HonCode

Go Back   HER2 Support Group Forums > Keeping Your Mind Off of BC
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Keeping Your Mind Off of BC Fun things and posts that do not apply to BC

Reply
 
Thread Tools Display Modes
Old 03-27-2008, 06:01 PM   #1
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,111
Cool Hey Bill! More cupcakes ...

Just watch MARTHA next week, or set your TIVO. It will be "Cupcake Week" on her show.
Or you can go to her website and see all the cupcake recipes and the suggestions people post!
http://www.marthastewart.com/
Not that YOU need any more ideas! Tee hee.

Cutest Cupcake Contest

Share photos of your most creatively decorated cupcakes -- use flowers, candy, marzipan, or whatever inspires -- and you could win an elegant cupcake tree from the Martha Stewart Collection. Contest begins Monday, March 31.


(Don't normally watch her show, but was channel surfing when I heard this.)
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

Last edited by StephN; 03-27-2008 at 06:05 PM..
StephN is offline   Reply With Quote
Old 03-27-2008, 06:47 PM   #2
Bill
Senior Member
 
Bill's Avatar
 
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
Hehehehe, that's funny, Steph, I saw a young woman riding down the rode today peeling a cupcake and eating it. Yep, I've got too many ideas already, how could you tell? Right now I'm working in the greenhouse section of my laboratory trying to purify the strain of seeds I've developed for my cupcake tree. Thus far, all of my efforts have resulted only in a pitiful six foot bush that sprouts only "bite-size" chocolate cupcakes with chocolate icing. If I tried to publish those papers, I'd be the laughing stock of the scientific community. Don't worry, Ladies, I'll be hard at work until I perfect the "Cupcake Tree". I don't want to be known amongst my peers as, "that loser, Sir William, worked his whole life in the field and the best he could do was come up with a bite-size chocolate morsel bush, not even a full cupcake, hahaha,...good chap, though, he'll be missed....."
Bill is offline   Reply With Quote
Old 03-27-2008, 08:55 PM
hutchibk
This message has been deleted by hutchibk.
Old 03-27-2008, 08:57 PM   #3
hutchibk
Senior Member
 
hutchibk's Avatar
 
Join Date: Oct 2005
Posts: 3,519
We have a cool place here in Austin called HEY CUPCAKE! It is in an airstream trailer and is so cool. I wish it had been my idea...There is a line of at least 10 people at the window all day long. And their cupcakes rock.
Attached Images
 
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
hutchibk is offline   Reply With Quote
Old 03-27-2008, 09:32 PM   #4
Bill
Senior Member
 
Bill's Avatar
 
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
Hucklebuck, I busted out laughing, that is so funny!
Bill is offline   Reply With Quote
Old 03-27-2008, 11:54 PM
Kathy S in Tokyo
This message has been deleted by Kathy S in Tokyo.
Old 03-27-2008, 11:57 PM   #5
Kathy S in Tokyo
Senior Member
 
Kathy S in Tokyo's Avatar
 
Join Date: Mar 2007
Location: From Syracuse, NY but living in Tokyo, Japan for 26yrs
Posts: 132
I thought cupcakes grew on vines. I guess I'll have to clear all those non-producing vines away and make room for a planter for a tree on the balcony now. Too bad I didn't plant in time for DD2's birthday on Sunday.
__________________
Kathy S in Tokyo (44)
11/2004 partial masectomy (clear margins) - ER/PR++ HER+++
12/2004 Tamoxifen
11/2005 Clavicle & neck lymph nodes mets
30 Days rads, 7 months CEF-T Chemo
6/2006 mid chemo lung mets oral toremifene
10/2006 changed hospitals
12/2006 Tamoxifen and monthly Zoladex
2/2007 Dramatic growth of mets! Stopped Tamoxifen and Zoladex
3/2007 Began weekly Herceptin
6/2007 Added weekly Taxol to regime
4/2008 More lung mets - stopped Taxol
5/2008 Xeloda - 3 weeks on 1 week off
8/2008 Got a port!
9/2008 Stopped Xeloda, started weekly Navelbine
12/2008 Tumor progression, stopped Navelbine
1/2009 Taxotere begins again, once in every three weekly Herceptin IVs
3/2009 Added Zometa pelvic bone met, lung tumors progressing, stopped Taxotere/Herceptin
4/10/2009 Whoa seizure! 6cm&3cm brain mets. craniotomy and gamma knife surgery 5/15/2009 Started
Adria/Cyto stopped 9/15 due to progession. Brain mets back 10/28 surgery more gamma soon
Kathy S in Tokyo is offline   Reply With Quote
Old 03-29-2008, 06:26 PM   #6
juanita
Senior Member
 
juanita's Avatar
 
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
Hmmmm, I've been working on my donut tree. Just hasn't sprouted yet.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
juanita is offline   Reply With Quote
Old 03-29-2008, 06:31 PM   #7
Bill
Senior Member
 
Bill's Avatar
 
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
Talking

Hello, Bonita! Nice new pic of you guys. A donut tree is a great idea!
Bill is offline   Reply With Quote
Old 06-06-2008, 04:52 PM   #8
Colleens_Husband
Senior Member
 
Colleens_Husband's Avatar
 
Join Date: Jan 2008
Location: Oregon City
Posts: 856
Hey Bill:

I know, you work on your cupcake tree, I perfect the spray cheese tree, and we introduce the worlds best snack food, cupcakes with spray cheese filling. It's a yin and yang thing. I know you are thinking, "But does spray cheese even taste good with cupcakes?" That's the beauty of the plan. It doesn't have to!

Who ever thought peanut butter and chocolate would taste good together? Well, they don't. Reeses Corporation just convinced everyone it tastes good through marketing. With the right marketing you could convince people to like coffee flavored latte's. Okay maybe not that. That might be an extreme example, but you get the picture, right?

Lee
__________________
This happened to Colleen:

Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
Colleens_Husband is offline   Reply With Quote
Old 06-07-2008, 04:11 PM   #9
ElaineM
Senior Member
 
ElaineM's Avatar
 
Join Date: May 2006
Posts: 3,142
cupcakes

hi,
Huuummm. Yummy.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
ElaineM is offline   Reply With Quote
Old 06-07-2008, 07:46 PM   #10
juanita
Senior Member
 
juanita's Avatar
 
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
sounds like a good idea. i can think of a few flavors to go together.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
juanita is offline   Reply With Quote
Old 06-09-2008, 05:45 PM   #11
Bill
Senior Member
 
Bill's Avatar
 
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
Lee, you madcap, it's so crazy it just might work! We could call it the "cheesecake", no that's already taken, so we'll have to figure out a name later. I think we've got something here. This is highly do-able! Lee, you're a genius!
Bill is offline   Reply With Quote
Old 06-10-2008, 04:46 PM   #12
chrisy
Senior Member
 
chrisy's Avatar
 
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Bill the cupcake crisis is worse than I thought

OK, we already know that hospitals are not traditionally known for their fine cuisine. Although some of them are bucking the trend and installing 4star chefs to head their food service (I have actually GONE OUT TO DINNER at our local Sutter hospital!).

But what I saw this morning at UCSF made me shudder! They have knock-off Hostess cupcakes! and knock-off Twinkies! Not even the real thing - just cheap imitations of hostess cupcakes and twinkies. This could be a disaster for the undiscerning customer - I mean what if the fakies don't have an infinite shelflife like the real ones? Somebody could be poisoned!

Hurry with that cupcake tree...


p.s. bill - I almost took a picture of them but I didn't have my spy camera, only my regular one
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
chrisy is offline   Reply With Quote
Old 06-10-2008, 06:29 PM   #13
Bill
Senior Member
 
Bill's Avatar
 
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
Chrisy, I know. There is nothing like the real thing. Those knock-offs just make you miserable. A fake Twinkie or Hostess cupcake for dessert just flat out ruins a good dinner. Why, just last week I took a very nice young woman out to dinner at a fine local restaurant and the steaks were awesome and after dinner, the waiter asked if we cared for any dessert. You guys know me, I'm rather timid and fearful, but this time I just went for broke. I really wanted to impress this girl, so I looked her in the eye and said to the waiter, "mister, we'll have the Twinkie for Two." My date was obviously impressed, as any woman would be. When the waiter returned with the Twinkie for Two, we each picked up our forks and romantically scooped out the end piece, our eyes locked together as we tasted the first bite. I immediately knew something was wrong. My dates eyes got very big and then turned from green to black in an instant. "What the h*** is this B******t you're trying to pull, you tightwad S*B! That's a fake Twinkie!" She got up and stormed out, sticking me with her half of the bill. I keep waiting, but she still hasn't called me. (Secret message to Secret Squirrel- didn't I tell you to always, always carry your spy-cam with you?!?!?! You never know when you will need it)
Bill is offline   Reply With Quote
Old 08-08-2008, 05:38 PM   #14
Mgarr
Senior Member
 
Mgarr's Avatar
 
Join Date: Dec 2005
Location: Michigan
Posts: 230
Images: 2
Posted my cupcakes in the gallery for you all.

Mar
__________________
Mary


Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED

Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson

Mgarr is offline   Reply With Quote
Old 09-04-2008, 12:00 AM   #15
harrie
Senior Member
 
harrie's Avatar
 
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
I recently made 96 cupcakes!! Between this weekend and last!! My son is in town and he and his friends LOVE my cupcakes and they practically inhale them!! Made choc and vanilla with butter icing and sprinkles on top.

Mary, your cupcakes are BEAUTIFUL!!!
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
harrie is offline   Reply With Quote
Old 09-04-2008, 02:55 PM   #16
juanita
Senior Member
 
juanita's Avatar
 
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
Made 120 cupcakes the past 2 nights. They feed our football team on Thursday nights before home games on Friday, so I pitched in. It's normally cookies but this week it was cupcakes. Dilly helped put the sprinkles on top so some got more than others.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
juanita is offline   Reply With Quote
Old 09-04-2008, 11:28 PM   #17
harrie
Senior Member
 
harrie's Avatar
 
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
OMG Juanita!!! I THOUGHT my 96 between 2 weekends was amazing...but 120 in 2 nights!!!???
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
harrie is offline   Reply With Quote
Old 09-05-2008, 11:30 AM   #18
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,111
Now we know that among her other attributes, Juanita is a POWER BAKER.

The good thing is that she is giving those cookies and cupcakes to a GOOD CAUSE and not sneaking a few for herself! Maybe one for Dilly ...

Juanita is an example of true neighborhood generosity. We would just give our grandsons money to treat their team after their baseball/soccer games.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote
Old 09-05-2008, 02:06 PM   #19
Mgarr
Senior Member
 
Mgarr's Avatar
 
Join Date: Dec 2005
Location: Michigan
Posts: 230
Images: 2
Harrie Thanks. Wish I could take credit for baking them- I do not like to bake, Love to cook --if you bakers were closer I'd make a deal I cook dinner you bake!

Mar
__________________
Mary


Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED

Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson

Mgarr is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is On

Forum Jump


All times are GMT -7. The time now is 04:58 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2020, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007
free webpage hit counter