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07-27-2007, 05:33 PM
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#21
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Lexi
Hey girl
Did you hear anything yet? I am sure you are anxious as we are for you too. I would tell you to chill but I wouldn't nor would any of us.
Is it getting any better? Try and have a nice weekend and smile as it makes your whole body smile too.
Thinking of you.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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07-27-2007, 08:56 PM
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#22
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Hey Everyone,
I didn't hear back from my pcp. I am hoping this is good news? My onc did call me at 8:30 this morning. When I answered the phone and she said it was her, my heart sank. I thought the worst. However, she was phoning to get some more info on the rash/lesion and asked me to try not to worry too much until we hear back from pathology. I told her I'd try not to worry. Gosh, I wish it were that easy!
I will let you all know as soon as I hear the news. Thank you so much for all your kindness. It makes me feel so cared for.
Hugs and Prayers Always,
Lexi
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07-27-2007, 09:04 PM
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#23
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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Your Oncologist called you? I never get calls from my Oncologist , when I have questions and leave messages for him to call..i get his nurse..who takes forever to call back. This is one thing I really don't like about him. Is it common for most of you to have your oncologist call you personally?
sherry
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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07-28-2007, 04:55 AM
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#24
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Dear Lexi,
I was so happy to wake up to an update from you this morning. I was also happy to hear that you have nothing to report as of yet. I, too, am hoping that means it's good news.
All of us on this board feel your anxiety. We all "get it." When one of us waits for results, we ALL wait for results. I am waiting with bated breath (wish they'd hurry up as I'm running out of air )
A note to sherry...............my onc. only called me one (my old one - I have a new one now but have only seen him once and pray I never even get to know this one ) Anyway, my old one called me once when I had a mammogram and was called by my surgeon to say "they found a suspicious area" my onc. called me later that day to say she was "sorry to hear this happened to me...........they were all thinking of me................and try not to worry.......let's see what this is first" Anyway, otherwise, I only talk to the nurse too. I THINK that's normal.
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-28-2007, 05:48 AM
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#25
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Lexi
Here is hoping that no news is good news....saying prayers that it will be mothing. Sherry, I get calls from my oncologist even with my scan reports...she knows how hard it is to wait, and as soon as she gets the report, ususally 24 hours, she calls me. If I have a problem, I have her number and her home number. I like that I can reach her almost anytime if I need to.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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07-28-2007, 02:49 PM
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#26
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Lexi, I'm keeping the good thoughts coming that this is nothing serious, hoping it's just a reaction to your fabric softener or something! You hang in there.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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07-28-2007, 07:30 PM
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#27
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Senior Member
Join Date: Oct 2005
Posts: 476
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Still sounds like shingle to me.
__________________
Ann
Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
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07-30-2007, 03:47 PM
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#28
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Senior Member
Join Date: Jun 2006
Posts: 153
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Still thinking of you lexi.
__________________
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07-30-2007, 05:13 PM
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#29
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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It's NEGATIVE FOR CANCER!!! Thank you Jesus! Thank you sisters for your prayers and your love! I am in tears. My husband called the dr 10 mins ago. I couldn't call. I felt like I couldn't hear any bad news. Ed just called and told me the doctor said the path came back inflammatory as in possible spider bite! We will keep an eye on it as it hasn't changed in color. It is still red and I am running a low grade fever.
Thanks again for your love and support. I do not know what I would do with out all of you.
Love,
Lexi
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07-30-2007, 05:41 PM
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#30
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Hi Lexi,
I'm soooooooooooo happy for you, I just came back from a mountain trip and saw your post. There is one thing I have noticed and I'll put it as a seperate post, I've noticed that after BC I developped this hypersensitivity to any mosquito bites. I never had this before, after the bite the area gets red and swellen and one time I had to take anibiotics, because it was growing. And everytime it seems I have to take Benadryl etc... I have a question for you also, did you particiapte in UW trial Vaccine or any other Vaccine?
Big hug,
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07-30-2007, 06:04 PM
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#31
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Yippee!!
Dear Lexi,
So happy for you - now you can relax and enjoy (ha ha) your bite.
Hope that low grade fever goes away real soon.
All the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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07-30-2007, 06:11 PM
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#32
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Dear Lexi,
Yeah, that is GREAT news! Celebrate!
Love, Hope, and Peace,
Carolyn
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07-30-2007, 06:23 PM
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#33
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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Hi Lexi,
Here is it to being a nasty bug bite.. You are in my thoughts and prayers.
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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07-30-2007, 06:41 PM
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#34
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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WooHoo, Yea, Congratulations, Way to Go!!!
I'm so happy for you!
Mary Anne
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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07-30-2007, 06:43 PM
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#35
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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THANK YOU JESUS is right! Oh Lexi....................how HAPPY you must be AND how happy I am for you.
Once again, Thank you Jesus!!
A big SQUEEZE I send you Lexi,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-30-2007, 07:16 PM
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#36
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Senior Member
Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
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yahoo!!! I am so excited. like others have said "thank you jesus"
another yahoo, is necessary!!
__________________
Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009
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07-30-2007, 08:23 PM
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#37
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Lexi,
Thank you Jesus, from me too. About the spider bite. Do keep a good watch. I know a man without BC that had a spider bite that got out of control. His doctors were sort of asleep at the switch.
Hugs and prayers from me, Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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07-30-2007, 08:33 PM
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#38
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Lexi.
Glad it's looking good. I should have wagered money with my bite guess. Only guessed that because my husband had one truly ugly, makes you go to the Dr, bite 2 years ago. Bev
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07-30-2007, 08:43 PM
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#39
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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So glad to hear the good news.
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07-30-2007, 08:56 PM
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#40
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Senior Member
Join Date: Jan 2007
Posts: 138
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Lexi,
So happy you got good news.
Karen
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