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Old 10-05-2007, 07:03 PM   #1
Vanessa
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Falling

I have fallen recently on 3 different occasions. One happened this morning when I had my granddaughter in my arms. I was able to protect her from the fall, thank goodness. When I went to chemo, I decided it was time to fess up and I told my nurse, who in turn called the doctor. They asked a few questions and decided that it could be the high dose of abraxane causing dehydration, so they cancelled my chemo and herceptin and instead gave me IV fluids. The doctor also ordered a stat brain MRI just to be cautious. That was an all day ordeal. Anyway, I should find out by Monday the results. I am planning to still walk the Susan G. Komen 5K tomorrow morning. I am feeling a little bit better since I got the fluids, so I am feeling positive, but I still need your prayers that the MRI will be negative. Anyone else have any problems with falling down while doing chemo?
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Old 10-05-2007, 07:43 PM   #2
Mary Jo
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Vanessa, my prayers are with you that all will be fine with your MRI results.

I walked the 5K at the Susan G. Komen walk a couple weeks ago in Milwaukee and had a ball. Hope you have fun too.

Hugs and Peace,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 10-05-2007, 07:49 PM   #3
Erin
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Vanessa,

Are you getting dizzy, or are you feeling physically weak and falling because of that? I am curious to hear what you find out.

While I have not actually fallen down, I have had a number of episodes of where I seem to become stupendously uncoordinated for a few seconds and almost go down. It is as if I have forgotten how to walk - I will stumble or veer into a wall. No dizziness, no weakness, no other symptoms. It began about 1/2 way through chemo and still happens a couple of time a week.

Hope your CT goes well. Let us know what you find out.
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Age 50, premenopausal
Dx 1/2/07 DCIS/IDC
Lumpectomy 1/4/07 1.1cm tumor
SNB 3 nodes clear
Stage 1, Grade 2, HER2+++ (FISH 6.8)
ER + / PR +
TCH, 6 rounds, finished 6/1/07!!!
Herceptin to continue for 1 year
36 rads finished 8/22/07
Port out 8/27/07
Switched to Herceptin weekly for joint pain
Ooph 11/13/07
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Old 10-05-2007, 08:05 PM   #4
caya
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Vanessa -

Hoping that your MRI shows NOTHING, NADA - When I was on chemo I was very weak at times and although I did not fall, I had to sometimes sit down or lie down if I was standing.
Please keep us posted.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 10-05-2007, 08:13 PM   #5
Becky
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Dear Vanessa

Abraxane and Taxol are the exact same drug active but they are emulsified into solution different ways. I had Taxol and if you remember, I am a runner who could not run for over 2 years because of Taxol. I could walk but did not have the balance for proper foot placement until March of this year (and my last Taxol was 1/31/05!!!).

Anyway, it could well be the Abraxane. Drink up and rest. Its hard to have to concentrate on movement. I remember being in a meeting at work where I couldn't even get up from a chair. It really freaked my colleagues out big time. These drugs are not child's play and sometimes, it really hits us when we experience all the side effects that we didn't even pay attention to when we signed on the dotted line okaying them to give those drugs to us.

Rest up and have a great time tomorrow.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 10-06-2007, 01:08 AM   #6
RhondaH
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Smile Vanessa...

Prayers are on the way. Take care and God bless.

Rhonda
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Rhonda

Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 10-06-2007, 02:23 AM   #7
dhealey
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Vanessa, Hope your MRI results are good. I am presently on herceptin only and do occassionaly have some dizziness and feel unbalanced at times. I haven't mentioned this to the onc yet as I was trying to decide if it was coming from my sinus. Anyway sounds like you have a good onc who is being cautious. A good thing. Best of luck
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Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 10-06-2007, 05:01 AM   #8
Sheila
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Vanessa
Hoping the MRI is just fine and it was just the Abraxane or dehydration...I haven't fallen but have had a few dizzy spells while on the Taxol....just a passing thing, but whoa does the room spin!
Thanks for walking in the 5K.....you walk for many of us past and present!
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 10-06-2007, 08:33 AM   #9
tousled1
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Vanessa,

I'll be praying that the MRI shows nothing. I know that since I'm on Taxol weekly my legs feel very weak and sometimes just feel like they will give out. I haen't fallen at all though. I attribute my problem to the neuropathy caused by the Taxol.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 10-06-2007, 08:53 AM   #10
Jean
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Vanessa,
During hemo I had a few times where I would feel dizzy and my balance
was out of sink.

Glad you and your Granddaughter did not get hurt. Sending you
all good energy for great result with the MRI. Enjoy your walk
and Kudo's to you for particapting.

Hugs,
jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 10-06-2007, 09:01 AM   #11
Catherine
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Vanessa,
I agree rest and add the fluids. Will be praying for a "clean" MRI. Glad you fessed up. You are a strong woman, but these drugs are maybe stronger than we are. Do what you need to do to stay safe, we don't want you to mess up that pretty face with a head plant.

Thinking of you, hugs, Catherine
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Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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Old 10-06-2007, 12:08 PM   #12
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Falls

Hi Vanessa
I fell three times during my chemo and herceptin treatments. The first two happened the same way - I had "squatted" down to pick something up off the floor, and I just rolled over and landed on my side on the floor. The third
time was a "trip". I just didn't get my foot up high enough on the steps and I wiped out - did a good job - split lip, 2 black eyes, and a broken nose. I didn't mention this to my docs. I thought it was from the fatigue, the stress, and the poisons being shot into my veins. I did mention the last one because my face was re-arranged and it was hard to hide. I think there could be a number of reasons for your falling. Good luck with your scans, and hopefully you are just clumsy
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 10-06-2007, 01:15 PM   #13
Peggy
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Me too!

Vanessa,

I have also fallen a bit. Had two fractures in fact. I simply could not right myself if I got the least bit off balance. Also, I tripped a lot. Anyway, I had the brain MRI and everything was fine. My body just had a hard time with the chemo. I have continued to be dizzy and fall some, so I had another MRI. Everything is still fine. Hopefully, it will be the same for you. I have changed some of my behaviors...I hold on to things more and walk a bit more carefully.

Peggy
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Stage IIIC
Diagnosed 5/05
FEC100 x4, Taxotere/Xeloda X4 (both with Herceptin)
Mastectomy, Rads x33 Herceptin X 9
3 Years NED!
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Old 10-06-2007, 01:28 PM   #14
PinkGirl
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being careful

Peggy made some good points about having to be more careful now. I hang onto railings and am very careful on stairs. I sometimes misjudge where I am and walk into walls or edges of doors. I also make sure I am always in "good" shoes because my feet are a mess (hurt all the time). I am extra careful getting into the shower. Since Taxol, my legs and feet haven't been up to par.
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 10-06-2007, 06:08 PM   #15
Andrea Barnett Budin
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Exclamation Watch Your Step

The dizziness and weak legs/feet that misstep and fumble have occurred to me and still do, though way less. I am extra careful, holding on to things, studying steps and inclines, stepping into and out of shower. I have witnessed first hand the effects of dehydration on a dear friend, who had to stop chemo and had a stroke, and from my husband who stopped eating and drinking when in such dire Shingles pain. I had begged both to DRINK. And I am begging you Vanessa, and all those on this board, to please drink 8-10 glasses of bottled water a day, every day. Like it's a prescription for wellness! It's your responsibility! I count the # of glasses I down throughout the day. 11 gulps = 1 glass. STICK WITH THE PROGRAM! PLEASE...

Good luck on the walk, though I wish you wouldn't because of how *dehydrating* it can be on your body. You therefore have to drink even MORE. I know this is a tough task, but it is essential! And nibbles ev 3 hrs keep you fueled and the fire within stoked! You must take this seriously! A broken anything is not a thing any of us needs at this point in time. Sent with pure unconditional genuine love...
Andi

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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 10-06-2007, 08:22 PM   #16
Vanessa
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Thanks everyone for the advice, concern and prayers. I will let everyone know as soon as I get the results of the MRI. I did do 1/2 of the walk today, as I was quite tired, but I felt okay to attempt it, because my doctor and both of the nurses from her office were there. I drank plenty of water and actually I am feeling quite a bit better today after getting IV fluids. I was concerned about taking a break from chemo and herceptin yesterday, but the nurse assured me a one week break would not hurt, since I am getting a strong dose of Abraxane. I got to walk down the survivor's path and my daughter's cried. I thought about how strong we all are for enduring this disease and the treatments that are so hard. All of you are in my prayers every night as we valiently fight this disease. Thanks again for all of your support!!!!! Oh yea, I can't remember if I mentioned (can't remember much of anything) that my grandchildren were wearing onesies that said "I wear pink for my grandma." They were really cute. I ordered them from Cafe Press.
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Old 10-07-2007, 04:40 AM   #17
Mary Jo
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I'm glad you were able to participate Vanessa. The love that is present at the Susan G. Komen race is really awesome, isn't it? The survivor's parade is quite emotional also, I thought, but it felt awesome to walk in it, right?

The pink onesies brought tears to my eyes. Awwwwww, that is soooooooooooo adorable and awesome and I'm so thankful you are here to enjoy your precious grandchildren.

Glad you are feeling better Vanessa. God be with you tomorrow as you have your MRI. All will be well.

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 10-07-2007, 06:19 AM   #18
PinkGirl
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Question onesies?

What are onesies?
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 10-07-2007, 10:32 AM   #19
Vanessa
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Thank you for your support Mary Jo. I actually had my MRI on Friday, but should find out the results tomorrow. The onesies did look very cute.
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Old 10-07-2007, 10:34 AM   #20
Vanessa
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Pink Girl,

Onesies are the little one piece outfits that button at the bottom and babies wear when they are little.
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