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07-10-2009, 07:01 PM
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#41
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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Reach out and hug that wonderful man of yours. What a special man he is. Enjoy today and every precious minute. Find joy in the now and celebrate this Mighty Oak of yours. May God touch your lives and provide comfort, peace, and LOVE to you all.
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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07-10-2009, 07:16 PM
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#42
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Senior Member
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
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Marie,
I watch for news from you on Ed. It is painful to hear your story as we only hope the best for you two.
I agree too that it is time to ask for some help with Ed's illness. This is taking such a terrible toll on you. I'm not saying throw in the towel. I will keep praying for a miracle!
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes
Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"
Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla
Reconstruction: TRAM flap, partial loss, Revision
The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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07-10-2009, 08:49 PM
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#43
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Marie,
You and Ed are in my prayers. You are so sweet and compassionate. Please be sure to take care of yourself, too. Don't be afraid to ask for help when you need to.
Hugs and Prayers,
Lexi
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07-10-2009, 08:57 PM
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#44
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Dear Marie,
When my Father was ill my sisters and I would take turns taking care of Dad. On my day I had been walking my Father from the bathroom and his legs just gave out and he began to sink down to the floor and I could not stop it from happening. I was able to hold onto him as his body sank down and I used my body as a shield so he would not get hurt. I did all I could but I was so filled with regret and sorrow. I think it is only normal that when we care for our loved ones we want to protect them 200% ....it is not possible. Good reason tells us that, but we still strive to shelter them. Please remember you are doing all you can and then some.
Keeping both of you in my prayers.
Sending you hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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07-11-2009, 08:01 AM
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#45
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Senior Member
Join Date: Sep 2005
Posts: 556
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Marie,
I am praying for you and Ed that everything should be OK and you will have peace of mind. Please take care of yourself also. This is a tough journey to be fought with a strong mind and body.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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07-11-2009, 05:52 PM
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#46
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Senior Member
Join Date: Oct 2008
Location: Detroit, MI
Posts: 205
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Praying
Marie-
I hope you and Ed can feel all the love and prayers coming your way. Praying hard for your Mighty Oak!
Love,
Maureen
__________________
Maureen
My loves
IDC & DCIS, HER2+++ Diagnosis: October 1, 2008 - Tumor: 6.8 centimeters, never showed on mammograms
- ER-/PR-
- November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
- Stage IIIc
- Lapatinib Clinical Trial start: November, 2008
- Surgery: May 5, 2009
- Started Herceptin: May 19, 2009
- Started Radiation (33 rounds): June 10, 2009
- September 2009: Moved to Michigan to be closer to family
- 12/09 - still on Herceptin until May 2010
- August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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07-12-2009, 05:39 AM
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#47
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Marie and Ed
Please know that you are both always in my heart and prayers....this disease is so unfair and tugs at our hearts constantly....you are a pillar of strength for Ed and all of us....truly an angel~
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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07-12-2009, 07:48 AM
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#48
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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Dear Marie,
Jean is right- it is impossible to shield our loved ones from everything- even though we may try every second of every day. My heart and prayers are with you both. Stay as strong as you can.
k
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07-12-2009, 09:16 AM
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#49
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Good Morning Marie and Ed......You are in my heart and prayers for God's loving embrace to hold you, are on my lips. I know our Father hears and I trust you feel that love and embrace.
Surrounding you both in prayer.....
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-12-2009, 09:36 AM
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#50
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Dear Marie, My heart is aching for you and Ed! It is sometimes harder to be the caretaker than the one needing help. I believe there are angels 'round about you, giving you strength and courage, so rely on them. As many others have said, you are an angel for Ed, too, and you must stay strong. There are health care people who can come in to help you. You can't do it all alone! Let others know of your need and there will be someone who can help so that you aren't doing things like laundry and cleaning and even meal preparation. They will also help you with medical needs, to ease your burdens so you are able to spend your time being there for Ed. We all feel love for you and send many, many prayers your way. Everytime I read your posts I marvel at how strong you are and how much you love your Mighty Oak, and I pray for you both. Thank you for the sweet post you sent to me. I love you! Tricia K
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07-12-2009, 10:01 AM
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#51
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Marie, sending you and Ed a great big hug and a prayer. I hope Ed is doing better. Hopefully he was just a little light from not eating properly. Hang in there honey!
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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07-12-2009, 03:58 PM
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#52
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Senior Member
Join Date: Jan 2008
Posts: 154
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Marie and Ed,
My prayers are certainly with you both right now, as always. I don't know what else to say except please hang in there, and there isn't a day that goes by that you aren't in my thoughts.
Doug
__________________
Diagnosis and Treatment: DX 12/07/07
Male Diagnosed with DCIS at age 39
Mastectomy on right breast
Tumor Stage pt1b NO MO
DCIS Tumor size 1.5 x 1.x .6cm
Infiltration tumor size .25X.17 cm
Bloom-Richardson Grade 3(score 8)
Nuclear Grade 3 with comedo necrosis
Estrogen+/Progestrone+/HER-2/Neu +++
FISH ratio 4.31
Lymph node removal scheduled 1/07/08
17 nodes tested and all negative 1/08/08
Started Tamoxifin 1/29/08
Oncotype DX score 52 (off the charts, according to my onc!!!)
Starting TCH 3/14/08
BRCA I Positive BRCA II Negative
Finished TC 6/27/08 continue Herceptin
8/1/08 Herceptin stopped due to low Muga score
Mastectomy on left breast 11/10/08
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07-12-2009, 04:09 PM
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#53
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Oh Marie, I am praying for your sweet Ed.
xoxo
Karen
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07-12-2009, 04:37 PM
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#54
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Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
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Marie., I am thinking and praying for you and your hubby..
__________________
Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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07-12-2009, 08:02 PM
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#55
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Marie,
Please don't feel guilty. You have been on top of everything and you couldn't know he would fall like that. I think it is a good idea to have someone help you. You need someone to take care of you too. It must be so difficult to have this all on your shoulders. You need some rest too.
Hugs ~ Ruth
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07-13-2009, 01:49 AM
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#56
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Senior Member
Join Date: May 2006
Posts: 157
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Marie,
I am so sorry to hear what happened to Ed. You are both in my daily prayers.
You are such a wonderful and devoted wife, there is no place for guilty. Ed is blessed to have you by his side.
I hope he is doing better, and that the side effects of Ixempra are mild this time. When will he start Temador?
As for me, I had my 12th treatment of Ixempra, and I just had a CT scan last Thursday. I will see the doctor on the 23rd to get the results. I also have been experiencing short of breath and cough lately. I will let you know the results.
A big hug for both of you.
KarlaV.
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07-13-2009, 07:03 AM
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#57
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Guest
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Tears are stinging my eyes right now!
Marie and Ed, my heart is just a big ache right now, I'm praying so hard for you two.
Maire, you are a HERO and dont' ever forget that. What you have done for and are doing for Ed is more than anyone person should have to deal with.
Your both in my prays right now.
Randi
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07-13-2009, 07:47 AM
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#58
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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Marie said:
I feel guilty about this, I am just sick about it. What the hell was I thinking?? I should be watching out for things like this. I held him as he was out and kept repeating that I love him and it's okay, I love you, I am right here. I felt so helpless sitting on the floor holding him.
Marie:
Being a caregiver is an extremely difficult thing to live through. You are taxed emotionally, physically, and mentally. Sometimes the emotional aspects of going through hard times will take a toll on your physical and mental abilities. Did you want Ed to be injured? Of course not! Do you have some sort of clairvoyance which could have seen this happen? Of course not!
You said you felt helpless sitting on the floor next to Ed, but that isn't the whole truth. You would be feeling helpless even if Ed wasn't injured. Ed's fall just brought to the front of your mind what you have been increasingly feeling for some time now.
Marie, you did nothing to feel guilty about. Even though you increasingly feel the wearing down of a loss of hope, you are still fighting. You are still praying. You are still caring. You are still doing everything that is humanly possible to help Ed through this difficult journey.
To be honest, I admire you. I love your fighting spirit. I love the care and devotion you have shown to Ed. If I were in your shoes, I would hope that I could be as strong as you. You have been in a tough enough battle, you don't need to make things worse for yourself by piling on feelings of guilt.
Marie, please take excellent care of yourself. Go find something to treat yourself with. You certainly deserve it.
Please know that we are by your side. You and Ed will be in our thoughts, hearts and prayers.
Lee
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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07-13-2009, 11:13 AM
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#59
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Nicely said, Lee.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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07-13-2009, 11:19 AM
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#60
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Senior Member
Join Date: Feb 2006
Posts: 437
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Dear Marie,
I have been following your loving posts about Ed. I am sorry you are both going through such a difficult time. It's clear that you are both very special, and you are absolutely doing everything right. I have you both in my prayers.
God bless.
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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