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Old 04-23-2007, 11:02 AM   #1
Sherryg683
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Explain the benefits to me

This may seem like a dumb question,seeing that I have gone full force with getting on Tykerb as a preventative. But what would the benefits be of staying on it for 3 to 6 months. I originally thought I would be on it indefinately like I am herceptin but then realized that's not the case. I am thinking it would be to clear up any stray cancer cells that are in my body that are too small to show up on scans. Would it have any long term benefits on being on it for this short amount of time. Just second guessing now and wondering what the school for thought is on this matter. I know my oncologist will tell me he doesn't know if there are benefits. Take in mind I am stage IV, but currently in remission.sherryg683
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Sherry

Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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Old 04-23-2007, 08:24 PM   #2
Odette
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Join Date: Apr 2007
Location: Shaker Heights, Ohio
Posts: 86
Sherry,

We do not know! Your doctor does not know. Maybe nobody knows. It's a mystery.
FYI my doctor plans to have me on T for a whole year. That is more like the Herceptin. Maybe by the time that year is over there will be some answers to our questions from trials.
Have I asked you before, do you go anywhere for a second opinion?

Best wishes,

Odette
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May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment

'One does not get to choose one's adventures'

I'm experimenting with my diet, using green tea, flax seed curry and olive oil

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