtime. But I also am now take Ambien CR every night prescribed by onc. I don't much care if I get dependent on it. I am also dependent on sleep.

Lolly · 09-05-2007, 12:15 PM

I started having trouble falling asleep after starting Herceptin, but that was also when I was diagnosed with recurrent bc, stage 4, so I attributed it to anxiety. My PCP recommended a SSRI, which I still take(currently Celexa), and Tylenol PM. I switched to generic benedryl, and take 1/2 a pill nightly (12.5mg) along with 2 mg. Melatonin, about an hour before I go to bed.Usually I can get to sleep now within 15 minutes, unless I've forgotten to take my meds and then I have trouble again, but I don't know if it's anxiety from the bc or anxiety because I've forgotten my meds and am afraid I won't sleep!

<3 Lolly

SusanC · 09-05-2007, 12:47 PM

I have had trouble sleeping for years (4-5 years). Prior to dx I was taking ambien. It would really help. The trouble was/is staying asleep. I often fall asleep and then wake up just minutes later with my heart beating fast. I usually read or computer solitare to fall asleep. I am getting good at solitare!
Susan C

Ruth · 09-06-2007, 12:34 PM

I take a Lunesta if I need it and it works fine for me. I used to take Ambien during treatment and had one of those crazy sleep walking episodes so I stopped them. I woke up one morning and saw that a whole giant bag of cheese puffs was empty. I blamed my two oldest boys of raiding the pantry in the night and they told me they were innocent and I was the one who had crumbs all over my pj's and face! I had absolutely no memory of eating them and I had never done anything like that before.
Freaked me out!
I think it is completely normal to go through this especially reading all of the responses noted here. Since it has been a while since I stopped treatment, I have much less need for help but I like having it available if I need it.
Peace and pleasant dreams! Ruth

GemmaG · 09-06-2007, 03:23 PM

I don't post much but i read all the post almost every day. Ruth, I have the same thing with Ambien. I sleep walk! not eating though. Sleep talking on the phone?! I don't know. I don't know how to describe it. One time, I even text message my friend and don't remember it the next day. I just saw her reply to me. I still take it as needed but I'll make sure no phone or any gadget next to me :-)

Hugs,
Gemma

BonnieR · 09-06-2007, 04:39 PM

Susan C, I was having trouble staying asleep with the plain Ambien too. But Ambien CR made all the difference.
Ruth, I know sleep walking/eating is a scary business but I must say you painted a humorous picture!!! Your boys must have enjoyed "busting" you!

Sheila · 09-06-2007, 07:01 PM

OK, Now I'm worried...I finally asked the Dr for something for sleep today...real medicine I told her...I didn't sleep at all last night before going today, and today was my Decadron IV push day...so she ordered Ambien 10mg....if it doesn't help, I will ask for the Ambien CR......I just know I need to lock the kitchen cuboards so the fritos and cheetos are safe at night!

Karen Weixel · 09-06-2007, 07:48 PM

I never had a problem sleeping until right after I completed AC & T and had just started Herceptin. After 2 months of not sleeping, my onc prescribed Lunesta. It really helps.

Karen