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Old 11-08-2008, 04:16 PM   #1
ElaineM
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Wink Holidays and Celebrations

I have been thinking that it might be a good idea for us to share our favorite holiday and/or cultural celebrations now that we seem to be in the swing of winter observances. You don't have to limit your contributions to winter celebrations------just whatever comes to mind. Some suggestions are descriptions of celebrations, your memories and personal traditions associated with your favorite celebrations, poems, stories or recipes for your favorite holiday or cultural celebrations.
If we are lucky we wil end up with a wonderful multi cultural mix of things to read about and enjoy.
Now, I have to go look for a recipe for my favorite holiday, which is Christmas.
Have fun everyone !!
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Lucky 13 !! I hope so !!!!!!
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14 Year Survivor
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"You never know how strong you are until being strong is the only choice you have." author unknown
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Old 11-09-2008, 04:22 PM   #2
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Wink Holidays and Celebrations

I have been thinking about my favorite celebrations.
Of course Thanksgiving is one of my favorites. It is the last Thursday in November for those of you who do not live in the U. S. I am a vegetarian, so I don't eat Turkey, but I do eat all the other traditional Thanksgiving foods.
Thanksgiving reminds me of my own blessings. I like the period from Thanksgiving until New Year's because everyone is more jolly and friendly. One of my traditions is watching the Macy's Thanksgiving Day Parade from New York. We can usually get that on T. V. in Hawaii. My aunt told me it has been a family tradition since she was a little girl. My grandfather used to take his children to watch it in New York every Thanksgiving morning.
Okay. Anyone else for sharing?
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http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
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"You never know how strong you are until being strong is the only choice you have." author unknown
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Old 11-11-2008, 10:26 AM   #3
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Christmas Cookie Party

Every year I have my kids(2), kids in law(2), grandkids(4), my daughter-in-law's sister, her husband and 7 kids, the oldest of whom is married and has a baby, my daughter-in-law's parents, and my husband's "Hooter Girls" in to decorate cookies. It is soo much fun and I would recommend it for anyone wishing to really enjoy the meaning of Christmas.
Love & hugs,
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Old 11-11-2008, 11:46 AM   #4
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My favorite has always been decorating the tree. My hubby hated it...until I made the tree-trimming tradition include a big pot of hot mulled wine! Of course, now I have to make sure he puts the lights on the tree before he himself gets too lit!
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 11-23-2008, 06:28 PM   #5
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Smile Holidays and Celebrations

HAPPY THANKSGIVING TO ONE AND ALL !!

I am thankful to be able to celebrate Thanksgiving !!
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12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
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"You never know how strong you are until being strong is the only choice you have." author unknown
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Old 11-24-2008, 06:14 AM   #6
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Elaine
I too am thankful for family, friends, warmth, and each and every day!
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 11-24-2008, 07:02 AM   #7
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When I was little we lived in Wisconsin (first Milwaukee then we moved to Menomonee Falls). We did 3 things that I didn't do with my kids and people just don't do today.

First, my mom used to buy us Christmas dresses and new "shiny" shoes. We would go see Santa and get our picture taken all dolled up.

Another thing we would do is my dad would drive us downtown at night and we would walk around and look at all the windows. The big department stores all tried to outdo each other with the decorations. It was a big deal then to have a mechanical reindeer. The window dressings were just spectacular. Department stores don't do this anymore and its quite a shame.

Lastly, on a weekend night just before Christmas, my dad would take us all in the car to ride around and look at people's houses' decorations. We would always debate whose was best. Year after year we would know where to go as most people who did a great job one year did a great job the next year. This is one thing I still do - check out the surrounding area for nicely decorated houses.
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Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
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NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 11-27-2008, 12:02 PM   #8
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This year I decided to shoot my own turkey for Thanksgiving. You should have seen everybody duck for cover in the meat department!

Having a wonderful Thanksgiving everyone, even the people in Canada who celebrated it early.
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This happened to Colleen:

Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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Old 11-28-2008, 04:44 AM   #9
Kathy S in Tokyo
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Holidays

My children are bicultural and it has always been a challenge to let them experience some holidays like Thanksgiving or Christmas in a way that seems meaningful to me. We've ended up creating some of our own traditions as traveling overseas to visit my parents for the holidays is basically impossible. I'm very glad to have a few U.S. friends here in the same boat who like to get together and celebrate together. Tomorrow we'll have a belated Thanksgiving and all of my children can celebrate with us (last year there were exams in school and they couldn't get away even for inlimited mashed potatoes and turkey, which is pretty exotic in Japan).

In order to justify celebrating all the U.S. holidays, I make sure that we celebrate the Japanese holidays too. I've been sharing some of the traditional dishes I cook for New Year's day with some of my elderly neighbors who don't have children or grandchildren but still want to enjoy some tradition. They don't seemed at all phased by accepting my sweet black beans, mashed sweet potato and chestnuts or tiny soy flavored candied dried fish from the tall, blue eyed brunette and I wonder if they think that Americans all celebrate New Year's with the same food.
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11/2004 partial masectomy (clear margins) - ER/PR++ HER+++
12/2004 Tamoxifen
11/2005 Clavicle & neck lymph nodes mets
30 Days rads, 7 months CEF-T Chemo
6/2006 mid chemo lung mets oral toremifene
10/2006 changed hospitals
12/2006 Tamoxifen and monthly Zoladex
2/2007 Dramatic growth of mets! Stopped Tamoxifen and Zoladex
3/2007 Began weekly Herceptin
6/2007 Added weekly Taxol to regime
4/2008 More lung mets - stopped Taxol
5/2008 Xeloda - 3 weeks on 1 week off
8/2008 Got a port!
9/2008 Stopped Xeloda, started weekly Navelbine
12/2008 Tumor progression, stopped Navelbine
1/2009 Taxotere begins again, once in every three weekly Herceptin IVs
3/2009 Added Zometa pelvic bone met, lung tumors progressing, stopped Taxotere/Herceptin
4/10/2009 Whoa seizure! 6cm&3cm brain mets. craniotomy and gamma knife surgery 5/15/2009 Started
Adria/Cyto stopped 9/15 due to progession. Brain mets back 10/28 surgery more gamma soon
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Old 11-28-2008, 09:07 PM   #10
ElaineM
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Wink Holidays and Celebrations

The mashed sweet potato and chestnuts sounds delicious. Can you share the recipe with us?
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12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
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"You never know how strong you are until being strong is the only choice you have." author unknown
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Old 11-28-2008, 09:32 PM   #11
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Bill. this is for you, how about some flying Haggis, hugs and Blessings , Jeanette
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Old 12-04-2008, 04:03 AM   #12
Kathy S in Tokyo
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Here it is Elaine. It's very sweet so I use leftovers between pancakes for a satsuma/chestnut dorayaki.
  • 1 lb. satsuma imo(sweet potatoes) peeled , cubed and soaked in water for about 15 mins
  • 1 jar of simmered sweet chestnuts in syrup (8-12 pieces of chestnuts, reserve the syrup)
  • 1 1/2 cup sugar
  • 1 tbsp mirin
  • 2 kuchinashinomi (Cape jasmine seeds) or a little yellow food coloring ( or not, if the bright yellow color isn't so important to the scheme of your laquer box of New Year's treats)
Drain satsumaimo. Wrap crushed kuchinashinomi in a sheet of gauze. Put water, satsumaimo, and kuchinashinomi in a deep pot, bring to a boil, lower heat to medium and simmer until satsumaimo is softened. Drain and remove the kushinashinomi. Mash satsumaimo and add 3/4 cup of sugar and mix well. Strain the mashed satsumaimo and put it back in the pot. Add 3/4 cup of sugar, mirin, 1/4 cup of syrup and stir constantly on low heat until smooth and a little shiny. Add chestnuts and simmer while stirring for a few minutes. Store in fridge in tupperware with a sheet of plastic wrap to keep moist.
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11/2004 partial masectomy (clear margins) - ER/PR++ HER+++
12/2004 Tamoxifen
11/2005 Clavicle & neck lymph nodes mets
30 Days rads, 7 months CEF-T Chemo
6/2006 mid chemo lung mets oral toremifene
10/2006 changed hospitals
12/2006 Tamoxifen and monthly Zoladex
2/2007 Dramatic growth of mets! Stopped Tamoxifen and Zoladex
3/2007 Began weekly Herceptin
6/2007 Added weekly Taxol to regime
4/2008 More lung mets - stopped Taxol
5/2008 Xeloda - 3 weeks on 1 week off
8/2008 Got a port!
9/2008 Stopped Xeloda, started weekly Navelbine
12/2008 Tumor progression, stopped Navelbine
1/2009 Taxotere begins again, once in every three weekly Herceptin IVs
3/2009 Added Zometa pelvic bone met, lung tumors progressing, stopped Taxotere/Herceptin
4/10/2009 Whoa seizure! 6cm&3cm brain mets. craniotomy and gamma knife surgery 5/15/2009 Started
Adria/Cyto stopped 9/15 due to progession. Brain mets back 10/28 surgery more gamma soon
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Old 12-04-2008, 11:36 AM   #13
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Wink Holidays and Celebrations

Mahalo and Arigato Kathy,
It sounds delicious. I will try it over the holidays. Sweet potatoes have alot of antioxidants too !!
Anyone else for sharing a holiday recipe? We can all learn by sharing holiday recipes.
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12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
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"You never know how strong you are until being strong is the only choice you have." author unknown
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Old 12-04-2008, 01:41 PM   #14
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Wink It's about the TREE

I would like Chrisy's hot mulled wine recipe!

My hubby makes a hot tea toddy for us to sip while we "do" the tree. Uses a good rum for that.

For me the tree trimming is just about the BEST part of the Christmas holiday. For some reason I never got over the love of having a pretty, fresh Noble or Fraser Fir. Pricy, though they are getting!
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MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 12-04-2008, 03:18 PM   #15
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I'm sipping and smelling in my mind already! Everything sounds devine!!! ma
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Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 12-04-2008, 05:40 PM   #16
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I love my Haggis, Jeannie! I like it with a little "sauce" on it once in awhile, though. I've never made my own, but I think I need to learn. I have an aunt who makes the best, but she does it in secret and won't give out the recipe!
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Old 12-04-2008, 05:48 PM   #17
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Wink

Glad you like Haggis Bill. First you need a sheeps bag and pluck, LOL I think I will leave it at that. Jeanette
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Old 12-05-2008, 10:48 AM   #18
WomanofSteel
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Every Christmas morning I get up and put coffee on and after I have had my coffee, I pop open a bottle of champagne and celebrate with a little bubbly. Then, we all open our gifts while I sip away on my special gift to myself. P.S. It also tastes better with chocolate covered strawberries!
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bcs 8/4/03
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Taxol not working switched to navelbine
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gemzar quit on me now on Ixempra due to increasing number and size of liver mets
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Old 12-09-2008, 09:23 PM   #19
ElaineM
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Wink Holidays and Celebrations

In my mind it is not Christmas without a tree. I dragged my tree and decorations out of storage yesterday even though I had to move alot of things to do it, so I am in the middle of decorating my home these days. It is a lot of work, but worth every bit of it. I never take my tree down or put away my decorations until after the 12th night (around January 6th or 7th). One year I had it up until the end of January when I had bronchitis !! I had a real tree that year. My neighbors must have wondered about me when they saw me dragging it out to the trash on January 31st. Oh well.
I also love Christmas Eve or Christmas Day services.
Church on Christmas felt like something miraculous when I was a child. It still does.
Mele Kalikimaka (Merry Christmas)
Hauoli Makahiki Hou (Happy New Year)
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 12-10-2008, 08:45 AM   #20
Colleens_Husband
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For our family, the start of the holiday season is a huge shopping trip to the grocery store. Our grocery store has a 20% off coupon it mails out the first of December. We get all the kids packed up and we go to the store. Each child gets their own cart and they get to put anything they want in the cart. We usually buy a years worth of canned goods and all sorts of meat for the freezer. We usually end up with four or five carts filled to the brim. It is a great time for everyone and it also marks the start of the Christmas season. This year we spent about $1,200 and with coupons and 20% off, the bill came down to $750. By the way, our family motto is, "Never pay full price for anything".
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This happened to Colleen:

Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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