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Old 03-22-2008, 06:29 AM   #1
jones7676
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Location: I live in Christmas, MI - located on the shores of Lake Superior.
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Diet Info from John Hopkins

This university is primarily medical studies and a leader in cancer
research The following is from their newsletter:
FYI
AFTER YEARS OF TELLING PEOPLE CHEMOTHERAPY IS THE ONLY WAY TO TRY (TRY THE KEY WORD) AND ELIMINATE CANCER, JOHN HOPKINS IS FINALLY STARTING TO TELL YOU THERE IS AN ALTERNATIVE WAY ..

Cancer Update from John Hopkins

1. Every person has cancer cells in the body. These cancer cells do not
show up in the standard tests until they have multiplied to a few
billion. When doctors tell cancer patients that there are no more cancer
cells in their bodies after treatment, it just means the tests are
unable to detect the cancer cells because they have not reached the
detectable size.

2. Cancer cells occur between 6 to more than 10 times in a person's
lifetime

3. When the person's immune system is strong the cancer cells will be
destroyed and prevented from multiplying and forming tumors.

4. When a person has cancer it indicates the person has multiple
nutritional deficiencies. These could be due to genetic, environmental,
food and lifestyle factors.

5. To overcome the multiple nutritional deficiencies, changing diet and
including supplements will strengthen the immune system.

6. Chemotherapy involves poisoning the rapidly-growing cancer cells and
also destroys rapidly-growing healthy cells in the bone marrow,
gastro-intestinal tract etc, and can cause organ damage, like liver,
kidneys, heart, lungs etc.

7. Radiation while destroying cancer cells also burns, scars and damages
healthy cells, tissues and organs.

8. Initial treatment with chemotherapy and radiation will often reduce
tumor size. However prolonged use of chemotherapy and radiation do not
result in more tumor destruction.

9 When the body has too much toxic burden from chemotherapy and
radiation the immune system is either compromised or destroyed, hence
the person can succumb to various kinds of infections and complications.

10. Chemotherapy and radiation can cause cancer cells to mutate and
become resistant and difficult to destroy. Surgery can also cause cancer
cells to spread to other sites.

11. An effective way to battle cancer is to starve the cancer cells by
not feeding it with the foods it needs to multiply.

CANCER CELLS FEED ON:

a. Sugar is a cancer-feeder. By cutting off sugar it cuts off one
important food supply to the cancer cells. Sugar substitutes like
NutraSweet, Equal,Spoonful, etc are made with Aspartame and it is
harmful. A better natural substitute would be Manuka honey or molasses
but only in very small amounts. Table salt has a chemical added to make
it white in color. Better alternative is Bragg's aminos or sea salt.

b. Milk causes the body to produce mucus, especially in the
gastro-intestinal tract. Cancer feeds on mucus. By cutting off milk and
substituting with unsweetened soya milk cancer cells are being starved.

c. Cancer cells thrive in an acid environment. A meat-based diet is
acidic and it is best to eat fish, and a little chicken rather than beef
or pork. Meat also contains livestock antibiotics, growth hormones and
parasites, which are all harmful, especially to people with cancer.

d. A diet made of 80% fresh vegetables and juice, whole grains,seeds,
nuts and a little fruits help put the body into an alkaline
environment.About 20% can be from cooked food including beans. Fresh
vegetable juices provide live enzymes that are easily absorbed and reach
down to cellular levels within 15 minutes to nourish and enhance growth
of healthy cells. To obtain live enzymes for building healthy cells try
and drink fresh vegetable juice (most vegetables including bean
sprouts)and eat some raw vegetables 2 or 3 times a day. Enzymes are
destroyed at temperatures of 104 degrees F (40 degrees C).

e. Avoid coffee, tea, and chocolate, which have high caffeine.Green tea
is a better alternative and has cancer-fighting properties. Water-best
to drink purified water, or filtered, to avoid known toxins and heavy
metals in tap water. Distilled water is acidic, avoid it.
12. Meat protein is difficult to digest and requires a lot of digestive
enzymes. Undigested meat remaining in the intestines become putrified
and leads to more toxic buildup.

13. Cancer cell walls have a tough protein covering. By refraining from
or eating less meat it frees more enzymes to attack the protein walls of
cancer cells and allows the body's killer cells to destroy the cancer
cells.

14. Some supplements build up the immune system (IP6,
Flor-ssence,Essiac, anti-oxidants, vitamins, minerals, EFAs etc.) to
enable the body's own killer cells to destroy cancer cells. Other
supplements like vitamin E are known to cause apoptosis, or programmed
cell death, the body's normal method of disposing of damaged, unwanted,
or unneeded cells.

15. Cancer is a disease of the mind, body, and spirit. A proactive and
positive spirit will help the cancer warrior be a survivor. Anger,
unforgiveness and bitterness put the body into a stressful and acidic
environment. Learn to have a loving and forgiving spirit. Learn to relax
and enjoy life.

16. Cancer cells cannot thrive in an oxygenated environment. Exercising
daily, and deep breathing help to get more oxygen down to the cellular
level. Oxygen therapy is another means employed to destroy cancer cells.

(PLEASE FORWARD IT TO PEOPLE YOU CARE ABOUT)

CANCER UPDATE FROM JOHN HOPKINS HOSPITAL , U S - PLEASE READ

1. No plastic containers in micro.
2. No water bottles in freezer.
3. No plastic wrap in microwave.

Johns Hopkins has recently sent this out in its newsletters. This
information is being circulated at Walter Reed Army Medical Center as
well.
Dioxin chemicals causes cancer, especially breast cancer.
Dioxins are highly poisonous to the cells of our bodies.
Don't freeze your plastic bottles with water in them as this releases
dioxins from the plastic.
Recently, Dr. Edward Fujimoto, Wellness Program Manager at Castle
Hospital , was on a TV program to explain this health hazard. He talked
about dioxins and how bad they are for us.. He said that we should not
be heating our food in the microwave using plastic containers.
This especially applies to foods that contain fat. He said that the
combination of fat, high heat, and plastics releases dioxin into the
food and ultimately into the cells of the body. Instead, he recommends
using glass, such as Corning Ware, Pyrex or ceramic containers for
heating food. You get t he same results, only without the dioxin. So
such things as TV dinners, instant ramen and soups, etc., should be
removed from the container and heated in something else.
Paper isn't bad but you don't know what is in the paper. It's just safer
to use tempered glass, Corning Ware, etc. He reminded us that a while
ago some of the fast food restaurants moved away from the foam
containers to paper. The dioxin problem is one of the reasons.

Also, he pointed out that plastic wrap, such as Saran, is just as
dangerous when placed over foods to be cooked in the microwave. As the
food is nuked, the high heat causes poisonous toxins to actually melt
out of the plastic wrap and drip into the food. Cover food with a paper
towel instead.

This is an article that should be sent to anyone important in your life.
__________________
Barb

10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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Old 03-22-2008, 07:10 AM   #2
Yorkiegirl
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This is an Urban ledgend and did not come from Johm Hopkins

http://www.snopes.com/medical/disease/cancerupdate.asp


I hate to burst anyone's bubbles...but according to snopes.com (the debunker of myths), this report was NOT issued by John Hopkins nor is it affiliated with them in any way.

To verify this, go to: http://www.snopes.com/medical/disease/cancerupdate.asp
"Reports" like this have been circulating for years and years. I'm not sure why- nor am I sure of the original author.

What concerns me about them, is that they are presented as fact (which they are not) and might encourage a person to make decisions about their care based on untruths.

Also, these "reports" always throw in the patient's past behavior as a possible cause of their cancer, i.e., ate the wrong foods, too much stress, toxins, lack of exercise, etc., etc. ....thereby suggesting that the patient CAUSED his/her own cancer via poor nutritional, etc. choices.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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Old 03-22-2008, 07:10 AM   #3
Becky
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Nice post. Thanks
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 03-22-2008, 08:09 AM   #4
Mary Jo
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Thanks for sharing....................................

MJ
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 03-22-2008, 08:52 AM   #5
jones7676
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huh....that is interesting since I received it from some pretty important people in the cancer research field - I do not wish to violate thier right to confidentiality. I will have to inform them and see what they have to say. I am now question snopes which I often look to for verification of what I hear......all this stuff is so darn confusing. To vitamin D or not to D, to drink/eat soy or not to eat soy.....they all seem to change thier mind all the time. I try to keep up on what is best, but I'm really beginning to wonder who if anyone is reliable anymore. I'm seriously thinking of going to Cancer Centers of America for an opinion and the conference in Washington in Sept. - I wonder what they would have to say about all this?

Thanks for the info though - but I have to tell you that following the diet (no vitamin recommendations being followed) has made me feel a lot healthier!
__________________
Barb

10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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Old 03-22-2008, 09:03 AM   #6
Yorkiegirl
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Barb,I agree it is so hard to trust items that are sent. I do believe that there is some truth into that article. I know it is confusing. My argument is with the person/organization who puts this out as fact and attributes the misinformation to a highly regarded medical institution (like John Hopkins).
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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Old 03-22-2008, 10:07 AM   #7
Lani
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the reason the "information" changes all the time is...

the true answers are not really known

I have heard many Nobel prize winners speak, even asked a few questions.

What I have found is that more a person knows, the more they are willing to admit that we don't really know...

The scientific "knowledge" we have is but an infinitessimal fraction of what there is to know

This may not be reassuring to those being treated as they would like their doctors to have an air of authority and rectitiude.

Those who admit that these are the current thinkings/recommendations and may or may not turn out to be right/the best in the long run tend to
be more flexible, willing to think outside the box.

Which one patient prefers is a personal matter...

But when reading things posted on the web ...beware...there is no higher authority checking that what is posted is true nor from the source listed

That is why I like to post abstracts from the National Library of Medicine

One can check whether they are from pulications where all articles are peer- reviewed and see links to similar articles to see if what they purport has held up in others studies
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Old 03-22-2008, 08:59 PM   #8
hutchibk
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Some of it is good solid common sense advice, and as a cancer patient, I intend to do everything in my power to give my body/immune system as clean and healthful of a chance as possible to tolerate the treatments and work efficiently, however I tend to believe that much of it is not really scientifically proven as yet. I certainly don't buy into the scare tactics about chemo and radiation. And I don't buy that you can fight cancer solely through dietary changes.

The info about plastics leeching into foods (and teflon leeching) is becoming more and more accepted as true, and I have read a good amount of corroborating reports about that info being scientific.
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."

Last edited by hutchibk; 03-22-2008 at 09:27 PM.. Reason: add clarity
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Old 03-23-2008, 02:53 PM   #9
CLTann
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The John Hopkins posting is interesting and worthy to have our attention.

A few items that are certainly questionable:

1. Acidic food is harmful and alkaline, by implication is good. Our stomach acid will turn all food into acidic. That is the mechanism how foods are digested.

2. Soy or no soy, no clear conclusion from "authorities".

3. Sugar is bad. We should refrain from taking very sweet food. However, all food quickly changed to glucose in the body. That is the accepted theory of how diabetic people are having problems. Therefore, regardless how careful one is to refrain from sugar intake, one still has plenty of glucose to deal with. In fact, people cannot live without glucose.

4. Red meats are bad. The whole world is gradually adopting more red meats because of the economic level of the whold world is improving. The higher longevity of the world population is often credited to better nutrition. Red meats are commonly associated with better nutrition. I believe a judicious amount of red meats, along with chicken, fish, legume, fruit and veggie should be okay. Before we are totally severed from red meats, I can already see the headline: No fish, because they contain heavy metals. Farm raised seafood are fed with hormones as well as bad insecticides from the food chain.

5. Salt is bad. I have no vague idea where they get the additive information on the salt manufacturing process. Some salt is supplemented with iodine purposefully. Sea salt, on the other hand, contains many undesirable ingredients, including polyvalent metal ions.

6. The report is totally silent about Sunlight, smoking danger, street drugs and protection from contaminated air and water. Most people got their ailments from people or animal contacts.

7. Overall, the report is an excellent collection of advice and we should follow most of them routinely.
__________________
Ann

Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
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Old 03-23-2008, 04:13 PM   #10
Lilly
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I decided to have a look at the John Hopkins Hospital web site out of curiosity.
The hospital did not publish the email entitled 'Cancer Update from Johns Hopkins' and nor did they endorse its contents. Apparently it was an email hoax.
The hospital also did not publish the email about plastics.
Hope this information is helpful.
Lilly
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Old 03-24-2008, 09:42 PM   #11
weezie1053
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Smile

This email was also sent to me a couple of weeks ago. I think I received it from a well meaning family member attempting to unload more guilt on me. I have, however, decided I am going to make an appointment with a licensed nutritionist in the next few weeks. I am constantly getting advise about diet, nutritional supplements, etc. It kind of reminds me of when I was pregnant 29 years ago, and I received so much well meaning but not always 100% accurate advise.

Thanks for sharing. It opened up doors.
__________________
  • Diagnosis 06/06 - Stage II-A BC; BC was 2.5 cm, grade 2; ER/PR negative & HER-2/neu positive;
  • Mastectomy w/ reconstruction (implant) in 09/06;lymph nodes - negative;
  • AC/Cytoxin combo - 4 treatments (dose dense);
  • Taxol/Herceptin combo- 12 weekly treatments;
  • Completed chemo - 2/07; completed restruction 02/07; reduction of left breast.
  • BRCA 1 and 2 negative - 6/15/07;DX high risk for distant recurrence
  • MRI, 08/02/07 - NED
  • 1 year Anniversary - 09/07; completed Herceptin 11/07.
  • Mammo 02/14/08 - NED; MRI - 08/2008 - NED
  • 2 year Anniversary - 09/08
  • Mammo 02/09 - NED; MRI - 08/09 - NED
  • 3rd year Anniversary - 09/09
  • 5th Annivery - 09/2011 - NED
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Old 03-25-2008, 03:31 AM   #12
R.B.
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Weezie.

To foul up is human so there is not point in beating ourselves up over previous dietary choices. There is no question diet impacts on health. Sorting out which is the best option is more difficult.

I strongly suggest you take a look at the Greek Diet thread if you have not already done so. Some nutritionists have not yet grasped the Omega Three Six issue.

http://her2support.org/vbulletin/sho...ght=greek+diet

Omega 3 Fatty Acids in Clinical Nutrition - is an expensive book, [you could ask your library to get a copy] as written for doctors, is a bit technical but the bits you will certainly understand may convince you that Omega 3 and six fats are a serious health issue.

Nutrition and Physical Degeneration Weston A Price written in the 1930s is an excellent browsing book and truly though provoking.

RB
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Old 03-25-2008, 05:27 AM   #13
Lien
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Dear all, I think most of this is a hoax. I've seen these statements before, and know for a fact that a large trial in the Netherlands (where I live) has proved that there's no link between attitude and developing cancer.

Furthermore, I've been eating the "right" diet for years, because I have severe food allergies. No pork or beef, lots of fish (not raised in captivity), lots of veggies, fruits, raw veg, olive oil, etc. I only drink green tea, I haven't had sugar for twenty years, and still I got breastcancer.

This is a complicated disease and there are no simple solutions. Don''t let them make you feel guilty. You didn't put a sign on your door saying:" Cancer welcome in this home". Or did you? So there's no way you have brought this on yourself.

Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 03-25-2008, 06:00 AM   #14
Mary Jo
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Good Morning all,

Hope everyone is well. I, too, have read over at the Johns Hopkin site that the information posted was not in anyway provided by them. That being said, of course, we all know how important it is to treat our bodies in a healthy manner. Diet and exericise are crucial for a good quality of life.

Guilt and the trying to figure out "what did we do wrong" to get this disease is natural, I suppose. I mean no one in life thinks anything bad will happen to them. It happens to other people, but not to us. Children are abducted, people get killed by drunk drivers, people get diseases and suffer losses. Sad, but true. Before any of us were diagnosed that stuff happened to OTHER people....then...all of a sudden something "bad" happened to us. Did we cause it to happen? I don't believe so. Did it happen because we ate wrong....had a bad attitude....didn't exercise.....smoked.....drank.....who knows. It would be nice to have an easy answer but sadly there aren't any. If it was that easy, there wouldn't be people being diagnosed with this disease every day. Some here say they did it all "right" and still got it and there are many people I know who do it all "wrong" and they are fine. So, who the heck knows.

What I do know for sure, (at least for me) is that diet and exericise are crucial for my health. It makes me feel better....I feel more energetic and I feel healthier. My attitude is huge in how I live each day the Lord gives me. I believe in a positive attitude......I believe in trying to find the good in all situations because I believe it is there. I believe our attitudes play a huge role in how we handle and live with our disease. It makes the journey a bit easier, happier, more peaceful, as I live a life that ultimately, I can't control.

I know many wonderful warriors, women and men, who lost their lives to cancer (or to other diesease) who lived a life full of purpose - full of fight - never grumbled about "why me?" but lived with a positive outlook and GREAT attitude but they still died. They died peacefully, knowing they lived their life to the fullest and came to accept what was about to happen to them. It's just life.

So, although I agree with many statements in the original post...I try not to put TOO much stock into all the "rules" as they are just that "rules." Rules suck.........rules are meant to be a guide to help us - but rules are also meant to be broken. Healthy living is just that - healthy living.......it's good for us. Will it alter our eventual fate? No, I don't think so? Will it help us live a better, quality of life.....yep, I believe it will.

So live and let live - follow the "rules" the best you can BECAUSE it's good for you - enjoy each day you're given - make the most of every day - smile - love others - give and give and give (cause it comes back to you with more blessing than you'll ever know) and then TRY to rest and leave it with God. He's got your life in His Hands!!!

Happy day...........and Peace,

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 03-25-2008, 11:13 AM   #15
mimiflower07
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lien, i like your thoughts...i'm with you. We have enough guilt just being women. Moderation is a good goal but lets give our self a break when we fall off the dietary wagon. Pop some supp...lord knows there's enough of them to pick from(all claiming to do good things). Head out for some sunshine and do the best we can.\
just my thoughts,
suzanne
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suzannne
dx aug10/07
3 pos high, grade 3
tumor 2.5cm multifoc
bil mast recon sept 24/07
neg snb/neg lymph vascular
clear marg
chemo a/cx 4 rds
tomoxifan started feb11/08
herceptin to begin soon
herceptin completed feb/09
aromacin(A.I)for as long as i can
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Old 03-25-2008, 01:54 PM   #16
fullofbeans
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Yep it def sounds like a hoax but Barb I wanted to say that I love your Babe Ruth quote...for some reasons it resonate with me at the mo and makes me feel good..the power of good words...
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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Old 03-25-2008, 05:58 PM   #17
Val Pfeiffer
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Posts: 159
I agree that we should try to improve our eating habits, but we still have to enjoy what we're eating...who knows what's 100% accurate, but we can certainly make some educated guesses, then try to improve our daily food choices.

That said, I am a TOTAL junk food junkie...all I can hope for myself is that I can manage to eat fewer than 20 Hostess little chocolate donuts each week....

Val
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http://valleygirlvnp.blogspot.com/
Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *

6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.
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Old 03-25-2008, 06:33 PM   #18
Bill
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Good Morning, Marejo! Excellent post and thoughts. They all are.
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Old 03-25-2008, 06:41 PM   #19
Mary Jo
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Hahahahahahahahahahahahahahahaha Val.............a woman after my own heart. But, geez, only 20!!!!!!!!!!!!!!

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 03-25-2008, 06:47 PM   #20
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I am a firm believer in a positive attitude, and in doing what I can to improve my physical health, but not to the point of the detriment of my mental health.

I know I am going to die. That has been a truth since the moment of my birth. How I choose to spend the time in between is up to me. I choose to have a positive attitude and for the most part to be happy. If I choose to have a poor attitude or spend my days in sadness, I am the one who looses.

Don't worry--be happy! (I know, sometimes easier said than done.)
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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