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08-05-2007, 04:46 PM
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#1
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Yesterday's Gathering
Ten members and guests were present at yesterday's gettogether at the Carlsbad Inn in Carlsbad. It was great meeting our new friends and seeing our old friends again.
We had a wonderful time and went to lunch at Fidel's. The meeting was capped by a surprise birthday cake and corsage for Christine. We wish to thank Adriana for arranging this meeting.
Start making plans to attend our annual brunch in October at Lake San Marcos.
Beckie, Bob (hidden) Esther, Chris, Susan, Charlyn, Adrianna, Christine and Michelle.
Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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08-05-2007, 07:02 PM
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#2
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Sounds like fun. Would love to be able to meet up with you all some day soon!
Hugs,
Lexi
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08-06-2007, 05:38 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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You all look GREAT! Must be that California life!!!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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08-06-2007, 06:36 AM
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#4
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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This lifelong East Coast resident wonders if there really is a cultural difference between us. I agree with suzan--you are a great looking bunch.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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08-07-2007, 03:29 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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We had a lovely time chatting and getting to know each other. Meeting someone in person, connects you even more.
Special thanks to Adriana for coordinating it, and reserving the lovely conference room. Thanks to Joe and Crhistine for your hospitality as well.
I learned some specific details I had not been aware of, and walked away with some questions to ask my onc re my treatrment protocol. So it's all good.
I would encourage anyone who is able to come, to join in on the Oct Brunch gathering, You'll be glad you did!
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08-07-2007, 03:30 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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We had a lovely time chatting and getting to know each other. Meeting someone in person, connects you even more.
Special thanks to Adriana for coordinating it, and reserving the lovely conference room. Thanks to Joe and Crhistine for your hospitality as well.
I learned some specific details I had not been aware of, and walked away with some questions to ask my onc re my treatrment protocol. So it's all good.
I would encourage anyone who is able to come, to join in on the Oct Brunch gathering, You'll be glad you did!
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08-07-2007, 06:26 AM
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#7
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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WOW, What a great looking bunch...I wish I lived closer, looks like it was a great time....now you have all had the honor of meeting Christine in person...and that is an honor!
Thats it, I need to move to California!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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08-07-2007, 06:17 PM
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#8
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Senior Member
Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
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wow, it must of been great to meet in person. Joe, have you ever thought of posting a map of the world and pin pointing where all of our members are from? It would be an interesting visual to see.
__________________
Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009
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08-07-2007, 08:25 PM
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#9
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Oh, wish I could have been there! Someday........
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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08-08-2007, 12:47 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Joe-
Thanks for posting this - it's brought a smile to my face, and I'm sorry for once that I'm on the East Coast.
Kind regards,
__________________
Shell
init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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08-21-2007, 02:44 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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I have been gone to Boston on vacation and came back and specifically looked for these pictures.
I actually dorve by Dana Farver in Boston and thought of all of us and those who have been treated there.
I also visited MIT where they are doing research with T cells and microchips. a distant light of hope
You look wonderful
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