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Events and Social Calendar Post events which will be of interest to our members no matter how large or small. You may also add them to our calendar as an additional reminder.

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Old 02-05-2009, 07:37 PM   #1
Jackie07
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9th Annual Conference for Young Women Affected by Breast Cancer

This just in:

If you haven’t registered for the 9th Annual Conference for Young Women Affected by Breast Cancer, it’s not too late to reserve your spot. Join us in Dallas , Texas , February 27 through March 1 for a weekend dedicated to your needs as a young woman at any stage of diagnosis, treatment or recovery. Register yourself, your friends or your caregivers today.
Make sure you check out youngsurvivorsconference.org for details about the conference including:

Conference agenda Register for the conference today. After you register, help raise money for the 9th Annual Conference Scholarship Fund by clicking “continue” at the bottom of your screen. You can use the online tools to create a personal Web page and e-mail your friends to ask them to support the fund so more young women will have a chance to attend the conference.

We’ve just confirmed a great panel of experts for the “Cancer and Careers” workshop on Friday afternoon. They will discuss whether and how to address a diagnosis with employers and coworkers; how to inquire about effective treatments that may allow more flexibility and convenience; and what you need to know about your legal rights in the workplace.

We look forward to seeing you later this month!
The Staffs of Living Beyond Breast Cancer, Susan G. Komen for the Cure and the Young Survival Coalition

Annual Conference for Young Women Affected by Breast Cancer

354 West Lancaster Ave, Suite 224
Haverford , PA 19041
Phone: (610) 645-4567
Fax: (610) 645-4573
http://www.youngsurvivorsconference.org
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
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Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
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hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

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Old 02-06-2009, 02:48 PM   #2
CourtneyL
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Location: San Francisco
Posts: 260
I just booked my reservation today! Who else is going from the HER2 Support Group? I hope to meet many of you fabulous ladies!
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.

Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial

Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED

Send me a PM if you'd like to follow my journey on Caringbridge.
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