HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 03-08-2013, 08:31 PM   #1
Emy
Senior Member
 
Join Date: Mar 2012
Location: New York, new york
Posts: 73
Re: Chemo Failure #3...now I'm doing what???

Chris...
I send you love and prayers...This is such a difficult struggle....stay strong and positive...keep trying....eat asparagus (good for your liver)...ask about Mediforem, a diabetic drug that inhibits growth of liver tumors. What about radio ablation of the liver, where they burn out the tumors.....why did you choose chemoembolization over radio ablation .....I have been pushing for this, but am waiting to see results from perjeta, herceptin and taxol....6 weeks of treatments so far...taxol weekly, perjeta,herceptin every 3 weeks....I too had dcis in 2001, never told HER2poositive and after 5years of tamoxifen was told I was cured.....until 2010....my liver tumors have never gone away since 2011 which is why I want them out......I know how you feel, and you need to stay strong and positive and keep fighting....I am glad you are having the TACE procedure...
Love, Eileen
__________________
Eileen's history her2+, er+,pr-, Pk13 mutation
Feb 2017. Herceptin and perjeta ..still ned
Oct 2015 dendritic cell vaccine university of Pennsylvania..6 weekly injections...boosters every 3 months
July 2015 stopped weekly taxol (2.5 years of weekly taxol) still on herceptin perjeta every 3 weeks..still ned
Jun 2014 liver ablation of 1 liver tumor..now ned
Jun 28, 2013 ca15-3 24, cea 3.8... Pet scan showed 2 liver tumors with intensity of 2.7 and 2.5 (11/13 intensity was 8.0)
Jan 2013 herceptin, perjeta every 3weeks, taxol weekly
Jan 2013 MRI showed 3 liver tumors doubled in size ca-15 is 55 end of month 71, cea 7
Dec 2012. Pet scan showed single liver nodule, having MRI liver on dec18th...MRI liver 3tumors... on herceptin, tykerb , fulvestrant ca-15-3 is 42
Sept 2012 ca-15 went from 85 to 35, pet scan showed decrease
May 2012 herceptin every 3 weeks, 1500 tykerb daily (6pills) and fulvestrant every 3 wks
May 2012 herceptin stopped working ca-15 is 85
Sept 2011 started herceptin every 3 wks and femara daily..mets to liver. Bone and lymph nodes
2011 liver mets...all samples from 2001 and 2010 reviewed...her2 positive, fish 5.4. Er positive, prog neg. Stage 4 breast ca...never was lung cancer
2010 16 weeks of chemotherapy for lung cancer (incorrect). Carboplatin and vinalbine...was actually breast ca mets
2010 misdiagnosed with lung cancer ..2cm tumor removed..lower right lobe removed
2001-2006 tamoxifen
2001. Ductal ca. Rt mastectomy
Emy is offline   Reply With Quote
Old 03-08-2013, 09:15 PM   #2
Catherine
Senior Member
 
Catherine's Avatar
 
Join Date: Dec 2006
Location: Oregon
Posts: 715
Re: Chemo Failure #3...now I'm doing what???

Hi Chris,

Thanks for your honest report. This is not the story you wanted to tell or the one we wanted to hear. That being said, it sure sounds like you and your doctor are doing all the right things. I will be praying that the treatment next week works and that you tolerate it without having to cancel your trip to Bali (ha, ha). You are one of the leaders of the band and we are all listening to your beat.

Rock on, Catherine
PS Have you heard of Dr. Burzynski? I just read a review about an indy movie about his theory on cancer and his fight with the FDA. I do not know anything about it. I will put it on a new post.
__________________
Catherine


Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
Catherine is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 09:33 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter