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Old 05-08-2013, 01:07 PM   #1
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
One year of TDM1. NED!

I am still sad and shocked by the lost of some of our beautiful HER2 sisters so I was hesitating to post.
But then I thought I had to share hope with the sisters who are in trouble!
Like our Dear Chrisy who gave me hope and strength to fight for TDM1.
I started TDM1 a year ago and now I am NED. I had more than a dozen of tumors in my lungs, liver, thorax abdomen.
TDM1 has not been easy for me but who cares? I only hope it will work forever and I know how lucky I am it is working for me. They lowered the dosage the last round for the second time so I could feel better. I am a little afraid because nobody knows what the minimal dosage is but it is true that my pain in the chest is gone.
I remember trying to visualize during my first TDM1 infusion that it was going to blast every stupid cancer cell. And it did.
I hope it will keep me NED, I hope it will bring other sisters to NED, I hope it will be available fast all over the world and I hope it will be successful in the neoadjuvant trials.
Love to all. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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