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07-08-2008, 08:11 PM
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#1
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Senior Member
Join Date: Sep 2005
Posts: 52
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4 years...shouldn't I be doing something?
OK, I'm at 4 years since dx. I'm doing fine, but every once in awhile I feel like I should be doing something, taking something, more involved in research. I don't hover nearly as much over ASCO, etc. Should I be? Am I getting complacent or just moving on?
I had really nasty proliferative markers, with a 5cm tumor, so I went through whole shebang, and then got herceptin a couple of months after the trial data was announced. Although I'm running, exercising, working, (but still drinking wine), I'm feeling like I should be doing SOMETHING. Is this normal?
When do I let go??
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07-08-2008, 08:20 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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Seems like you already did !
Thinking about it every now and then is perfectly normal. If you have time to devote to research, then go where youre willing to go.
DO you still have follow-up with your onc ?
Maria
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07-08-2008, 09:12 PM
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#3
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Hi Dberg! It sounds like you are doing great! In my opinion, there is no "normal". We are all different, with unique life experiences. Our lives are "shaped/guided" by many different factors. You let go when you feel like it is right for "you" to let go. Allow influences to enter the sphere of your life, but dont let those influences control your life. Years ago, I was having trouble in my lifes path. I confided in a good friend, and he placed a hand on my shoulder, looked me in the eye, and said,"who is running your life?", and then he walked away.
__________________
For Nicola
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07-09-2008, 03:29 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Dear dberg
You are just like me (I am almost at 4 yrs) - did Herceptin after the trial results etc. I am getting less "involved". I love to still read the research (being a biochemist). I work, run, do other exercises, garden AND drink wine.
You are surviving and starting to live without the day to day worry and putting it behind you.
Enjoy!
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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07-09-2008, 04:00 AM
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#5
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Sounds to me like you are living you life! You have moved beyond cancer and that's a good thing. Enjoy your life and leave the past in the past.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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07-09-2008, 05:06 AM
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#6
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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You go girl!!!!!!!!!!
Hi dberg.............YOU GO GIRL! Sounds as if you've answered your own question You are "letting go" and moving on. I guess if there was something we "should be doing" we'd all want to do it but in reality there isn't much we can do...........other than of course......taking good care of ourselves.....keeping up with our check ups.........etc. Moving on and living our life to the fullest is the one thing we ALL "should be doing."
Cheers (I'm a Miller girl myself )
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-09-2008, 06:07 AM
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#7
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Senior Member
Join Date: Sep 2005
Posts: 414
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Life is busy
I know. I too feel like I should be doing more but life doesn't get any less busy just because you have had cancer. I have found some fast ways to give back. If you have your own computer and feel like doing something really easy and passive, the world community grid has a project, help defeat cancer, you can run as a screensaver in the background while you do other things. It helps if your computer would be on frequently anyway. If you can afford it, contributing to a cancer charity is also something fast that is doing something.
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07-09-2008, 10:18 AM
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#8
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Amen Christine.....There is no greater feeling than giving of ourselves. You receive SO much in return and it feels so good. It should be all about the recipient "getting" and "feeling so awesome" but it honestly comes right back to the giver .....it's defintely a well rounded blessing to everyone. Thanks for that great reminder Christine.
God Bless you....
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-09-2008, 04:30 PM
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#9
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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I feel the same way just two years out and on Arimidex.
I do lots of volunteering with Gildas club, take Qigong
classes, and am reading The Power of Now, and trying
to live in the now, no regrets and moving on.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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07-09-2008, 10:35 PM
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#10
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Senior Member
Join Date: Oct 2005
Location: southern california
Posts: 287
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Hi there,
I'm not sure if you are asking whether you should do more for the community through charity or if there is anything more you should be doing for yourself to prevent recurrance?
It sounds to me as though you are doing all that is available at this time for prevention. It also sounds like you are moving on. This, as I see it, is the ultimate goal. If we do not move past our diagnosis and treatment, what was the purpose having the treatment in the first place? I do volunteer at a suport organization and I feel as though I am helping others. I don't think it is the ideal place for everyone to give back though. Some may be more comfortable giving donations and suplies. If you are the person giving in this way please do not discount your importance in the scheme of things. Without financial support and suportive products, many of the people I contact could not be helped. My message of help would be mute.
After my diagnosis of cancer my sister, who only lacks for time, asks her secret santa at christmas to donate to any charity of their choice. Being she does not have an abundance of time, this is the way she contributes.
Last year it was a charity for autism.
Alice
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